Myeloma Forum | Tony Nudds | Activity https://forum.myeloma.org.uk/members/tony/activity/ Activity feed for Tony Nudds. Fri, 10 Apr 2026 18:46:31 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 54c1f047f52473f942d2a951b262faa4 tony changed their profile picture https://forum.myeloma.org.uk/activity/p/36774/ Mon, 08 Dec 2014 21:41:58 +0000 0 ad317350c294139b9b4bc4a9125b4804 Tony replied to the topic New look website in the forum Off topic http://www.myeloma.org.uk/forums/topic/new-look-website/page/2/#post-111586 Sat, 21 Dec 2013 15:00:00 +0000 Hi Susie & Stuart

I also miss part of posts on the hp desktop PC with 20inch wide screen monitor at work using internet explorer and laptop at home using chrome. I have had no problems with the ipad using safari.

]]> 47d05baaf8ae834a074e0622f30ba503 AnthonyNudds replied to the topic to SCT or Not to SCT in the forum General http://www.myeloma.org.uk/forums/topic/to-sct-or-not-to-sct#post-95158 Tue, 30 Apr 2013 14:53:43 +0100 Hi Clare

I had my SCT at Barts a long time ago in June 2005. The standard of the treatment and accomodation was excellent. The only downside was the traveling time from Colchester. Whether to go for a SCT or not is an individual decission. I definately would go for a 2nd SCT if its needed.

Best wishes
Tony

]]> 2a236c6c1ef4ff1acbba7024d22f0a50 AnthonyNudds replied to the topic Four years relapsing and still no treatment in the forum General http://www.myeloma.org.uk/forums/topic/four-years-relapsing-and-still-no-treatment#post-95087 Tue, 23 Apr 2013 07:23:48 +0100 Hi Helen & Mavis

Glad you found my post encouraging. No bone invovement or major infections so far. I try to keep as fit as I can by biking to work,gardening and walking the dog. I had shingles and some major aches and pains after the SCT but soon back to normal. I have a few aches and pains at the moment but thats down to decorating. Looking…[Read more]

]]> 99d3bcf95e2550010993fa647cedeb03 AnthonyNudds started the topic Four years relapsing and still no treatment. in the forum General http://www.myeloma.org.uk/forums/topic/four-years-relapsing-and-still-no-treatment Mon, 22 Apr 2013 11:44:58 +0100 Hi my myeloma journey so far,

Diagnosed December 2004 with Light chain myeloma following unrelated urine test in September 2004. Asymtomatic with kidney function deteriating. (creatinine 180 and rising)Age 53.

Started CTD straight away and had SCT (Barts) June 2005. 8 million stem cells collected but unfortunately none saved. No problems…[Read more]

]]> d1bb993a8db744029712bb480f947112 AnthonyNudds replied to the topic Diet Tips in the forum General http://www.myeloma.org.uk/forums/topic/diet-tips#post-93281 Fri, 03 Aug 2012 23:13:28 +0100 Hi Michele
When I was diagnosed and started treatment in dec 2004 I started taking an apple, pear, banana, orange, dried apricots and walnuts in my packed lunch. I did achieve complete remission so the change in diet did not hurt. I often eat mangoes and regularly drink mango and orange fruit juice. I did take blueberry punch for a while when I…[Read more]

]]> 198881cbbf8c2cab691887f2f392c1a4 AnthonyNudds replied to the topic CTD Second time round in the forum Treatment http://www.myeloma.org.uk/forums/topic/ctd-second-time-round#post-99988 Tue, 24 Jul 2012 08:37:08 +0100 Hi Kevin

I was dianosed with light chain myeloma in Dec 2004 and did CTD Plus SCT in June 2005. Relapsed April 2009 but have managed to avoid treatment so far. The closest I came to treatment was in November 2010 when I actually signed up for Myeloma X and got a phone call 2 days before starting treatment from my consultant to say he wanted to…[Read more]

]]> ae5e7ab06968b29093fad9606af9b33e AnthonyNudds started the topic Treatment at Ist relapse. in the forum Treatment http://www.myeloma.org.uk/forums/topic/treatment-at-ist-relapse Sun, 10 Apr 2011 12:57:41 +0100 Hi all
I am relapsing after my first myeloma treatment and would like your comments on possible treatments.

History first. At my annual eye test at the beginning of September 2004 my optician spotted, what she thought was signs of a bleed in my retina. This turned out not to be the case, but as a precaution my GP asked me to do a urine test…[Read more]

]]>