Hi Vicki & Colin.
I'm feeling good at the moment which is at odds to what I should be feeling given my situation but hey ho I'm not going to complain – well not too loudly. Get my latest pp results tomorrow at the vampire shop. They'll take the usual armful of blood as well hopefully my neutrophils will have improved a bit. Monday I'm of to see…[Read more]

Hi Peggy.
I was diagnosed in October 2010. I haven't had a sct yet and don't look like having a one till early next year. Everyone's journey with mm is different. Some make it to sct with only 3 cycles of chemo. some (rare) like me don't respond to the drugs at all. The majority fall somewhere in the middle.
My sct is going to have to be a…[Read more]

Hi Karen
A belated welcome to the forum I hope you find it a help. Sorry you've had to join us but truth be told none of us would choose to be here. I'm 54 diagnosed a year gone October after 18 months of back pain!!
Unfortunately for me I'm proving rather difficult to treat (a rare case) and have had lots of different treatments with little or…[Read more]

Hi Vicki & Colin.
Well Colin does seem to like that hospital food. From what I've read about SCTs you do spend you first weeks of "freedom" popping back and forth to hospital so I don't think Colin is unusual in that though his haste to get back was a little to keen. You must have gone through a wide range of emotions today but with that temp he…[Read more]

Hi Keith

I hope this new treatment works and gives you a decent remission. You've been through the mill recently you deserve some respite. My neutrophils were 0.6 that last blood test up from 0.4 so like you I've been Neutropenic for a few weeks now. My other bloods are ok now and my platelets gave gone up to the mid 120s. Hopefully my Neuts…[Read more]

Hi Stewart,
I echo what Alex says above….I was 34 when I was diagnosed in 2009. Our children are now 8 and 6, 3 years down the line. But they are who help me to get through those darker moments when your whole world feels upside down. That said, I can only imagine how hard it is to go through those 'exhausted' early days whilst also dealing…[Read more]

Hi Carol
Sorry to hear that MM has reared it's ugly head again. I had 2 cycles of PAD when I had no response to my original treatment CDT. unfortunately for me I had no response to PAD either or any other treatment till I was put on Revlamid, cyclophosphamide and Dex.
PAD for some reason is Bortezomib (Velcade) , Doxorubicin and Dex. Where they…[Read more]

Hi Keith
I hope everything goes well with your BMB tomorrow and Wayne is gentle with you. Hopefully when you get the results you will be able to start to get your bloods back to normal.
I had my latest blood test Friday – everything was ok except my neutrophils which are now down to 0.4! On my rest week now so they're going to make a decision…[Read more]

Hi Helen

Thank you for asking! The Ball was absolutely amazing…..the room was fantastic, the people seemed to really enjoy it and there was a lovely feeling around the place. We think that we raised over £22,000!!!

China was also amazing thank you….I wore a mask on the badly polluted days but generally we were quite lucky! It was a…[Read more]

Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

I hope this finds you all well – lots of love and best wishes.

Take care Love Kerry xxx

Hiya Wink… Thank you for your message.

You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

Hi Megan – Thank you for your message.

It sounds like you have both have it tough too. I'm sorry.

I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

Hi Keith
Sorry to hear your struggling with your bloods. My last blood test showed everything had recovered to acceptable levels except my neutrophils which were 0.6 I will have to see what they are on Fridays test. I'm assuming it's the Revlamid but the consultant is guessing it maybe the cyclophosphamide. It may also be a result of all the…[Read more]

Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

I am so very sorry Sue…

Thinking…[Read more]

Hi Vicki & Colin
Just letting you we're thinking about you. We hope everything goes well and Colin doesn't suffer too badly with side effects and is soon on the road to remission.
All the best
Andy & Steph xx

Hi Vicki & Colin
We hope everything goes to plan tomorrow and that Colin sails through the sct with the minimum of side effects.
All the best and good luck
Andy & Steph xx