[tomParticipant]

Hi Jo

I must say I am not that good?? we are having a new Kitchen but am having a great deal of help from Craig (our next door neighbor)

Good to hear you and Geoff (ur old husband? ur words not mine ha ha) go for your daily walk and I tell you three miles is a bloody good walk (unless a pint is at the end of it he he )

And its great to hear you are doing Good 🙂 keep that up and lets thrash this MM to a long delay 🙂

Love and Many Hugs

Tom ((((((((())))))))))) xxxx

[tomParticipant]

Hi Carol
Yep My Boys nay men all over 25and kids of their own Lol, have taken most of my tools and my "Fishing gear" saying "you dont need to cut the hedges we will do it, you dont want to go fishing and carry all this gear?" and as it happens I dont 🙁 whan hedge needs cuting My wee Cragie (ok he is over 6 foot tall) nips round and cuts it (before I need to ask) eldest one Lee he sorts all the high level stuff out and the technical stuff and close cutting Middle son Jamie (just like his dad :-)) he sorts out the fences and anything wooden lol.

So as you can see I am same as you re my kids wont let me do what I used to do???

You and I are the same age 56 (july) I also am of the thought "Use it or Lose it" and I have told my young bride the same? (but thats for another thread ha ha)

So Like all of us on here I/we wont give up giving it a go 🙂 cos we are all "Onwards and Upwards" people

Love and Hugs
Tom (((((()))))) xxxx

[tomParticipant]

Hi Jo

Yep my little legs are doing ten to the dozen when I go out on bike, and yep My Young Bride and I are doing great, just starting to put a Kitchen in at home 😎 half the old one ripped out, and three wall units put up tonight 😀 Young bride now filling them up with?? it will take me ages to find things ha ha.

How are you doing then Jo 😀 Ok I hope:-P mind you dont burn with this Hot weather we are having at the moment8-)

Love and hugs

Tom xxxxx

[tomParticipant]

Hi Carol B

I am about 18 months post sct and is my energy levels pre transplant? No they aren't but they are pretty good, not sure if I could go back to my old job (physical work)but just bought a bike to try and lift my levels up (never give up) so will let you know but only been on it three times as yet:-D

Hope you still do well

Love

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Ozzy

Well I also went back to work Light duties after 6 months post stem cell transplant, yep i was tired but no probs with the legs, but have to admit I still get tired but am sure I will have to cope with it 🙂

I would see the Dr re your discomfort and am sure some one else will pop in and might have an answr for you

Good Luck

Tom "Onwards and Upwards£

[tomParticipant]

Hi Ivan
Sorry am late in replying but a warm welcome to this great band of folk, but sorry you had to join 🙁

Good Luck on your treatment I also (in feb 2009) started my treatment CDT and that was starting with about 50 pills a day 🙁 but i done it with the stem cell harvest and the stem cell transplan in december 2009 and her I am back at work (still light duties though) doing 40 hours a week 🙂 put my weight back on (with a vengance lol)

My Advice will be the same as others rest and sleep when your body tells you, dont fight it with the Gosh I need to get the garden done honest that will wait 🙂 and one day at a time.

Good Luck

Tom "Onwards and Upwards" 🙂

[tomParticipant]

Hi Pam

Am sorry your Dad is having problems and might have MM.

Your Dad will be treated for his illness whith his other ailments in mind, bearing in mind your Dads Pain there is loads of pain relief that can be given to help its just finding the one that works best with little side effects.

Love and Hugs sent to you all.

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Gillian aka Gill C 😀

Good Luck with it all and you seem to be doing ok with it as for the sickness I was on antisickness tabs for months after my SCT, and the bowels am pleased its a distant memory 😎 yep Control never in your life I dare not go far from a loo after anything to eat or drink as it didn't stop long, Lord knows how I got some benafite from what I ate and kept in:-/ so Gill C am sure you and I are not alone with that one 😎 ((better if your in Good Company 😀 ) you can get Tabs to help with the bowels but they will need to do a sample to make sure its not an infection.

Good Luck with it all and not forgetting dont rush and try and do too much 🙂

Love
Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Helen

Pleased you are finding the info Good for you all:-D and its great to hear about others that are raising money for the dreaded MM:-(

As for the Stem Cell transplant:: oh what can I say?? well to be honest I feel that is has been well worth the off days that I had during my "Recovery" and to be fair it was (cept the growth injection's)Pain free8-)

Yes its not a walk in the park but no pain just a feeling of wanting to be sick (but i never was?) but I was given anti sicknes pills, none of us go through the treatment and run the same way, but to you and your Mum it is well worth it 8-).

I hope they (and they will) get your Mum's pain under control and make the days better.

And as for a Sunday you can come on here anyday any time and ask anything evn just to have a Rant and a moan (trust me its good for you) so dont you worry.
Good Luck for Wed but dont forget never wait for a date to see a Dr if your Mum is not right, am sure you were given contact Numbers??

Love
Tom "Onwards and Upwards" xx

[tomParticipant]

Hi All

Just to let you know I only eat Cucumbers in our Cyber greenhouse, I cant stand the things ha ha.

But the Red wine now thats another story oh and the Vodka I was given a bottle of Vodka with lime, just tasting it tonight and its very nice and refreshing (and i aint in my Cyber greenhouse)

Hope you all have a great Week End 😀

My Young Bride (elaine) and I will be looking after two/three or four grandkids on sat nite8-) cant wait he he.

Tom "Onwards and Upwards" xxxx

[tomParticipant]

Hi christin

Looks like your Dad's team are doing a great Job for your Dad 🙂 as for your Dad not being able to concentrate I was same after some of my first lot of treatment and when i told my Nurse that "The Brain's Gone" she laughed and told me I had Chemo Brain see this Link :::::
http://cancerhelp.cancerresearchuk.org/about-cancer/cancer-questions/chemo-brain

And tell your Dads its great to use gets me away with loads that I have forgot to do he he. and also tell Dad that it Comes Back so no long term using the "Sorry but av got chemo brain" Lol.

All the Best to you and Dad

Love
To "Onwards and Upwards" xxx

[tomParticipant]

Hi Sarah and Mum

Sorry you had to join but am pleased you found us, we have great people on here that can and will help you and your Mum through all this MM stuff, sorry am not in sam area, am in Scunthorpe North Lincs.

Good Luck with your Mum's treatment and I hope all goes well.

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Eve and Jo

Well the Cucumbers are allegedly good for Cancer sufferers, and a few of us here have sat in a "Cyber" greenhouse drinking Red wine and eating cucumbers8-) Hope that clears that one up and you now know am normal (yep normal even in a Cyber greenhouse ha ha)

Love from One cucumered

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Peggy

A warm welcome to our ever growing band of MM'ers

Yep I was same but I didn't put them both together for some months after I started treatment.

Am sure you will get the help you need as and when for you and your Daughter, if not shout out loud.

Good Luck on the treatment you start and have a good day for your Birhtday (well as best you can in hospital)

Love

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Gill

First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.

But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still cant do what I used to do before I had MM but have learnt to slow down a bit, and at the moment just get weary more often but thats my bloods :-S
Good Luck on the trail am sure it will ruin smooth 😎

And now as for the demon drink?? I think Eve might be correct as I have gotton myself in some states what with the Vodka/wine and cucumbers:-P so take if want to and leave it if you dont, please dont say "Tom says its Ok" ha ha.

Keep us posted and I wish you a speedy Remission8-)
Have a great Birthday

Tom "Onwards and Upwards" xxx

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