[tomParticipant]

Hi Stuart and all

Am not sure if it would help to coppy some of the posts and send them to the Police fraud Squad ?? am sure its not legal to be offering these to the open market?? Just a thought from iccle ole me.

Tom Onwards and Upwards

[tomParticipant]

Hi michelle

Just nipped in to see how your Mom and you are doing ? Hope all is well with your Mum.

Tom Onwards and Upwards x

[tomParticipant]

Hi Jean and Frank

As for the maintenance treatment I was never offered nor had any, I started off in 2009 (Feb i think) on CTD had 5 cycles of that then went in to have stem cells removed and stored then had SCT in December 2009, then went on to Zometa just for two years only.

As you know I am in remission and drug free, Going back to the BMB I have had a total of three (3) one pre diagnosis 2nd one post CTD and the last one was 100 day post SCT.

Do I ache yep sure do but not enough to take painkillers, do I get tired/weary yes i do and my young bride (elaine) knows before I do/admit it he he, do I get out of breath Yes i do try getting me to run or walk up stairs twice in a row and am beggered trust me lol.

all the above bad bits I and my consultant put down to just getting older as we have no sign of the MM in my system, I think because we have MM we/I think every ache every extra puffing we put down to MM ? and that's Good because it shows we are on our toes and keeping an eye out for it.

Keep your eyes open at all times as its a sneaky wee bugger this MM, but most of all go out and enjoy what and when you can, as for me I dont make plans I dont buy tickets in case am too tired to go but when I am OK (and I am most of the time) I let it rock 😎 (in a myeloma sort of way lol) Jean I have to tell you Gin was Vodka before they changed it to Gin, so if Gin is made from Vodka Frank is a Vodka man 😎

Stay well and strong

Love Tom Onwards and Upwards xx

[tomParticipant]

Hi Mandy

Yes I have pain at nite that has woke me up and later in the day 🙁
But had all test and have been told its Old age (and am only 58 ha ha) mine is neck,shoulder lower back and hips most of the time its no problem but now cold weather is near I suffer more but still take no drugs for it as I say its not that bad most of the time

Stay Well
Love Tom Onwards and Upwards xx

[tomParticipant]

Hi Maureen and Ian

Am pleased he will be home soon and that the infection is being treated at home (cant beat your own stuff)
Bugger about the travel and the extra expense you have to endure.

Stay well Girl

Love Tom Onwards and Upwards x

[tomParticipant]

Hi Maureen and ian

Am well chuffed for the both of you that it went well, now lets get you back home Ian and start to plan Xmas.

Tom Onwards and Upwards x

[tomParticipant]

John
I am pleased you feel strong enough to stay on board I hope it gives you more strength in helping others here on this forum,I would like to take this opportunity to thank you for your strength.

Tom x

[tomParticipant]

Hi Clare and Mum

Well I had my SCT in December 2009, did I get remission yes I did, were my levels real low straight after I don't recall I think it took a little while ?? But to be honest I don't bother about the marks ?? As long as my Consultant is smiling am happy, it just saves me thinking about it all the time.

Good luck and I would say if Dr is happy then you all should relax and have fun.

Love Tom onwards and upwards x

[tomParticipant]

Hi Michelle and Mum

That's true it is a roller coaster of a ride for you all.
Why has your Mum opted for no treatment ? You say Mum is in her 60's we have folk on here that are going through treatment .

I wish you and Mum a good trip on the Mm road.

Love Tom onwards and upwards x

[tomParticipant]

Your Both more than welcome Jo and Keith, just make sure that smile you think you seen wasn't just wind lol.
and it would be great to have our very own GP on board (tell him this and see him smile again 🙂 )and I for one look forward to him joining us soon.

Love Tom Onwards and upwards xx

[tomParticipant]

Hi Jan and Mike

You take no notice of Eve am sure its more than the Vodka that has helped me (but dont tell the young bride lol) the Vodka is good for me and am sure its my headset that helps also as am sure we can talk and think ourselfs better as well as our Meds doing their bit too.

and this site/forum is the place to rant rave cry and laugh throughout the road to remission its up hill and down dale as am sure you are finding that out seems one forward and two back at time but it is a doable am pleased to say.

Stay well and dont forget to leave time for yourself to rest/pamper time

Love Tom Onwards and Upwards x

[tomParticipant]

Dear Sarah

I am so sorry your Mum lost her battle with Myeloma, you have my condolence to you and your Mums family and friends.

No time is a good time to lose a loved one as those that are left have to face up to the "First Time Without"

Stay as strong as your Mum was through out all the treatment and more so as it came to the end and you will all get through it.

Love and Hugs Tom xx

[tomParticipant]

Morning Jan and Mike

Sorry you have to join us but a warm welcome none the less.

as Eve says no one can tell how long we will live with this darn MM, Eve is the posh one with a Double side control on an "Electric" Blanket as for me well I know about cold since my SCT and I have down the side of my chair a snuggle blanket and in bed No electric blanket for me I get a single duvet thrown on top and am as warm as toast.

Good Luck to you both on the road to remission

Tom Onwards and Upwards x

[tomParticipant]

Hi Jo and also Keith

Well if you wanted some positively well here I am a young 58 and in remission and drug free, Had my SCT in 2009 and fought the beast all the way, will he come back and bite me ?? too true he will but am I ready for it too true on that one also, I aint going nowhere till I see my youngest Grandchild Married 😎 and the youngest one is 18 months old he he.

Stick with it and as folk say its good to know what beast you are fighting and you all (being Medical) should be on top of it all the time.

Stick with it Keith you have it make the most of what you have and dont ever give up that Fight.

Tom Onwards and Upwards x

[tomParticipant]

Aww John

I am so sorry to hear that June has lost her Battle with Myeloma and I send my condolences to you and June's family and friends.

I know nothing and I mean nothing can help you at this awful time but I have to say Just think of the good times Pre MM and am sure you both had family and friends that helped you have fun pre MM.

Big Hugs John

Tom

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