[tomParticipant]

Hi Ian

Thats Good and i hope that you dont have problems with your legs as am sure you have enough to contend with.
They say the Subcut is best way? am pleased you are confirming that.

I have fingers crossed for you Ian, keep well and hope your legs stay solid.

Tom Onwards and Upwards

[tomParticipant]

Hi Jane
Your welcome.
Dont forget during SCT you wont be alloewd out till your fit (ish) so I would suggest patches before you go in to wean yourself off them 😀 that said you will be near a coma anyways as Elaine told me i slept most of the time Lol.

Easter? well no plans but am sure we will be babysitting some time over that week end 😀 , do you have anyplans for that time???.

Love Tom Onwards and Upwards xxx

Ps did you find me on Face Book >>>>tom.lappin.5

[tomParticipant]

Hi Billy
Sorry you had to join us but welcome anyway.
Its hard to keep your savings when you get ill let alone when you get proper ill 😐

I and my Young Bride (elaine) has seen our savings not only dwinndle but go the lot :-S as Elaine got breast cancer in 2008 and i with MM 2009 🙁
BUT I am pleased to say I dont have Bone damage and can walk about a fair bit (still get puffed and slight pain) cant get DLA but I also had a Low cost endowment for part of the morgage that had "Critical Illness cover" so we aplied to claim on that and after about just over a month the money was paid out not many Questions to answer just forms for Consultant to fill in.
I would reapply for that terminal claim and get your Dr on your side, good Luck

Tom Onwards and Upwards

[tomParticipant]

Hi Jean and Frank

Well am sorry to say I cant help re the Leak from Franks Kidneys :-S but am sure the Dr's are on it with the Anti B's .

Its a long haul andf am sure it was longer for my Young bride (Elaine) than I ??. you know you will have to stick with it Jean but it has been said before "Make sure you Rest also" as the work realy starts when Frank is home.
Love to you Both xxx

Hi Ann and Pete

How long did it take to regrow?? Well I was pleased it never came for for such a long time 😀 and when it did it was "Different" My hair was a bit darker, and when I let it grow into a full beard with tash it left patches on face and neck the tash was more like a 50' pencil tash (not shaped by me)it just grew like that, knew when body hair was on its way back as my whole back was itchy as hell as the hair sprouted.
Give it six months + Pete then you will get fed up shaving.

Keep strong you all

Love Tom Onwards and upwards xxx

[tomParticipant]

I got it first time jean Lol xxx
😀

[tomParticipant]

😉

[tomParticipant]

Hi Jean and Frank

Well I had a fair bit of Platlets and blood given whilst in Hospital and to be fair when I dropped I didn't feel well untill the day before i came home (was in 16 days) I had the rash but the think I worried more about was the sickness and still running to the loo, but it all came togeter slowly, I know its Hard to sit and wath Frank as he Looks (and am sure feels) like he is falling apart its a waiting game now but one that is worth it 😎

Love to you both

Tom Onwards and Upwards xxx

[tomParticipant]

Hi Jane

You will be fine (ish) and yes i uised to smoke,, stopped just three weeks prior to my SCT in 2009, I was just using Patches to help me while i was in Castle Hill having SCT and thought when i am out I would start again 😀 , but it all fell apart as after SCT I couldn't be bothered or want to Roll me Fag so i didn't nor did i have the side effects that i got before when I stopped and the rest they say is History, never touched one nor felt the need for one since.

But the red wine is good for you 😎

Love Tom Onwards and Upwards xx

[tomParticipant]

Well as if we dint know it would work on you 😀 but that said a very well done Peter and long may it continue 😎
Great to hear Good news

Tom Onwards and upwards

[tomParticipant]

Aww Tanya Gi Ower or yel mek me blush 😉
Well we are through the upbringing stage and have moved on broke the chain am pleased to say.

I do hope your dad sorts himself out for him as well as the family.
Your dad is in for a rough ride with the mix that he is in so you must brace yourself as you know you will be the whipping girl to shout at 🙁

I understand you want to help your Dad but please dont take too much on yourself if Dad wont allow you to help without putting too much pressure on you.

I wish you both Well during your dads treatment

Love Tom Onwards and Upwards xx

[tomParticipant]

Hi Pat
Aww am pleased Beatrix is home I bet you are all over the moon.
Face time is great but getting some of the grandkids to sit back a little is bloomin hard work ha ha, lets get thos other 5 out of the way and get yesen off to canada.

And Jean am sure you could never look like you have been dragged through a hedge 😀

Love to you and all yours this cold monday

Tom xx

[tomParticipant]

Hi nerys and Mum

A warm welcome to the site, as you know its got great people on here.
You have had your Q answered by those great folk, your Mum's Journey like most here has been a difficult one, most Dr's dont know what and how to tell its MM.
I went in December 2008 with a problem on ribcage and was told it was a "Pulled Muscle or a Bruised Rib" now i have had both of those many a time am sorry to say 😛 and told her it wasn't so after tests/xrays and bloods it was found out to be MM and that was Jan 2009, had CTD and SCT 2009 and am now in remission and drug free 😀

Good Luck to you Both in your Mums road to remission

Tom Onwards and upwards xx

[tomParticipant]

Hi David

What a great post 😀 yes my family and friends (not all though) cope with my MM in a good bantered way and throw the jokes in 😀
am sure am due an update of photo's David? and the pillow looks great your young lady wife did a top job on it.
Am pleased you say you are not rushing into useing the coffin for many a year to come but as and when its needed it wil be the poshest one around 😀

Vasbyte and Onwards and Upwards
Tom

[tomParticipant]

Dear Nola

I am sorry to hear about your Loss in Jan.
Stay strong and think of the good times you had before MM came into the scene.

Love and Hugs Tom xxx

[tomParticipant]

Hi Rob

Yes sometimes when i am sat down for anylenth of time i find myself "Stiff" and difficult to get of the chair some days, but hey that could just be my old age hitting me sooner than most Ha ha.

I still work (light duties) company gave me a portakabin with everything in it and stuck it near the gate and said just book lorrie's in and go steady, had those light dutie's since May 2010 when i went back to work after a year off.

Keep going Rob

Tom Onwards and upwards

[Author]

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