[tomParticipant]

Hi Dee

Well I want to give you a great big HUG, am sure it is hard for you to see your Dad pass away but I bet your pleased it was painless, try and force that moment from your mind and think of the good Memories (and am sure you had plenty of those)

If you and am sure you will need to have that Rant about MM just to clear your head, use this forum.
Stay well Dee

Love Tom xx

[tomParticipant]

Hi Bev
A Warm welcome to you 😀 Now take a seat and have a cuppa 😎
Now you know not to have fear :-S and the MM road to remission is a "Doable", Trust me I was a Forklift Driver Lol.

I was told in 09 I had it, done CDT then SCT all in 2009 I sit here now (age 58 Just) in remission and drug free am very pleased to tell you 😎 as for the disability aids I was asked (and I have had no bone pain) if I wanted a seat in shower and or a hand rail for the bath ?? I declined both as I was Ok getting in and about?.

Keep well and rest when your body tells you.

Love Tom Onwards and Upwards xxx

[tomParticipant]

Hi Ceri

Am sorry to read your Dad has not been helped with the drugs for his MM.
Am sure you are not being useless its just with MM at the later stages you cant do anything about it apart from being there if you can.

Am sure you are going to get a few replies' how it will help you only you will know, when you get to see your dad Talk to him even if he is asleep am sure it might help both of you.

Please keep us informed on how you are all copping with your Dads Illness, and post how you feel we are all in this together am sorry to say.

Stay Well
Love Tom xx

[tomParticipant]

Hi Jean and Frank

Well that's great news, well done you two and your team.
I knew you both would crack it and enjoy your cruise.
Love to you Both

Tom and Elaine Onwards and Upwards xxxx

[tomParticipant]

Well done Young Tom, looks like you will beat me, I was thrown out on day 16.
No worry about the updates as long as your getting better

Tom Onwards and Upwards

[tomParticipant]

Hi Susan

I had a SCT , and doing blooming well with it am pleased to say, I won't tell you not to worry as its normal, but I will ask you to channel your worry to make you feel better with or without drugs/SCT,

Stay strong and well

Tom Onwards and Upwards xx

[tomParticipant]

Dai

First I have had a few lost post in the pat, I put it down to too much Vodka ha ha.
But a well done you and your Fast team ????

Keep it going my friend

Tom Onwards and Upwards

[tomParticipant]

Dear Annette

I am so sorry to hear about your sad loss, you are correct the feelings you have are am sure normal, and I hope the sadness soon passes a little bit as am sure your Dad being the strong man he was wont want you to spend your time sad, think of the good times you had and Try and forget this damn MM.

Love and hugs to you all at this sad time

Tom xxxx

[tomParticipant]

Hi Dai

Your fingers might not be as good these days due to the drugs you have taken (legal ones I hasten to add) but your voice is great.

Tom

[tomParticipant]

Hi David

Well am sorry you have been taken of your treatment 🙁 I hope the next round of treatment is good for you.

Vasbite and Onwards and Upwards My Friend

Tom x

[tomParticipant]

Hi Christine
A warm welcome to the group, and you ask for words of encouragement ? Well am pleased to tell you I and everyone on here can and will do it 😉 .

As for me I went through the CDT then SCT in 2009 and I sit here Drug free and in remission ????. I also will tell you the truth and to be fair the treatment is an uphill struggle at times but its a doable, am pleased to add.

Good luck in your road to remission.

Love
Tom Onwards and Upwards xx

[tomParticipant]

Aww good luck with it today you two and I hope you don't have to fill much in your note pad

Love Tom Onwards and upwards xx

[tomParticipant]

Annette

You are more than welcome, its a shame that nothing else is available for the Myeloma, I hope they keep your dad Comfortable.
Don't forget to rest up yourself during this difficult time.

Love Tom x

[tomParticipant]

Hi Tom

Ur doing good My Friend and I hope ur up and at em soon.
I was out on day 16 hope you can beat me.

Tom Onwards and upwards ????

[tomParticipant]

Hi Jackie

You know I cant answer that for you Jackie, but what I can say is A warm welcome to our (now your) Forum, am sure you will get the support and advice that you want as you wander along the path to remission with us lot, its a great bunch of folk we have all at different stages in treatment.

What treatment have you had so far Jackie and are you in remission ??
I was diagnosed in 2009 had CTD as a frontline then SCT in December 2009 and am now pleased to say in remission and drug free.

As I was writing this I had a thought RE your post ::"so why don't I feel grateful that I'm still here? " well it came to me during my first year of diagnosis I went for counselling as I might have been a iccle bit fed up (depressed I think??) it worked wonders for me, have you had any or thought about it??? it just might work.

Keep in touch Jackie

Love Tom Onwards and Upwards xx

[Author]

Posts