Just to add my bit, I've been on the Myeloma XI trial for 6 weeks now. Like people have said, I think different drugs affect different people in totally different ways. I haven't had any major side effects from the revlimid, but have been tired and get quite breathless. I also had the rash for a few days, but found that it calmed down with piriton…[Read more]

Dear Roz,

I am so sorry to hear about Michael. All my best wishes, thoughts and prayers are with you, your daughter and granddaughter at this such difficult time.

Debs x

Hi Roz

I am so sorry to hear your sad news, my thoughts are with you.

love always michelle x x

Hi Bridget

I am so sorry that you have bin ill, but it has proved that being admitted and IV is always the best solution, with regards the Revlimid it is working wonders on mums protein levels, and the itching seems to have settled too. Good luck with the radiotherapy keep us updated.

with loads of love michelle x x x

P.s merry christmas x x

Dear Gaye

Well said, and thank you for being you, and there with your support over and over again.

Wishing you all a very merry Christmas and Happy New Year Onwards and Upwards springs to mind.

with so much love michelle x x x

HI donna

I am so sorry to hear your Dad has passed away, My heart and love goes out to you and your family at this sad time.

with much love michelle x x x

I would definitely write to them and explain to them how disappointed you have been with their attitude etc and let them know that you plan to take it further if they don't do anything about it. Sometimes (and I would hate to say every time) that does the job. Not that you should have to!

Min, they weren't people to be bailed out (partly…[Read more]

Hi Stuart,
Just a thought but could there be a topic for people who have sort of 'survivor' stories? There was someone on the Under 50 thread on the old site for example, who talked about how he'd had MM for 19 years I think it was…..and that's the sort of thing it's great for us all to see now and again…..esp for people who have just been…[Read more]

Hi Debs

No mum doesn't have any trouble sleeping (only on the odd occasion she does) even on dex days she sleeps, she was not herself yesterday when i spoke to her on the phone, but once again she was incredibly tired and finds it difficult just to hold a conversation when she is like that. Other than that very pleasing results with Revlimid,…[Read more]

Hi MIchelle,

Great news about the protein levels! Really pleased to hear that. Revlimid sounds like such a successful drug….my levels 'look' like they're dropping on it too!

Does she struggle sleeping? I know I do, and don't know if it's the revlimid or the other drugs. But I wake every hour most weeks since I started on the revlimid.…[Read more]

thanks guys,i am so proud of her and how she has handled having MM. I think your probably right Tom about the not been so active, we all know the less we do the more tired we are. but if that is the worst thing we have to deal with then thats pretty good.

with much love michelle x x

Oh My Gosh Gill, cant believe that, these banks/pensions etc. need their managers shooting!! I am not surprised you needed to rant after that.

with love michelle x x

Hi Roz

I am so sorry that you are having to go through this, and that we misunderstood what you was saying.

with much love michelle x x

Hi Gaye

I certainly second what Bridget has said, I am proud of her for you, well done Eunice, She sounds a wonderful young girl.

Oh and how fab what a lovely surprise from the taxman just in time for Christmas.

Good luck with your treatment.

with much love michelle x x

Oh Roz,
I am so sorry. Like Michelle, it made me very sad as I have followed your journey on this site and feel like you guys have been through so much…it doesn't seem fair.

I hope that they are able to give you some reassurances on Monday and that it doesn't go the way you are imagining.

With lots of love
Debs x

Hi Kay,
Sorry to hear that you've joined all of us on here, but happy that you found us as it's a great site and you'll get loads of support.

I am 36 and was diagnosed, like you, by a random blood test, in July 09. Also like you, my hb kept dropping low while my paraprotein kept rising. Over the summer, the topic of treatment started to…[Read more]

Hi Kay

Hello and welcome to this site, not one that anyone wants to join tho!! My Mum has MM diagnosed july 09, She is not able to have SCT so can not help you with that one, but wanted to wish you luck and hope all goes well, keep us updated with your progress.

with love michelle x x

Hi vic

I am sorry to hear the problems that you are having and your Dad is not well, just wanted to say that we had similar problem with my Mum last year, all bloods ok etc, no infection found, but was hallucinating,she also went unresponsive, was so frightening, they did start her on broad spectrum antibiotics, and then later found that she…[Read more]

Hi Roz

I was so sad when I read your post, and I am so sorry that Michael is so poorly. I hope that you get some glimmer of hope at the meeting.

with much love michelle x x x