Hi Mari.
Great news. Have a fantastic holiday.
Love Andy xx

Hi Mike.
Welcome to the forum. You'll find lots of support and friendly advice here.
Everyones MM journey is different as is their response to treatment and the drugs. Hopefully you'll sail through it to a stem cell transplant.
I was diagnosed at 53 too oct last year – unfortunately my back was quite badly damaged. I'd been on the sick 6…[Read more]

Hi Ian,

I used curcumin when I was smouldering. I used Doctors Best (think with bioperine) and built it up using the protocol Margaret suggested (otherwise you end up on the loo every 5 minutes! Takes some time for your body to get used to it!!!)

Let me know if you can't find the details and I'll take a look for you

x

Hi Dai
Sorry to here your going through a tough time again.
I'm with you on looking ok whilst on the inside we are fighting MM. If I had a pound for everytime I was told I looked well I'd be a rich man. Sometimes when I'm not so well I want to shout 'I may look ok but inside I'm dying' but I don't and just smile. I think everyone is well…[Read more]

Hi everyone.
Thanks for all your good wishes
Here I am a day post radiotherapy with no major side effects as yet. Just a pleasant warming in the small of my back.
Helen I did have a numbness in my left leg and foot but it wasn't too bad – that has gradually reduced since I started on Revlamid – my nurse said the Revlamid sales person said…[Read more]

Hi Jen
It's good to hear your dads kidneys have improved. Sadly fatigue is something us MMers have to but up with – I find if I want to get anything done it has to be done in the morning because by 2pm I'm worn out and only good for reading or watching an old film on tv. You've got to listen to your body and not ignore aches and pains.
Sorry…[Read more]

Hi Dai.
That's good news. Hopefully you'll settle down back to a bit of 'normality' now.

All the best Dai.
Andy

Hi Teresa.
I'm having radiotherapy on my lower spine because there is an active area there that could be causing some back pain. So they want to zap it 😉
I've not got my appointment to see the Prof. yet though it seems his myeloma clinic is on a Tuesday as I've been told by people in the know. Hopefully I'll get an appointment through the…[Read more]

Hi Keith.
I think it's the Revlamid that causes the cramp. I get it also though not to bad. My feet and calves are the main culprits though I did used to get some stomach cramps too. I also suffer fatigue on the second day off dex. The reason I don't think it's dex causing the cramps is I've been on dex at the high level a while now whilst the…[Read more]

Hi Dai.
Sorry to hear you and Janet are not feeling well I hope you both have a speedy recovery.
It's strange how our different hospitals have different guide lines. I am told if I ever feel unwell or if my temperature stays over 37.5 for more the 3 hours or if it exceeds 38 to ring the hospital ASAP or if it's during the week in day unit…[Read more]

Hi Min.
Thanks for the info. I have met Prof Jackson before at a support group meeting and as you say he was very approachable and easy to talk too.
Hi Teresa.
Just posted to you under carers 😉 This will be my second dose of radiotherapy and it's not at the same site. Though it is close to it. I was just thinking about how my back will…[Read more]

Hi Teresa.
We over here would love some of your excess sun. Though I think the temperatures you are having to endure are not good. Apparently there is no immediate end to our damp and soggy weather in sight 🙁
I'm sorry to hear about Peter being in pain I hope they find the right meds to get him pain free ASAP.
I know when my back was…[Read more]

Hi Etta.
I hope everything goes well with your collection and you get enough stem cells with your femoral line.

All the best
Andy x

Hi Liz & Kev
I think all us male MM suffers should follow Tom's advice because he is doing so well. Onwards and upwards eh Tom 😉
Backs are a major problem with MM and its good that Kev is getting a MRI ASAP. I've lost aprrox 3 inches in height due to damage to my spine and by the end of the day I'm struggling to stand upright.
I hope the…[Read more]

Hi Vicki & Colin
I'm glad your hospital visit went well.
I imagine you must be looking forward to the SCT with mixed emotions as you say there will be ups and downs. Hopefully it will pass without any problems and you are soon looking back wondering what all the fuss was about.
Mari I've had my Hickman line fitted for a few months now and…[Read more]

Hi All.
Thanks for all your messages of support and encouragement. After a weekend of contemplation I am now back to my "normal" ? self 😉 I must admit I was a bit down with the outcome of Fridays meeting but I have moved on from there and now know a bit more of the battle ahead. I'm going to maintain a positive attitude because I think we all…[Read more]

Hi Keith & Sue.
My original BMB showed my marrow was packed with MM but my last one showed I had little bone marrow left! In the little holes where it was supposed to reside but around the outside there was MM cells. So even though there was less bad cells I didn't have many good cells. The one question i didnt ask was which was the more…[Read more]

Hi Eve, Mari and Helen.
It was a tough consult but on reflection a good one. There wasn't much about my condition she revealed that we didn't already suspect but it was good? to have our suspicions confirmed. Now we know what we are up against and can channel our energies to the fight. It will be good to have a second opinion and some new input.…[Read more]