Thanks for the welcomes Jo, Helen and Tom.
I'm sure my road to remission will be bumpy at times but I will be sure to fasten my seat belt.

I'm looking forward to sharing the good times and helping at the bad times.

Best wishes to everyone
Andy x

Thanks for the welcome David.
My journey so far has been a bit bumpy – spent 10 days in hospital till Xmas eve after a fall caused my already damaged back severe pain. At this moment I'm feeling ok and up to the challenge of battling my MM.

Andy

Hi Bridget

Thanks for the prompt welcome.
I hope your back has improved and not causing you much discomfort. I too have lost 3 inches in height. My back pain isn't too bad at the moment – as long as I don't walk or stand longer than 10 mins!
I think my consultant wants my SCT to take place before they start playing around with my back.…[Read more]

Hi Mavis…

Thank you…I will ask for one of those x x

Hi Zoe…

It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.

I hope this finds you all well. Please keep in touch x x x

Thank you Bridget,

I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]

Hi Mavis…Sorry for late reply.

Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

HI Kay,

I am so sorry that you're having to think about all of this so soon after transplant. I feel terrible that I haven't emailed you recently. I hope that your results on Monday went ok …have you been put on Revlimid…I'm on that and so far things are ok (although I may ask to come off it as I seem to get permanently ill….not how most…[Read more]

Hi Nicola,

I'm sorry to hear about your dad being in so much pain and feeling so down about it. But it sounds like you're doing an amazing job in helping him to stay positive.

I haven't been on here much recently as I haven't been too well, and now I am busy….trying to organise my first charity ball!! I'm no expert on it and if you speak…[Read more]

Hi Gary, First off.. Don't be embarrassed!! It is wonderful that you want to help your sister. I am the carer for my husband who is 37 (DX 2004). I wish I could say the magic words to solve the situation but unfortunately… Cancer sucks.. And there is no easy way. Phil had SCT and different chemos over the past 7yrs (including Thalidomide) and…[Read more]

Hi and welcome. I have to agree with the others, the support you will get here is wonderful. I am a carer to my husband Phil. He was DX 2004 at 30. He has done well but the past year MM has been taking a toll. The feelings you have are so normal. You will have good and bad days just like he will. Phil was just admitted into hospital for the 2nd…[Read more]

Thanks everyone. Had a terrible night and morning. My poor 5 & 7 year olds had to get up, dressed and make their own breakfast! They then played until their dad phoned from conference at midday, found out I was ill and came home to look after us all. Thank god we brought them up to be independent and thank god I married nick!! Felt like such a bad…[Read more]

Gina
I am so sorry to hear about your mum – I've been following your posts. I will be thinking of you and your family lots and hope that you have many many lovely memories of her. Cry, be strong… Whatever works for you. And we're all here for you.
Debs xx

Welcome to the forum, sorry it's under this situation. I am 37 and the carer of my husband (also 37). You're levels are very low which actually is a good time to av a SCT. I wasn't with my husband when he had his in 2005 but I do know you will need a lot of support. It is a difficult recovery, in some aspects more emotional. It's the only time he…[Read more]