[tomParticipant]

Hi Jo

The young bride is doing great, and as for keeping me in check (just looked behind me to see she aint their;-) ) well she has a hard job doing that Lol.
Take a look at the photo and see how much I spoil the young bride (tom looks over his shoulder to make sure she cant see)

Hope your Doing Ok Jo xxxxx

[tomParticipant]

Hi Joanne

Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D

Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest also.

Good Luck to your Father in law in his treatment 🙂

Love
Tom "Onwards and Upwards" xxxxx

[tomParticipant]

Hi Gill

Well what a great lot of replie's you have 😀 and am sure I cant add anymore to this great advise you already have.

BUT am a Mere Male and you know we have to have our penny's worth 😀

First am sorry you had to join this great site, but also to let you know its also the best, its a roller coaster but to make it short, I am now 56 was diagnosed in Jan 2009 went on CDT then had Stem Cell Harvest, then the Stem Cell Transplant in Dec 2009 now in remissin and back at work (light dutie's) and doing great.

Not all of us have the same treatment, as you will find out it will be tailored to you:-D

Good Luck and dont forget take one day at a time and dont push even a little bit hard, that bit of dusting will do till tomorrow 😀

Love
Tom "Onwards and Upwards" xxx
Ps not bad for a "mere male" thats got nowt to say Lol xx

[tomParticipant]

Hi Helen

Am Pleased your Mum is getting better, and am sure the Zometa will cause no more problem:-D
As for me well roughly I was diagnosed in Jan 2009 went on CDT, then had stem cell harvest and leading up to a Stem Cell Transplant in December 2009, went back to work In May 2010 on light duties, and thats where I stand now, and the only thing I have is the Zometa:-D
Dont worry about asking Questions thats the way we learn,so ask away 😎

I hope you dont think Eve means use another site? cos Eve means start a new thread on this site, you will find the threads at the top left of this page and the Categories so all you need to do is find where it might fit click on that link then "Start a new conversation:-D

Good Luck and will catch you on the boards as we both ask Q's

Love

Tom "Onwards and Upwards xxxx

[tomParticipant]

Hi Helen and Mum

Sorry you are here 🙁 but its best place 😀

I am on Zometa and the first time I had it I had flue like symptoms for a few days (aches and pains in bone structure) but it only was that first time, I now go every four weeks for my infusion and so far tomorrow (thurs) will be my 13th and all is going great.

Good Luck to you and Mum8-)

Love
Tom "Onwards and Upwards"

[tomParticipant]

Hi Joanne

I also am sorry you have had to joint this site, but trust me its the best place for help/advice and folk to listen to us when we need a rant.
As Kay says its an individual illness and not one thing suits another.
Take the pen and Paper and make notes its not going to be easy to remember everything, also ask the Consultant to send you a copy of the report that he send to your Dad's Dr then you can sit down and study it.

Good Luck to you and your Dad

Love Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Christin

Yep I know all about takin three rather than one step:-D but as time went on I knew (nearly as much as Elaine) that I had to take it Easy so am sure your Dad will also get it Lol.

Love from a mere male 😎

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Vicki

Yes it made me weary and yes strugled to sleep at the same time (strange that Dex) but I got sleeping tablets and took them sparingly as i dint want to get hooked on them 😀

Am not sure if the Spondylitis ur Dad has is connected to the MM but am sure someone will pop on and advise 😎

I am just having four weekly Zometa infusions for my bones (and it seems to be working) and I was told that if I needed to have teeth out I would have to stop the Infusions for a few months before the exrtaction:-0

Good Luck to you all
Love and Hugs

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Yamyam

Sorry to see you had to join but you have come to the correct place, and sorry to read you felt let down by the NHS 🙁 but now they have your Dad on the radar all should flow nice,as for me and only me I would go for anything to help put this dreaded MM on the sidelines until a cure comes along so for me I would do it.

Good Luck in the decision your dad has to make.

Love

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Colpot

Am sure your story will give us al hope that the light is at the back of the tunnel, well done and good luck

Tom "Onwards and UpwardsW

[tomParticipant]

Lol its a good un Gill, nor can I cee whi they av bloked it ether ha ha.

Tom xx

[tomParticipant]

Hi Carol

Well a well done you for getting more back that you felt you had lost 😀 its something that would have come natuarly to kick downon the horse to let it kknow who is the boss, well done you.
Good to hear you are back into taking not just your own but Hubbie's horse out, its anothe step forward:-) to as normal as we get with MM :-S

Like the Fact that when you went home you slept like a log it shows you are in touch with what your body needs and that is rest after a day like you have had.

And Carol you tell me about your horses the way it happens am not scared of them in type ha ha (only when am next to them)

Am sure after reading your post you are a strong lady that will cope with all that is thrown at you with this MM 😎 as I say "Onwards and Upwards" to us all:-D

Love

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Vicky

Well as for the CDT I was on that and got weaker and weaker as the cycles moved on so much so I had to pack in work:-( but hey its not all bad newa a year later after a succesfull Stem Cell Transplant I am back at work (still on light dutie.s) but hey its work and Money 😀

I got better with the CDT as my cycles went along and was put in remision with that 😀

Good Luck to your Dad in his treatment regime

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Carol

Great to read about your remission:-D I have ben in remission for some time now, but it never made me want to get on a horse? yep am over 5'10 and the scare me to death ha ha, gosh they are so big and scary.

Am also with you Carol if you love it this MM cant stop you doing it and as you say its just at a differant pace 😀

Stick with it and good Luck with your Horse 😎

From one Scardy cat

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi claire

Sorry I cant add to your post cept to say

Good Luck to your Mum in her treatment regime, and am sure some one will know a bit mmore about it.

Godd Luck

Tom "Onwards and Upwards" xx

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