Now Mavis look what you have gone and done? I leave you for a few days and you go and throw yourself in the Hospital :-0.
But seriously I am so sory to hear that you have done a decline, but trust me Girl you are one that will throw that rope up high and drag yourself back up to top form (well mm top form) again.
You are in the correct place and they will soon sort you out, as for your dongle well I have trouble with my dongle all the time Lol.
Good luck and I wish you a speedy recovery
Love and Hugs
Tom "Onwards and Upwards" xxxxx
Hi Terry
I also have been sat at a window when the sun has been throwing itself and its heat straight at me an had a "Snugglr Blanket" "other brands are aslo available lol) wrapped around me. yes i have (and still do) used a thermal vest in cold days (works a treat) as i cant see any point of feeling cold when you can buy borrow or nick( please dont do the latter lol) things that can keep you warm.
As for the Tax credits and claiming what you can? are you not eligable to get some one from the DHS to come to your home and fill the forms in due to you sight problem?? am sure it worth a try.
Am sorry you had some (not all) that turned a deaf ear to your cheery coments but am sure with having a word with the hospital it might just might alter it for another patient that was blind.
Take Care and dont dare take your "Moan" anywhere else Lol
Stay Strong
Tom "Onwards and Upwards"
Jean
I am so pleased that the day went well and the service was what Derick would have wanted.
Take Care and am sending (((Hugs))))
Love and Hugs
Tom xxx
Hi Ian
Well done M8 am pleased that all is going well for you 🙂 and am sure the side effects will get better as time moves on.
I never (touching wood) never suffered with GVHD? and if i did then I didn't know about it 🙂 you do right keeping fit and away from the hospital, Long may it continue 🙂
Thanks for the Good News Ian it's great to hear how good our online Friends are doing 🙂
Tom "Onwards and Upwards
Hi Janet
Its a Bugger but I have had a cough and (forgive me) a lot of flem (uck) since i found out I had MM :-/ so it might be one of the symptom's when I think about it? anyways with my cough Elaine (the young bride) knows where I am in the shop lol.
Hope your soon better
Love and cough treatment
Tom "Onwards and Upwards" xxx
Hi Dai
Janet sounds a very lovely Lady and that am not surprised nor shocked as am sure you are a true gentelman and would only marry a Lovely Lady 😀
We know how you and Janet feel about Kids (gran or own) and you know how Elaine (the young bride) and I feel about ours what with all the photo's i have posted on F/B 😀
Our three sons only live about 30 mins walk away from us so we see the kids very often and I nick em on a friday and take them home on a sunday Lol, am sure its as good for us so we give our Son's and their Partners a free week end to do what they like, we are due our Sixth Grandchild very soon so keep your eye out for more photo's 😎 so our eldest is 9 years old and youngest at the moment is 13 months old 🙂
As for my Passing Dai well I tell every one that they will more than likely go before I 😀 as i am in this for the long haul 😎 and that frame of mind works for iccle ole me 🙂
Keep strong and check out how much a "Camper Van" will cost to hire 😎
Tom "Onwards and Upwards"
Hi Kirsty
Like the others a warm welcome to this great site?
Sorry you had to join us but as away now you have opened the doors 🙂
As for your first one the advice i can give so far is take it slowly and one day at a time, lots of members here going and gone through what you are about to do.
I cant advice YOU what to do but I can tell you what I did and that was to fight it and get my Dr to throw whtever at it as I (my words not the wifes lol) am young amd fit enough to fight it 🙂
That was my take on it in Jan 2009 and am now sat here in remission and on no treatment at all 😎
Ask what you want to know Kirsty, no Q is too daft or silly so ask away.
Good Luck in your road to Remission.
Love
Tom "Onwards and Upwards" xxx
ps what hospital are you under as you might get to know some one else that has been and had the treatment in same hospitall 🙂
Lol Dai as am sure you know I am (or was) a hairy ass docker so am now up to speed on that Lol.
And same goes for you Dai if you feel with the help of your brother that you could do the trip then I for one (and you for two) would say go on lad get on with it, you will enjoy it, it might be better to hire a Cmper van as you could stop and sleep where you wanted to (as long as its legal lol) I can just pitcture you four on the road in the "Camper" Van you playing guitar and all singing round a camp fire on the spanish border lol.
Good Luck to whatever you all choose and am sure you will all love it 🙂
Love
Tom "Onwards and Upwards xx
Ditto to that Dai, and it looks like she is very active and keeping herslf busy.
Well A well done you lot, and a well deserved trip to france I must say 🙂
Now I can uncross my fingers Have a great time and just give us a little thought when you are away 😎
Love and Hugs
Tom "Onwards and Upwards" xxxx
Ps Am not sure what Dai Means??:-P
Well Eve you certainly aint any of the above 😀
As I said in Last post I had mine all done prior to SCT some at the start of treatment some nearer my SCT , but am not sure anyone can say whats Normal with our Consultants (as good as the are) they all work in a different way.
Good Luck and hope you and Slim dont have anymore Hiccups
Love
Tom "Onwards and Upwards" xxx
A Well done that Dai and his new Friends. Its looking good dai and am sure your (The next comment will be copied and pasted :-0 ) Red Blood Cells (HGB) have dropped a full point from 10.7 to 9.8 and my Neutros are down a bit from 4.0 to 2.6 since my interim bloods a fortnight ago but my White Blood Cells (WBC's) at 5.0 and my Platelets at 147 are good (Paste over) I dont know what the afformentiond scores are 🙁 but am sure its a good result 😎
Am sure that man and his drugs (I can see a tv show here? ) will go a long way.
Keep on getting fit and stay strong 😎
Tom "Onwards and Upwards"
Dear Jean
I am so sorry to read about your Brother has been taken.
May I send you and His Family and Friends My Condolences and Prayers.
Love and Hugs to you all at this Sad Time.
Tom xxx
Hi Terry
Well they wanted rid of you or your counts shot up 13 days thats great going (I was 16) now then as for feeling crap, I still feel like that some days.
As for the feeling cold? since my SCT I have felt the cold more than ever before and I had mine done in 2009 :-/ I was always one to be out and about in a T Shirt but now av got a big jumper on and some times I wear a thermal vest under my jumper and am only 56 lol.
I was feeling crap for about 10/12 weeks:-/ but after that time I woke up knowing some thing was wrong and it was because I felt 100% better 😀 and have never looked back since 😎
Good Luck in your getting better before you get fit regime:-D
Tom "Onwards and Upwrds"
Hi Gill and Stephen
Like the ones afore me and the ones behind me I also cross fingers and anything els that can be.
Am sure you are correct it will be "Bugger" all (check spelling?)
Now here we are on the "Man" Thing he he Honest I dont know what to say apart from yep Ladie's you are correct we are Buffoons, Neanderthals the lot why?? I honestly dont know? :-/
Now we get to Stephen's heart in france and the language is lost on him well let me tell you all I am lost with the English language Lol, so worry not Stephen.
Hope all runs smooth for you both and get to France it looks a great Place.
Love
Tom"Onwards and Upwards" xxx