I’m on velcade, dex and thalidomide, two weeks on, one week off, and I have the same voice probs. This is my week off drugs and I am absolutely wiped out.
Reckon dex has a lot to answer for!
Regards
Tony F

I think that you should be receiving a copy of the consultants letter as a matter of course. Mine normally take about 12/14 days after appointment to arrive, always have done.
Don’t be paranoid, you’ve got enough to worry about!
Hope you can sort it out.
Regards
Tony F

Hey, congratulations you two. What took you so long Colin?
Best of luck.

Hiya Vinni, looks like you had a great birthday bash, your mates look as though they enjoyed themselves as well. Hope the weekend took your mind off things!
Well done on raising £400 that’s really good, you’ve got some very generous family and mates.
See you soon
Tony F

Hi Brian, following my SCT I was on antibiotics for three months. Then I was stopped. I opted not to go on maintenance drugs and was completely free of drugs for about 26/27 months.
just to cheer you up a bit has your consultant told you that after SCT you will have to have your baby injections again! I never thought about that but the chemo prior…[Read more]

Vicki, I am so so sorry to read your post, as Helen said I think that we all dread hearing what you have both been told. I truly hope that you can get Colin home to familiar surroundings. My thoughts and prayers to you both.
Regards
Tony F

Hiya Maureen, I was really pleased for Lawrie, he really wanted to do something for Myeloma, he did well.
How are you guys doing? I don’t get onto the forum too much seem to be very busy, we restarted a support group in Leicester at the beginning of the year, it seems to be taking up lots of our time.
As for me, I had my SCT just under 30 months…[Read more]

Ian, I hope that all goes well with your SCT. You ve certainly had a long wait for this moment, let’s hope that it gives you a long remission.
I guess over the years you have read all about SCT, it isn’t a cake walk but you are a tough guy, going through all you have been through over the past few years.
I wish you all the very best.
Regards
Tony F

Joe, pleased that you got through your tests okay.
To everyone, I can’t believe the differences in the way that hospitals approach a bone marrow biopsy. I attend the Leicester Royal Infirmary, in doing a BMB it is standard practice to give a local anaesthetic and to give gas and air. It really does help, it seems that I have particularly hard…[Read more]

John, I hope that you reach the right decision for you. By way of spurring you on, I was 68 when I had my SCT.After about 6 weeks I was beginning to lead a normal life, 26 months down the line, and being completely drug free for that time, my pp’s are slowly increasing, currently about 6. I have recently had an MRI and a bone marrow biopsey, to…[Read more]

Sad but true!

Good result all round!

Some good responses here, I guess the message is not to let this myeloma get to you!
I am helping to reform the Myeloma Support Group in the Leicestershire/Rutland area, thats keeping me on my toes!
Enjoy Easter everyone, easy on the chocolate.
Regards
tony F

I thought that it was just me getting older but yes I find it hard to concentrate for any length of time. Have been reading the same book now for weeks! I find reading short articles and stuff on the iPad, ie news etc ok, and my auto SCT was over two years ago.
Get cold feet in bed, but not during the day.
Regards
Tony F

Morning Susie, I was diagnosed three years ago, went onto the myeloma XI trial, had a stem cell transplant two years ago but chose not to go on any maintenance. So after transplant my pp’s were just below 2 after 26 months they are at 6. I had just one setback over the 26 months with food poisoning but other than that no drugs other than three…[Read more]

Live in Leicester if you consider that city only to pleased to be involved.
tony.farquharson@btinternet.com

That was meant to read Leicester Royal Infirmary.

No, no, at the royal it is a 6/7 roomed isolation unit, you have to buzz to get in, they don’t encourage too many visitors at the start of treatment, even later only two, my wife had to remove shoes and outdoor coat etc before coming into my room, and had to wash hands thoroughly. You don’t get any of the coming and going that you get in a normal…[Read more]