[tomParticipant]

Hi Chris

Pleased you are doing good (well as good as we can be) The blue badge is a godsend saves you money and park nearer to where you need to be (cept in Scunthope General Hospital).

I tried to get something from the State and all I got was £63 per week and when I went back to work after a few months I got told by tax man I owed them money:-S and that added up to what sickness beafit I got :-/ dont know why they gave me it?

And as for the wedding dont forget to post Photo's

Stay fit and stay strong

Tom "Onwards and Upwards"

[tomParticipant]

Hi Dai

The frozen shoulder being a new area of MM can you throw more light on that for me please as I have discomfort rather than pain in my right shoulder (lol i hade to check which side it was on L/R lol)

I hope you dont suffer too much on the early days of your treatment.

I dont kow if you buy water I used to as our water aint that good, so when we did a new Kitchen I had a filter put on the tap and you pull the bar forward for normal cold and push it back for filtered and I can tell the difference

All the best

Tom "Onwards and Upwards"

[tomParticipant]

Hi Sue

Yes am sure it is all down to the cost :'-( and that makes me angry.

Good Luck for the bloods next week

Tom xxx

[tomParticipant]

Hi Terry

Re work ::::: I had my diagnosise in Jan 2009 was working still, I work on an Inland Dock loading and unloading Ships/Lorry's which is hard physical work and the treatment I had was CDT.
I had 3 cycles of that and was too tired to carry on working so went on sick may 2009 I had a total of 5 cycles of CDT and my stem cell transplant In December 2009, After getting the all clear I went back to work in May 2010 ( a total of 1 year on sick) and the work they gave me is light dutie's and at the moment I am still on it.

Could I go back to my old job well the answer is a big NO I also love the job and the people I work with but also feel that the work (and it is light work) is or might be too much and I am a young 56 years of age too ear;y to retire and too skint to leave work :-S so I get up and go untill I am told "Am sorry but we have to let you go" will I be sad as and if that happens :-/ well half of me will be.

Good Luck with your treatment and hope you can work through it.

Tom "Onwards and Upwards" x

[tomParticipant]

Hi Sue

Am so sorry to read that Michael is not able to fit the criteria to help him? how bad do we have to be to fit the bloody criteria :-S because for all intent an purpose we are all dying this Bloomim MM is at the moment a Terminal Illness so we should fit the criteria or am I just too thick to understand it all:-S

I dont know what would/could be the next step, might be that the Nurse on here might be able to advice us all on what could be the next step to force the Dr's and drug company's to hel us try and stay alive, I know this is a bit harsh but its bloody true like Eve I could be next and it makes me so bloody angry they could throw into my system anything even if the UK say its "Not been tested" bugger that if we have no choice but to use something that has not been tested for x amount of years what do we have to lose for gods sake:-S

(rant over and hope the above has not offended anyone)

Love and Hugs to you Both

Love Tom xxxxx

[tomParticipant]

Hi All

Well I love the Irish they are great people but I cant stand that black stuff they Make 🙁 but that said it might be better in dublin? who knows I just might try a trip to dublin and try a half?, hope you all are enjoying your 3 ltr of fluid ? lord knows how much vodka I had last nit lol

Love Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Joe

I am sory to read about the sad loss of your Dad, I send my condolances to you and your family.

Stay Strong and know that your Dad is no longer in pain, remeber the good times and put the bad days to the back of your mind.

Keep in touch and hope all goes well for the funeral.

Regards Tom x

[tomParticipant]

And a lovely Photo it is 🙂

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Tina

Yes it is hard to do but i was told 3 ltr a day :-0 and that can include tea, coffee and or fruit juice I myself have also added to that list "Vodka,red wine and of course beer" ha ha.

Good Luck and Happy Drinking 😎

Love Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Amelie

There is alays a chance for a long remission with the 2 SCT yes I know that some dont last that long but we all differ in the way that the treatment works, I honestley cant answer the reason why some work and some dont :-S Lord I wish I could.

Please take care and I wish with all my heart that John has a long and trouble free 2nd transplant.

Love and Hugs Tom xxxx

[tomParticipant]

Hi Amelie

Sorry to read that his SCT only lasted for a short time, and hope that his 2nd one gives him far far longer, please give him my regards

Tom "Onwards and Upwards" xx

[tomParticipant]

And a warm welcome from Me Terry.

I just wanted to wish you a good journey with your MM and am sure you can keep us all up to date with new treatment .

Keep strong

Tom "Onwards and Upwards"

[tomParticipant]

Aww Bridget

I have read and re-read your last post I have sat her thinking what I can say, and the only thing that keeps popping into my head is (and forgive me ladies and gents) "Bastard MM", sorry bout the cuss word on your post Bridget :-S

But I am with the rest that have already posted and those that will follow my post is to say You are an inspiration to us all, with your strenth and determination to beat this cussed MM.

And Like most I think that if you have come to the end of "Allowed" treatment then why not let you use the "Not Allowed by NICE" stuff as am sure you have the strenth and posativity to go for it.

Bridget I just wish I lived near you so I could just put my arms around you and give you a great big hug.

I have re read your post and also re read mine and decided the Cuss word stays in as thats the way I feel, Love and you kn ow loads of hugs

Tom (((((hugs)))) xxxxx

[tomParticipant]

Hi Roz

Did I Post a photo of my breakie? I cant find it on Facebook??
Am doing great Roz and I hope your doing Ok also

Love Tom xxx

[tomParticipant]

Hi Gem

First My condolances for the sad loss of your Dad and next Many thanks for your offer and support for all of us who have or care for those MM sufferers.

Love Tom "Onwards and Upwards" xx

[Author]

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