[tomParticipant]

Dear Susan

I am so sorry you lost a brother to this dreaded MM, and also give you my condolances on the loss of your elder brother, Life is so cruel.

I see you have just joined us, please stay with us am sure we can all rally round and help you in your hour of need.

Love Hugs and aslo Prayers sent to you and your Family.

Tom x

[tomParticipant]

Hi Ozzy

I was told I had MM in Jan 2009 had 5 sets of CTD, went on sick at the start of 3rd cycle, (manual job) had SCT 3rd December 2009 out by the 16th December, still not feeling too good for the Xmas, but felt 100% better 2nd week in Feb :-D, I still went out for walks and the pub when feeling Ok,went back to work may 2010 had about a year off, still on light duties:-S but at least its nearly normal and bringing in the money.

Btw I am 55 years young 😎 so have about 10 years of work to do ha ha before I retire.

Thats a rough guide to Tom's bit but as you will hear we are all different so a warm welcome and Good Luck in your treatment, may your bad days be few.

Tom "Onwards and Upwards"

[tomParticipant]

Oh Gaye
You have just made an old (ish) man very happy, you put a smile on my face that before reading your post didn't know I could smile that wide Ha ha.

As for My Dr well he is normal and I have met him while out shopping and he pats my shoulder and asks if its all going Ok, he once put both his hands on my fat belly and shook it saying your looking fit? and that was in B and Q.

Roll on the Normal Dr's 🙂

Tom xx

[tomParticipant]

Hi Amanda, and sister

Sorry you have to join this band of MM'ers, but to be honest they are a great bunch of folks.

I have MM and was told in Jan 2009 and started CTD in Feb leading up to a succefull Stem Cell Transplan and Yes am with you Re the Carer? it aint for me, dont know what I would choose?.

And as for the "Lack" of treatment yes I always found it strange when I wasn't on treatment am pleased it aint just me Lol, I have always felt if am taking pills having an infusion of sorts I am fighting it 😀

You and you Family will get all the help and advice from some great people on here.

Love from one "Onwards and Upwards" Tom xx

[tomParticipant]

Hi Tracey

May I be the first to welcome you to this great group, I know its one that we didn't want to join 🙁

I also started on CTD then moved on to my Stem Cell Transplant, now 15 months post sct and doing bloomin good.

Good Luck on your treatment.

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Roz
And you are more than wlcome, and am pleased it/I make you smile 🙂
So sorry you are having a bad day but you know what they say so its no good me saying it again is there?.

Just give a few thoughts from the Good Times and try and push the times when Michael wasn't himself.

Hugs and Love sent your way keep strong Roz

Tom xxxx

[tomParticipant]

Hi Nigel

And a warm welcome to our little band.

I was diagnosed Jan 2009, and since then I have had 5 courses of CTD,stem cell harvest and now am at the 15 month post stem cell transplant and am back at work (light duties)

All through my treatment it has been "Pain Free" :-)and am now still in remission 😎

As you know or will find out everyone is different with this bloomin MM, but we have on here members who are still kicking it ass 9 years + on 😀

Would love to follow your treatment and see how it differs from here in the UK.

Good Luck

Tom "Onwards and Upwards" 😉

[tomParticipant]

Good Morning Roz

Am pleased you never left this site so no reason to say you have come back 😀

Am pleased you are getting through all this and it is a bloomin bugger all the stuff that needs to be done whilst trying to get to terms with losing your partner.

Am sure the Goverment could link it all together and all that needs to be done is inform one place and it all gets passed down the line to all other department then it only need doing the once.

Once your Ktchen is all done you could post a few phot's of it 😎

Anyways Roz as they say keep yourself "Onwards and Upwards"

Much Love and |Hugs

Tom xxxx

[tomParticipant]

Morning Tanya

Well sounds like your dads doing well 😀 and its amazing where we find the strenth to cope with these things:-S but it always comes to the forefront.

Good Luck on Monday and I hope he gets the OK for the infusion's.

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Eve

When you say its a bit complicated well dont i know it, and am sure she would want to know? but you know her better than I.

The main thing is for you Both to stay strong and fight this bloomin MM and try not to "Store Problems" I know its not as easy as that :-/

And the comment you made bout cheering you up has left me feeling very humble So as "Tom walks away blushing" he wishes you all a great week end 😉 Lets hope the sun shines for us all this week end 😎

Tom "Onwards and Upwards" 😀

[tomParticipant]

Hi Henry
Well a warm welcome to you 🙂

Sorry you had to join though, but seen as you/I or we need something when we have MM cant get a better support group 🙂

I was Diagnosed in January 2009, and since then I have had stem cell harvest and transplant, and now back at work (light dutie's)

All went well but as we all know we have our Off days 🙁 and with the help of this and the under 50's Group it isnt as bad as we thought 🙂

Good Luck with your treatment Henry, and will catch you lata

Tom "Onwards and Upwards"

[tomParticipant]

Hi Eve
I also know how well this site feels to me Its like putting on an old pair of shoes 🙂 you know the tatty ones we just wont throw away 🙂

And as for worrying? well I worry about not worrying ha ha.

Does your partner not want to tell his daughter? or is he just waiting till he grasps the MM facts?

As for it changing our lives? yes it has me changed my work/social and Family life, but I have reclaimed more and more of my "Old Life" back and kept some of the changes 😉
I also cant wait for the sun to be burning into my fat neck 😎
Good Luck and stay strong.

Hi Jet

I also am not that interested in my Bloods/pp/erm that other stuff that is found in my bloods:-S am just happy when i go to see my consultant and he has a smile on his face 😀 IE one happy Consultant = one happy Patient 😀

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Jon
May I welcome you to this Great site 🙂 its not one we would want but seen as we have MM its the best going, as well as the Under 50'S 😎

Am same as you in the fact My Wife Family and Friends have all been very supprtive through all this and we (even i) have a lets get this party rolling and sort it sort of mind's:-D

Good Luck on the X1, as for me I am in remission at the moment after my SCT in December 2009 so all is Cool.

Will catch you on the boards over the weeks.

Tom "Onwards and Upwards"

[tomParticipant]

Hi Annie

And a warm Welcome from Iccle ole me 😀
Am sorry you had to join this forum but am sure you will find out its the best their is 😎 ,the help and support you get from these great folk is second to none 😎

Good Luck in your treatment.

Love

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Chris

I also had a rash on my body during CTD, it soon went 😀

Do you go to the AE at hospital with Hubby?? me I have been told if I have anyproblem to phone our Onc ward and speak to the Consultant or the Staff Nurse, they have more knowledge about the MM

Good Luck

Tom "Onwards and Upwards" xx

[Author]

Posts