[tomParticipant]

Well done David and your team, and yes you are correct it’s never too late and you more than most know that am sure, you have been dealt a bad deck so far but it was worth the wait hope you don’t do your back in doing a wee jig in celebration

[tomParticipant]

Hi Jane
And well done on your length of remission, I had CDT on my first treatment in 2009 leading up to first SCT in December same year and got 4 years out of that, I am now on Velcade (subcutaneous ) every Monday with 10 wee Dex tabs lol. My feet know am getting this treatment I have had nine Velcade injections so that makes me having 90 wee iccle tabs, all this is all being well leading up to my second SCT as and when the dr tells me am in remission and am hoping for it to last at least as long as yours Jane.

And my thoughts are stick with it Jane until your docs says he has better for you.

Love and hugs

Tom onwards and upwards xxxx

[tomParticipant]

Hi Charlie
Doing great thanks, I am now on (today) my third cycle of the Velcade and the dex and to be fair it has been a bit strange to me ?? .

The first few weeks after taking my Dex (take that every Monday ) I lost my sleep pattern for four days then Friday hit the preverbal brick wall then normal for the week end to start all over again Monday But the last three weeks I slept like a log no lose of sleep at all but too much sleep I was having to have ?? .
But bloods all moving in the right direction so am happy, still getting up to go to work and getting out and about for a few pints.

How’s you doing these days Charlie ? Hope it’s all onwards and upwards

Tom as always onwards and upwards x

[tomParticipant]

Hi Andrew
Well done and yes you should be pleased I had mine done in 2009 and at the start it was 100 but as the months moved on I got the all clear and spot on and am under the impression it’s near the norm, stick with it with a big grin and a skip in your step.

Good luck you are well on the road to remission

Tom onwards and upward x

[tomParticipant]

Aww bless you Frank well I can’t help as yet but just wanted to wish you luck with it Frank I hope someone will pop up and give the advice you both need.

Love Tom xxx

[tomParticipant]

Carol I award you an “A” also well done you, it’s great news, and as for your consultant be like me Carol if he is happy am happy.

From one onwards and upwards to another have a great week

Love Tom onwards and upwards xxxx

[tomParticipant]

Hi Maureen

Thanks for that, yes I am doing pretty good on it the sleep I think has come back to me and near next to normal pattern so that’s good.
Am sure Ian will cope with the Velcade and it’s good to get away before treatment starts pewee went away before I started treatment all booked I a weekend lol.

Good luck to you two and enjoy your break.

Love Tom onwards and upwards xx

[tomParticipant]

Hi every one
I am now on second cycle and just done third week of that cycle and kast week I lost sleep on Monday as normal but after that I could sleep for England ? Fall asleep on sofa wake up and go to bed it was wayyy too easy to sleep, so let’s see how this week falls.
Went to Scunthorpe General today and talked for a few seconds to a couple going in with
Dr Jalihal who wanted to talk to me but never seen them in day room so asked reception to pass on my phone number, hope they get in touch, lady said she noticed me from the group so they will be in and hope they read this.

Love to you all and stay well

Tom Obwards and upwards xxx

[tomParticipant]

Hi myelomaminx

When you had your growth injections did you get pain in ribs/back and or hips ? Because when I had mine done in 2009 I had bad Iain for three days/nights just prior to the day of collection.

Just wondered, and good luck with the next time

Tom onwards and upwards xx

[tomParticipant]

Hi myelomaminx (love the name ha ha)

So sorry you never got any let alone enough, I am sure some one on thus site was the same as you and it all worked out well.

Good luck with ur and hope next time is better

Tom onwards and upwards xx

[tomParticipant]

Hi Hilitli

Sorry to hear about your Mom,I can’t add to this although I am on the Velcade injection once per week but have just finished my first four week cycle do am sure you understand for me IRS early day.

Good luck to your Mum on her long journey, I hope it’s a smooth one.

Tom onwards and upwards x

[tomParticipant]

Hey Andy
The drink of a Sunday is the norm for me lol.
Pleased you say the bloods are good am hoping my consultant says same when I see him ???
Keep well my friend and enjoy those weekend pints.

Love to you both.

Tom onwards and upwards x

[tomParticipant]

Hi Julie
Your more than welcome as am sure it’s difficult for you as well as you Mom and dad, as for looking back it can’t alter things I/we had made decision that wasn’t right but they were right at the time and that’s all that matters we just dust down and move on it’s not easy being a carer it takes its toll,I was a carer for my wife when she got ill in 2008 (she in now all clear and fit as a fiddle now) now Elaine is my carer but av been told by her sister that she has been since 1975 haha.

Give my love and a big cuddle (they always help) to your Mum and Dad.

Love to you all

Tom onwards and upwards xxx

[tomParticipant]

Hi Julie

Sorry to read your mum has been through a lot, it’s a hard illness to find the one that will kick it into touch, I have had the CTD and SCT all in 2009 four years remission then it kicks back in again so am now on Velcade getting ready for my second SCT at the end of this year all being well,

Am sure they will find the one that will work on your mum so I have fingers crossed that it’s soon.

Love to you both

Tom onwards and upwards xxx

[tomParticipant]

Aww and here is my bloods, tell me what they look like lol

lol. My blood markers were at the start of Velcade …….
Hb…13.4
WBC..4.9
Plts..2.50
Neuts…2.58

Then after 3lots of Velcade it is……

Hb…128
Wbc…6.0
Plts….191
Nuets….5.4

Not sure where the Dec point should be as I have one middle front and back on these lol.

• This reply was modified 10 years, 9 months ago by  tom.

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