[tomParticipant]

Hi all

Yes Dai I have lost in cyberspace some posts that I thought had gone BUT ??? I put the lost posts down to my Vodka drinking and thats why I lost them :-S

Tom (Not sure if it was him that lost the posts) "Onwards and Upwards"

[tomParticipant]

Hi Benze
As for me I am/was treated in Scuntorpe and Hull but am a Scot from Holytown near Motherwell, but good luck 😎

Tom "Onwards and Upwards"

[tomParticipant]

Now Look what you did Gill I went on You Tube to listen to "unforgettable" and I admite I have tears.

Gill I admire you Both (yep Stephen) am sure it was hard near the end but you have both faced it with immense strenth/courage and Love, and for that I and many more folk on here and that know you both will be eternally Grateful.

I also am not one for religion so am sure mine will be ? well lets wait and see shall we cos at the moment I am not sure? but the "unforgettable" sounds good to me.

I know you are a Strong Lady I have read many if not all your posts and read them to my young bride also, stay strong and yep Stephen I will say a few prayers for you, Rest In Peace my online Friend.

Love Tom xxxxx

[tomParticipant]

Hi Vicki and colin

Well done on getting the funding but its a shame it has to be fought for >:-(

The other dose of cyclophosmahide if it is needed then its a case of OK throw it at me I and everyone else that gets near me will suffer for a few days :-S so let them all Be warned 😎

Tell Colin to stay Posative as its the only way to fight this bloomin MM am afraid, going Back to the Funding for this it must have cost as much trying and having TWO false starts, yes I did feel down and depresed during my treatment so tell Colin and yourself its Normal 😀 it passes but I did have a chat with a councilor at first and that worked wonders for me 😎

And as for the hair well I am bald on top so it never worried me at all I liked it all shaved off but my young bride dint 🙁 other wise i would still be a Kojack 😀

Good Luck for the next round 😀

Elaine and I are off to Mablethorpe today to see John Banks raise Money for MM UK John has had MM for about 12 years :::
John Banks
TODAY IS THE BIG DAY AT THE CLOCK CHIPPY. EVERYTHING HALF PRICE AND ALL TAKINGS TO CHARITY + FREE PRIZE DRAW WITH SOME FANTASTIC PRIZES. ELVIS WILL BE IN THE BUILDING ALL DAY TO ENTERTAIN YOU. DON'T MISS THIS FANTASTIC DAY

So I am off for Chips and Peas 😀

Love
Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi Tina

Wow you have got it all down to a T and am sure it will all work out keep strong and fit(ish)

Love and Hugs

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Les

Thats the way to rock 😎 wishing you luck for getting off the velcade and kidneys up and running smooth.

Tom "Onwards and upwards"

[tomParticipant]

Hi Mavis

Well I for another one know how you feel with [u][b]"That" [/b][/u]problem am sorry to say, but I was given "Strong Codanthramer" 10 mls at night as and when needed it worked wonders 😀 till I thought I got through the [u][b]"That"[/b][/u] bit but it was still with me. all sorted now though might even be a little bit loos since my SCT :-S but hey ho you cant have everything 😎

Hope its soon sorted and as the others say do keep on with your pain killers.

Love and Gentle Hugs

Tom "Onwards and upwards" xxxx

[tomParticipant]

Oh Gill

I am so sorry to read about your beloved Stephen has Passed away I honestly wish i was with you to give you that great big Hug that am sure you want and need right now, but am afraid it can only be a Cyber Hug (((HUG)) sent to you and of course to Stephen.

I watched with a smile on my face the way you two have coped with all that the MM has thrown at you both, you never let it get the top side and you have always found Humor to help you and am sure Stephen through all this.
Please stay strong as you know thats what Stephen would want you to do.

I am lost for words to hep comfort you Gill but am sure they will be lost in the tears that we are all getting this sad day.

Love and loads of Hugs to you and your Family's and Friends

Tom (hugs) xxxxx

[tomParticipant]

HI Joanne

Not a problem, and i wish your Dad luck with the harvest on Monday.

Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Craig and Etta

You both kn ow I can only speak about myself in this 🙂 but yes I had sickness for ages after never brought anything up cept the Bile and wind, was on anti sick tabs for ages even my Consultant wondered why I still needed them :-S but hey I did and got them 😎

Keep going one day Etta will wake up and that Corner will have turned and that Craig is a great feeling 🙂

Love to you Both

Tom "Onwards and Upwards" xx

[tomParticipant]

Good Luck for today/tomorrow Chris I hope you do well

Tom "Onwards and Upwards"

[tomParticipant]

Hi Joanne

Sorry I seem to have missed this post? so a late welcome to the forum.

As the great members here have said its a rolercoaster ride getting remission with this MM but it is doable as I like many can confirm.
Just a run down on mine (am now 57) found out in Jan 09 I had MM, had 5 courses of CDT then harvest leading up to Stem Transplant in Dec 09 was off work for a year am now back at work (light dutie's) and doing great no pills or anything. would I do the same Transplant route again? too true I would, its not a walk in the park butfor me well worth it.

Good Luck to your Dad and all the family in the road to remission 😀

Tom "Onwards and Upwards" xx

[tomParticipant]

My Dear Gill and Stephen

I am so sorry to read about you Stephen and your MM grabing you so hard and so Fast, Stephen and Gill my thoughts are with you both at this moment (and have been as am sure you know for a long while) Stay Strong Gill I like most wish we could take the pain away for you and heal Stephen but am afraid we cant.

One reason I can give to help you get through it is that Stephen wants you to get through it, Stephen will know you are sad so please stay strong for Stephen at this difficult time that you are both going through.

Love and Hugs xxxx

Tom (HUGS) xxxxxxx

[tomParticipant]

Hi Les and Welcome to this Merry Band of folk ? yes we are merry most of the time 😉

Think Eve has coverd most of it so at the moment I will wish you all the best in your trip with MM

Tom "Onwards and Upwards"

[tomParticipant]

Hi Newbie

I cant add to this one as i haven't had Velcade, but wish your dad well in his road to remission.

Tom "Onwards and Upwards"

[Author]

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