Hi Dai

I'm going through the same feelings at the moment although I'm being far less careful than you, presuming that I'll be ok :-/ and hoping for the best!

I'm on maintenance at the moment and after nearly 18 months, my neutrophils dropped to 0.56!! They managed to get me up to 0.8 by taking me off revlimid for 2 weeks and giving me 5…[Read more]

Tom
Your right there are some right dickheads out there wrapped up in their own little worlds where nothing matters as long as they can breath, drink, smoke or do whatever THEY want. But and it's a Jennifer Lopez sized BUTT there are lots of people who do care. The problem a lot of the caring people have is vocalising their caring side. Some can…[Read more]

That's what I've been led to believe Tom.
Mind you it's still a long way off but I'm hoping to get my free Revlamid 😀

Hi Vicki sorry your not well, but it's great that Colin is well enough to look after you for a change. Hopefully you'll both have a long time to recharge your batteries now and get back to some sort of a normal…[Read more]

Hi Dai.
Thanks for posting Pats article. I read it on twitter, I follow him as he has some great insights and info, and found it to be very apt. I have found that those around me look at me and think I'm beating MM because I "look well" but I'm not. I know it's a fight I can't win. I'm living with MM I can't even get to SCT I'm on drugs…[Read more]

Thanks Mavis and Tom.
I've been told by my specialist nurse if I make it to cycle 25 Revlamid will then be supplied free for me to the NHS. Now that's a goal to aim for. 🙂 Though it'll cost the NHS a canny bit to get me there lol.

Andy on Dex :-/
😀

Just bumping this one up so that new Under 50's (or thereabouts!) can get access to the Under 50's site – one bonus of the site is that you can rant and rave if you need to without worrying that the people you are ranting and raving about might read your comments – it is a private site so even those innermost feelings that you don't want your…[Read more]

Congrats! That's wonderful. 😀

Hiya,
I would also ask about Thalidamide to see if it's an option..
All the best of luck..
Chelle xx

Hiya David.
I hope the blood sample you give today turns out to be a good one and your consultant has the same smile that seems to be permanently on the face of Tom's consultant. Good luck.
All the best.
Andy

Great news Tom my twitter & f/book friend 😉
As Dai says is great that you're here all the time giving support even though your in longer term remission. Could you have stumbled on the secret of long term remission VODKA? I think you should have a little celebration over the w/end 😉
In fact I'm going out tomorrow night and i'm going to have a…[Read more]

Hi Tom.
I'm on just in case anti-virals because I've never had chickenpox! There's a lot of it about at the moment and its very dangerous, or so I've been led to believe, to us MMers. If I come into contact with anyone with the pox 😉 or anyone who's been in close contact with someone with it I have to get along to the hospital straight away. So…[Read more]

Hi Rob.
I had the pump when I was on PAD it wasn't too bad once i got used to it though I too missed out on the red pee. I only had two cycles of Pad or it may of been three but it didn't happen for me 🙁 side effects wise I got a little numbing in the end of my fingers like you get when you've had your hands in water too long.
Hope everything…[Read more]

Hi Vanessa
I'm sorry Stewart is having such problems with everything – I remember having problems when I was on CDT and being in and out of hospital regularly with back problems and infections in my case. I know osteonecrosis of the jaw can be a side effect of Zometa and PE is a side effect of thalidomide. I was warned about them both at the…[Read more]

Hi Carryanne.
Welcome, belatedly, to the forum. I hope you have a long and successful stay. I'm one of the rarer cases with MM. I was diagnosed Oct 2011 and told I'd probably be having a SCT in the spring 2012 – well it didn't go to plan and now I'm on my 4th treatment and at last I'm making a little progress month by month. Auto SCT and Allo SCT…[Read more]

Hi Dai
Hope you are recovered from your latest trip to hospital and your bloods are good. I think temperature spikes with no discernible causes are a norm for MM.
I was at the day unit today for blood tests, zometa and to pick up my next cycle of drugs.
Keith was admitted to hospital Monday with a chest infection and was still in today lets…[Read more]

Hi Keith

I hope the transfusions on Friday went well and you didn't have to wait too long for the blood to turn up from Newcastle. Hopefully you'll have had a good weekend and your platelets start to climb and the CDT gets to work.
I guess I'll see you again Friday – with a bit of luck it will be only for blood tests for the both of us.
All…[Read more]