[tomParticipant]

Hey Trish and Peter

Well done you two, am pleased for you thats great news get yersen off and have a great time.

From this Onwards and Upwards to you two that are also Onwards and Upwards.

Tom xxxx and dont forget the 😎

[tomParticipant]

Hi Mavis

A Well done from Iccle ole me 😀 thats great news to read on here and I bet you were and still are over the moon to write it, well done Mavis and long may it continue 😎

I am comming up to my third year post SCT and am not expecting it to fail 😎
Keep it up Love Tom "Onwards and Upwards" xxxx8-)

[tomParticipant]

Hi Chris
Keep your han on that roll at least you dont need to put it in the fridge lol.

I had lost loads of weight pre SCT and was still shocked to see it still falling off after SCT but I can confirm it comes back with a vengance LOl
Keep well Chris, not long now

Tom "Onwards and Upwards" x

[tomParticipant]

Hi Pat

Am sorry to read your a bit off it girl but its the norm :-/ its MM for you.

Now I remember getting a grean ring around my neck from my "Gold 😛 ) neckless but that was after I went swimming with it in the sea lol, but I have never heard of silver doing anything with treatment ?

Am sure you know am now treatment free 😎 but when I was on my CTD I never used to get in Bath if I was "Home Alone" as I needed Elaines Help to get me in and out.
Yes its hard to let others near take over your Life when you are not too well and to be fair it made me snap more than once to our Sons and to My lovely young bride:-( But they all took in their stride and they still love me and care for me 😎

And BTW that was in no way a Moan nor a whinge that was just someone copping with MM so chat away Girl but just mind who and what you TXT he he.

Love and Hugs
Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Vicki and Colin

Well its a bit rough aint it and we are all sorry to hear that BUT it has to be done and its just a wait and wait now am afraid, when the rough bit gets to Colin am sure Like me he will sleep through most of it I hope.

This SC things not a fast fix and to be fair Colin and yourself will be knackered for a fair few months no so you must get some rest in, it wont be long now before Colin (if he is like me) would like you to stay at home some nites and rest yourself up as I was just too tired and sleepy to notice Elaine was with me 🙁

BUT I got better as will Colin 😎
Love and Hugs for you both.
Tom "Onwards and Upwards" as you two will be soon xxxxx

[tomParticipant]

Hi Vicki and Colin

Just checking in to see how you both are ?? and Vicki you must rest and get your strenth up cos your work will start more when Colin is Home.

Lots of Love from one "Onwards and Upwards" to anothe Couple of "Onwards and Upwarders" xxxxx

[tomParticipant]

Hi Chris

Well its working and I hope you dont get the "Trots" but am sure you will he he.
My trots dint just stop when I left hospital so be warned.

The sleep is good for you I spent 5 days asleep and some time woke up to find a not from Elaine saying she had been Lol

Keep it Going Chris not long now.

Tom "Onwards and upwards" x

[tomParticipant]

Hi Tina

Well I feel for you, I had all mine done Xmas 2009, that xmas and new year was a wipe out for me missed it all as I like you was being sick, couldnt eat and felt too weak to move some days. (and thats only what i can remember) as for the sickie thing I stayed on Anti Sick Pills for MONTHS to keep that at bay. and the food we aorked outthat if Elaine (the Young Bride) gave me small plates with a little of what I "Thought" I fancied then it worked as I didn't feel overfaced with the big (normal) plate of food.

Its a slow procces this healing lark Tina and dont forget you have gone through what would be "Major Surgery" even though you dont have great big scars, thats what you and the rest of us has gone through.

Sleap often (thats when you heal) and do a little bit of walking (away from big crouds) and wait as thats what it is a waiting game and one morning (like me) you will wake up and it will be 100% better, I was about two/three months post SCT before I felt better so stick with it.

Love and Hugs
Tom "Onwards and Upwards" xxxx

[tomParticipant]

Hey Folks and as David Said Good reply's 😀 I am like most of you on here yep got it but dont want it, fight it but would rather have a rest every now and then and thats what am having now a Rest before my next treatment needs to kick in but as am still in remission am not expecting it too soon8-) but will I be upset sad and angry when it kicks back in? too true I will:-( but will it beat me into giving up NEVER 😎

I have been asked how I do what I do when I have got what I have got (MM) :-S well I tell them its either an "Up and at Em" or i/we sit in a corner whimpering for all to see :-/ and That I aint gonna do:-P My Kids know all about my MM but Our Grandkids dont know what and when they just know av got poorly bones so dont jump on HIM Lol 😉

David you Home Made Coffin was/is a great Idea to bring it into the Grandkids space and I know that is working for you 😀 and as for the Cuddle in M&S I cant aford that lol but Elaine( my young bride) and I cuddle where and when we want.

Keep strong you all and cope with it in the best way you can at that moment.

Love Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Sarah and Henry

I have suffered lord knows how many chest infections since finding out I have got MM so its an MM thing but I have been told not to bother with the Dr to phone our ward up and ger advice and or pop in, the kept me once and put me on a drip and sent me home other times its just Anti B's with a come back if temp gets too high, we just need to keep a good eye on it.

You will find out like I have that we suffer with chest problems from now on in am afraid.

All the best and hope you are BOTH better soon

Love Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Vicki and colin

All Looking Good now and do you know the one that says "Onwards and Upwards is very happy for you two take it on board also so then we can have more "Onwards and Upwards" folk 😀 its not done yet you tow but its Looking good so keep it up and it wont be long now, stay well and bug free.

Love to you both.

Tom One "Onwards and Upwards" amongs many xxxx

[tomParticipant]

Hi Sue and Michael

I am so sorry to read that its not working for you two and of course your family and friends.

You all have put up a great fight with this Myeloma,am sure Michael will be made comfortable and be pain free, Yes you both could have been told better that the treatment had stopped working but please dont dwell on it as you will need your strenth to comfort each other.

Please dont feel you are or have let Michael down by getting help in to make you time easier with the help you can get.

How do you say goodbye?? well if it happens to me with Elaine I wont do too much thinking I would speak from the heart and how I feel felt at the time, and as its me with the MM I Told Elaine the same no regrets just make the best of the time we have together.

Lots of Love and Hugs to you two, and please Sue and Michael dont feel you have upset anyone as we are all here for you as am sure you are for all of us.

Love and Hugs Tom XXXXX

[tomParticipant]

Hi Polly

Am sure with a handfull of Onwards and Upwards and a sprinkle of one day at a time, and everyone crossing everything we have all it made am sure, hope all went well yesterday

Love Tom "Onwards and Upwards" xx

[tomParticipant]

Hi David
Well we know you cant beat that Bombing about malarky 😀 , lets hope its for many a year 😎

Tom "Onwards and Upwards" x

[tomParticipant]

Hi Kay

Am sorry to see you joined the site on behalf of your Mum.
I cant add anything to your Q as to what does or might not happen at the end stage of MM.
Am sure if you talk to the Dr who is treating your Mum he/she will tell you the best way to go re treatment for your Mum at this stage.

I just wanted to send my thoughts to you your Mum and all the Family at this difficult time.

Tom xxx

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