Hi Mike
Apologies for the late reply, I’ve had a bit of a rough week, just coming out the other end now and feeling much brighter.
Thanks for sharing some of your story, sounds like you’ve had a very bumpy journey to date BUT as you elude to, you’re battling and managing to live the best life you can 🙂
I was told at clinic on Wednesday that although my bone legions are very severe, I’m fortunate that my vertebrae are not currently badly affected, it’s pelvis and hips for me and I will look out the pain nurse to see what more maybe can be done.
I wish you well with the surgery and will look out for you at clinic ( I’m currently due there next on 21st Aug). I’m hoping to get to the Leeds Support Group on Monday 29th July.
Take care and good luck.
Speak soon
Tony