[tomParticipant]

Hi Liz and Kev
Its a bugger this ins thing but am sure their is loads on here that use it but for me I only go on normal ins to be honest but i dont go far, I am not saying others should but I only go when am fine, had a great time for the last week and I hope i can get another couple in this year.

And Harmony the moment has been seized with both hands.

Love Tom Onwards and upwards x

[tomParticipant]

Hi Dave
And thanks am sure we will.
That sun on the back of my fat neck is gonna be real good.

Tom onwards and upwards x

[tomParticipant]

Hi Izzie
Well what can I say ??

I had my SCT in December 2009 and up until 2013 was in remission and drug free, so the first transplant gave me a long and drug free four years and for that am pleased.
But did I have off days ?? Yes I was weepy and yes my head was low, lower than I wanted it to be.
How did I do I cope ??? Well I fight the myeloma head on and tell it (yes I talk to my myeloma, told you I was strange ha ha ) to get back in the well I built for it on my shoulder and slap my shoulder when it kicks off oh and not forgetting the counselling I had honest it worked a treat just after my SCT.

Good luck on your road to remission I gave just hit a bumpy bit but am sure I will get through this second lot of treatment.

Love Tom onwards and upwards xxx

[tomParticipant]

Hi Michele
Dont worry about it being in “Stereo” as i can only hear from one ear ha ha.

Thank you and we will, you do right working your holls that way its best you can book well in advance enjoy.

Love Tom Onwards and Upwards x

[tomParticipant]

Morning San
Am sure you know Fun is my Middle name so am sure its gonna be great Thanks.
I just need you all to behave while am away,I know most of you will but am sue we have some nawty ones that will misbehave while am away ha ha.

Catcha soon

Love Tom Onwards and Upwards xxx

[tomParticipant]

It’s not a problem Chris and am sure it will work out well and I wish you luck I. Your decision whatever it is.

As for the myeloma we knew it would come back it’s just a when and how, am blessed with having no bone damage (that we know of) so that’s a blessing and as always it’s onwards and upwards.

Love Tom xx

[tomParticipant]

Hi Dick and Carol

Well it was few weeks I was offline packing moving then unpacking, hated not getting on here as I missed you all 🙂

The young bride and I can’t wait as we are really ready for it bit of sun on me bald head will do us both the worked of good and get us ready for the next run of drugs.

Take care and stay well you all.

Tom onwards and upwards xxx

[tomParticipant]

Hi Carol

Hey a well done you and your stem cells that’s the best I have heard of 😉
I collected enough for two in 3/4 hours but they put them in three bags so they gave me them all back so have none in reserve :-/ .

Am sure whatever you wear they will ask q good luck and hope your cells are not in the freezer for long.

Love Tom onwards and upwards xxxx

[tomParticipant]

Hi Chris

Well done on the remission am pleased for you.
As for the Maintanance regime I was never asked if I wanted to go on it so am not sure what I would have done to be fair.

But I gad my SCT in December 2009 and I gave had four years remission drug free which was great for us all sorry to say the myeloma has become active again, but four years drug free was good, if and when I get offered a SCT again then onto maint regime I think I would turn it down but that’s just me, am sorry to say you will need to come to that decision on your own. That said I am a big believer that it’s no point looking back and saying what if??? The decision made at the time is the correct one at that time.

Good luck
Love Tom onwards and upwards xx

[tomParticipant]

HI Jean and Frank

Sorry for delay but am now back on line 🙂
Also sorry to hear Frank is not well, I hopw he is soon sorted out and back to “Fine Fettle”
Love Tom onwards and upwards xx

[tomParticipant]

Hi everyone
Sorry I have not been on for some time but I have been busy packing and moving home, nw settled in a nice two bed bungalow, renting it and have shoved the money from the sale of our old house in the bank, now no money worries ha ha.

Yes am sad I only got four years but happy that I have another treatment to move onto, Elaine (the young bride} and I knew it would come back and to be fair knew it was back before I got results as I had lost a bit of weight (yep belly nearly gone he he).

I have BMB to be done on the th December then wait for results so today or tomorrow we will be going on line and booking a weeks break in the sun prior to the start of treatment.

Thanks for your best wishes and finger and toe crossing am sure it helps.
Love to you all

Tom Onwards and upwards xx

[tomParticipant]

Morning Carol

Well as I recall it the more pain the better mine lasted three days, as for childbirth lol I know nothing he he.

I got enough stems out in one day took three or four hours

Good luck with yours.

Love Tom onwards and upwards xx

[tomParticipant]

Hi Andy and of course the family and extended family of Our Dai.

Yes I spent a lot of Today thinking about Our Dai and the strength,wisdom and knowledge he passed onto to us all even when he wasn’t so well himself.

That and all you others that helped and are still helping is a great strength to us going through our treatment.

Our Dai will be up their watching over us all.

RIP my friend. Xx

[tomParticipant]

Hi Angela
Well you ought to tell my young bride to listen to cos she dunt ha ha.
Well am sure you have seen my post telling you I am going back on treatment, but I have had a great four years and am well rested for the next road to remission am just taking a bit of a detour

[tomParticipant]

Hi Eve:: well am sure he said pet scan?? but we will see lol, yes i know it should give me another two ish years and am happy with that as we never know what will come next (that cure sounds good though) I have a good sprint on Eve dont worry about that and when it gets too close I will turn round and hit it head on and trust me the Myeloma aint gonna be Happy he he. xx

Sarah and the Young Boy 🙂 , tell Henry not to be sad I aren’t so I would prefer Henry to be bright and breezy as that will help both him and I to get through this next hurdle, Vodka at the ready xx

Helen:: am pleased your PN is getting better and hope your nmot too long before you are back to Dancing 🙂 as you say its got to be Onwards and Upwards xxx

Andy :: Yes I think I know but am sure i wont lol, everyone is different with treatment I will take it as it comes, am going to move faster so its just my heels it nips at lol.
Onwards and Upwards xx

Ps you lot I hope I dont run out of ink with all this posting Lol xxx

[Author]

Posts