Hi Scotty!!

You're looking like you're in a very bad mood….so black!

Give me a shout if you want any help.
Debsx

Thanx Guys, Mum is really on the up she looking so much better, she stops her IV antibiotics today,waiting for prof to do his ward rounds today to find out when he is going to let her home!! will keep you posted.

with love michelle x x

Hi Min

My Mum has suffered with breathlessness the whole time she was on velcade, keep your eye on it and if you are not happy talk to the medical team about it. Mums was worse during the weeks she had the injection and got better on the 10 day break.

with love michelle x x

Hi Kevin

Glad you are out and feeling better, yes take it easy now!!

Well suppose it cant all be bad if you lost 6 kilos lol 😉

and stay optimistic, bet way to be eh.

take care, love michelle x x

Hi Nicki

Glad you have managed to join us on the new site, yep its great to put faces to names, totally agree with you there.

I dont know much about Sct as my mum cant have one, but good look and I hope Sam starts to feel better soon, and you make sure you take care of yourself too. We always forget about ourselves. Keep us posted on his…[Read more]

Hi John

Nice to meet you

with love michelle x

Hi All

Update on Mum, she is doing well on antibiotics, but will be on Iv until Monday, and she will be re assessed then, However, she has told them if she is still in nxt wk end that she WILL be going out for the afternoon to see Disney on ice (thats me mum lol 😀 ) on the negative side 🙁 , her myeloma has started to really progress again,…[Read more]

Hi there.
It is so hard isn't it to know whether you're getting the right treatment or not. I have been asymptomatic until recently and was worried in the same way as my paraprotein went up over 6 months or so from 32 to 45 which seemed high in comparison to lots of other people. Like Mike, I had no other end organ damage/ bone pain etc.

What…[Read more]

Hi Mum was started again on some more IV as she started being really poorly again yday, after 24 hrs back on them she is doing rather well, still very very tired, and got a terrible cough, but doctors pleased with her, she is very determined to be out by next wk as Mum and Me are going to see Disney on ice a wk on saturday and she is really…[Read more]

Am slightly worried that I spotted this one straightaway Gaye….what does that say about me???!!!

Thank you to one and all!
Gaye, please don't ever apologise about giving advice on the under 50 title….I wasn't really sure where to post this one, and to be honest age is irrelevant isn't it. Not always, but definitely on the treatment side!!!

It is good to hear about the fact that a number of people didn't get side effects.

We told the…[Read more]

If possible, I think it would be good to see the latest posts without having to go into each category. Otherwise someone might not look at the treatment section who is Under 50 and visa versa. It becomes a bit of a hassle having to go into each one to see if there are any relevant posts.

Do you know when you will transfer the old posts over?…[Read more]

Hi Debs

At least something is now being done, your life seems to have been hanging in the balance for a long time now.

Good luck with it all, and to be honest My mum doesn't seem to have much trouble at all while she is on dex, not sure why when I read what everyone else goes through lol, Most people get on relatively well with CDT think the…[Read more]

Hi Roz

If you are not happy go through PALS, and make a complaint, thats what they are there for, I had to complain last yr about the same hospital and it was dealt with really well, that is the only way that these problems can be stopped. I am so sorry that you are having problems though, love to you both

with love michelle x x

Hi Michelle
Sorry to hear that your mum hasn't been well and is back in…..at least she's in hospital now and I hope that they get on top of everything pretty fast.
All the best
Debs

Hi all

Do you know i can always count on you lot for some support, she is a little better today, it is day 3 of antibiotics tho, they going to do some tests? while she is in to see how the myeloma is progressing as her proteins are creeping up, and hopefully get her on revlimid as soon as possible.

once again thank you

with love michelle x x

Hi everyone,
Well I promised a summary and I'm not sure that I'm going to do very well so sorry up front!!
It was a great day, really well organised and I found it really useful for all those personal reasons you can't really put into writing. It was hard listening to people talk about side effects etc given that I'm probably quite close to…[Read more]

I'll try to take notes Gaye and give a summary of anything interesting that comes up….bit harder for me as I don't quite understand all of the treatment stuff yet, but I'll do my best!!