Hi Antoinette.
First of all welcome to the forum. None of us want to be here. You'll find lots of support and advice here in your journey and battle against MM. Everyone's journey and treatment is different. It's a very individual disease.
Myself I was diagnosed in October 2011 and I'm or rather my paraproteins are proving to be a challenge to…[Read more]

Oh jean I'm so sorry that the treatment has had to begin, but please please don't see it as he beginning of the end. After all, there are lots of us on here who have started that treatment and who are doing really well. And frank is starting from a really good position too!
I know it's a scary time and things will change now. But we're all here…[Read more]

Good luck Keith!
I really hope that things are good.
All the best
Debs

Hi Teresa
No not in the lake district till the end of next month. I've not been posting but I have been reading. I've been up and down with my moods – I'm blaming the dex effect. I've had my blood tests again today potassium is low again but everything else was ok. Dreading the result of my PP levels and the bone marrow test. It's about time I…[Read more]

Hi Keith.
Hopefully it's just a blip and not a relapse. My last PP reading was 41! I've never been below 36 🙁 I too have the dreaded BMB Tuesday might see you at the day unit. Hopefully we'll both get some good news.

Take care.
Andy

Hiya everyone.
Went for my regular blood test on Friday and everything was ok again – oh except my potassium was low. So I've had to take some extra tablets to boost my potassium – I'm also eating bananas. I finish my second cycle of rev/dex on Saturday and have been given an appointment for my zometa infusion and a bone marrow test next…[Read more]

Hi all,

Penny's sister in law has let me know the following details for Penny's funeral.

Thursday 17th May. At 4.45pm.
It will be held at Emstrey crematorium, London Road, Shrewsbury.
Please donate in lieu of flowers to Myeloma UK, thank you.

Penny, you won't be forgotten xx

Hi Eve and Slim.
I hope everything goes well for you both this week and Sunday is the start of good times for you both. Keep us posted.

Best wishes
Andy x

Hi Dai.
You sound like you went through a similar experience as I did a couple of weeks ago – though my temperature topped out at 38.9 Glad your on the mend now.

Take care
Andy

Hi Vicki.
A warm welcome to the forum. I have MM myself diagnosed October last year. There's not much I can add that hasn't been said already. Just remember everyone's journey through MM is different. Treatments vary some get bad side effects some get very few side effect etc etc. but whichever way the journey takes Colin keep the us informed…[Read more]

Hi Gail.
Welcome to the forum. I was diagnosed with MM October 2011 – 3 days before my wedding so my wife has been a carer since we married. Not a nice start to married life! I think it can be easier for the suffer than the carer at times.
Feel free to ask ANY questions on here come along for a moan a shout a scream! You'll always find an ear…[Read more]

Hi Rosie.
Welcome at last to the forum. I was diagnosed October 2011 so you've been on the MM journey a lot longer than me. I haven't had a sct yet as the medics are struggling to get my paraproteins down. I have been told sct can be quite difficult for some but not having been through it myself I can't offer an opinion on whether going for a…[Read more]

Hi Teresa
My sleep patern is all over the place some nights I sleep right through and others it takes a bit to drift off. I'm back on my dex for the next 4 days so I'll be needing my iPhone fully charged.
On the beer front I prefer the double brewed beers though the triples are good too. My wife Steph enjoys the fruit beers though she's a red…[Read more]

Hi Helen
My hair "style" has been the same for a long time 🙁 My brother and I used to be called Phil and Grant when we went out together! Aka the Mitchell brothers 😉 I can't remember the last time I paid to have my hair styled. I started to lose it in my early 20's. I'll look around for a picture of me with hair. It'll take some uploading as…[Read more]

Hi Teresa.
I'm feeling good now thanks. Just got in from a night out with my wife, brother and sister inlaw. I had a few beers, probably the most I've drunk since I was diagnosed.
I'm not going to comment on hair colour or style since I don't have either lol and that was before chemotherapy took its toll on me.
My wife and I have a few days…[Read more]

Helen, Just wanted to say a massive thank you for all of the bits that you've sent through for the Raffle we're holding. Really kind of you and the items will really help us.

If anyone else wants to donate anything, I'd love to hear from you 🙂 After all, it's all to help raise money for MUK!!

Also, we are desperately looking for a GREAT…[Read more]

Hi Carol.
I'm on DEX time 😉 and also on facebook. So I've spent some time sending out friend requests. I'm on as Andrew Godfrey – same photo I think. So if anyone gets a strange friend request it could be me 😉

Take care all
Andy x