Hi Dai,

Thank you so much for your very encouraging reply!

David has started his 3rd cycle of Velcade on Friday and had a couple of good days on Dex, we even took a trip to our local B&Q yesterday for some manly shopping. He took great delight in using one of those electric scooters they have in store for people who are not so…[Read more]

Hello everyone,

I'm Christin's mum.

To say the least this has been some roller coaster ride so far. The side effects of the steroids are not very pleasant but we can manage..just need to stay calm! Its the pain that David is in is very concerning and hard to watch someone you love being so uncomfortable! We are having an appointment on…[Read more]

Hi Mari

Please give Steve a HUGE WELL DONE from me, that is such fantastic news to here. Dont think i could have done that and im the fit healthy one. You must be soooooooo proud of him.
with much love michelle x x

Hi Christin

I am so sorry that you have had to join this site, sounds like you have been thrown in at the deepend with all this…….if it is any consolation, my Mum was diagnosed with MM in july 09 at 64, she was in hospital for around 6 months, she went from being a healthy person that was always on the go, to this extremely poorly lady. She…[Read more]

Hi there.

I have been on the same trial and got randomised for the velcade too. I had about 4 cycles and then was stopped as I've had neuropathy since the beginning but it started to get worse and they wanted to stop. BUT, it has had good results and got my pp down from 28 to 8 (possibly less but they forgot to take the reading last tuesday so…[Read more]

Aaahh, you've all made me blub! Angelina, I have a 4 year old and a 6 year old and am about to go in to have a SCT. I know it will be fine, but I have been thinking about doing memory books, scrapbooks and things too…I think they are wonderful ideas….I just wish my hubby was quite as supportive…..it's the one area I wouldn't be able to get…[Read more]

Hi Bridget

as you know mum has tried numerous painkillers, she is quite settled on methadone and oxynorm, good luck and hope you get the pain sorted quickly.
Are you on anything like gabapentin or pregablin? they are for bone pain.
with much love michelle x x

Hi Angelina

I think it is a fantastic idea, my mums specialist nurse suggested that to me when my mum was first diagnosed, to keep for my children, as they are very close to their Nan. I dont think anyone would be upset by this, as you are doing it for your children. good luck.
with much love michelle x x

Hi Jess
I cant help you on this one but would like to wish you good luck with your mum.
with much love michelle x x

Yes Bridget thats the one, but dont think it is spelt like that, but i just cant find the correct spelling lol!!!
I do feel really positive her proteins have only got up to 9, and that the hospital are on the ball, and not letting it go too high and I have so much faith in them.
Another 4 wk before we go again, so that we get another cycle of…[Read more]

Hi Dai

WOW that is fantastic news, I dont get on here much these days, but when i saw your post just had to comment. Well done and I am so pleased for you and Janet. Long may it continue. with much love michelle x x

Hi Bridget

So sorry for your loss, I am sending out lots of hugs and loves

Michelle x x x

Hi Bridget

I think that being nursed at home all depends on whereabouts in the country you live, here in Sheffield we have a fantastic service (which i have to add that I work for!!) We are part funded by Marie Curie and the rest is funded by the nhs (hence my contract is with the Nhs)we are a unique service and cover patients on a 24hr basis…[Read more]

Hi Min,

I often read posts and don't respond, but I really wanted to write to wish Peter AND you, all the luck in the world on the journey you have ahead of you. This MM is just awful in what it does to Peter, and I hope that the plan they have set up, does what it is supposed to and that you guys get a bit of a break at the end of it.

It…[Read more]

Hi.
I'm at the royal Marsden in Surrey and can't fault it. The only thing I would mention is distance. I travel a 90 minute journey to my hosp and it can be tiring. It's not so bad when you're only going once or twice a month but I come in twice a week now. I'm doing ok on the treatment so drive myself and find it manageable but if my side…[Read more]

Great to hear you're feeling better and on the up! I have to say I agree….I can cope so much better when I know what to expect. I wipe out the week off so that I can just chill out now. And then plan a nice meal out and a few drinks at the end of that week when I finally start to feel better 🙂 Red wine of course….oh and g&t to help with the…[Read more]

Hi Dai,

Sorry meant to reply before but have been a bit caught up.

I'm really sorry you're suffering (even if in a macho way!). I'm on velcade too (with dex and cyclophos) and am currently just starting on cycle 4. I've had to have my dose reduced today as I've started to get slight pains (like shin splints) in my calves and more severe…[Read more]

Hi Mike,
Do you know what….it is probably quite good that you aren't caught up with figures….they're the bain of my life…lol!!! But that's great news that your team are all really pleased with the progress.

I wish I got the dex effect sometimes…could do with the energy rush…but then again, I don't get the 'devil' dex effect either so…[Read more]

Hi Dai

That is a lovely message to families and friends that have loved and lost.

with much love michelle x x