Evening Stanley, yes I also was given Mozobil, ( check out the price per shot, you will certainly be getting your money’s worth from the NHS! ) as my stem cell harvest was over two days I had two injections.
Best of luck with the transplant on August 11th, hope that it all goes well, during and after.
Keep us posted on your progress.
Regards
Tony F

Must have missed that part of Jeffs post ref online access to hospital records, I attend the same clinic so next visit will ask the obvious question, will let everyone know.
Regards
Tony F

Hi Karen, haven’t seen you in clinic, really pleased that it is all going in the right direction for you. It’s a good feeling when you restart doing all of those things that others take for granted. Still get tired occasionally and have to pace myself doing things. Because I am on the myeloma XI drug trial I go up to the Hope Clinic, bit less…[Read more]

Hi Angela, yes I was given a pre printed form by the transplant team when they released me back to the haematology specialists. I had my SCT at the beginning of February 2013, so a year before your husband. The first series of ‘baby jabs’ was 6 months after SCT. I had, pedicel, pneumovax and meningococcal. The second lot was at 8 months and the…[Read more]

Hi Sarah, I had my SCT when I was 68, now 18 months later I feel great. Do tend to get a bit tired and need to nap, but that could be age and the desire to keep doing things. I walk my dog across fields and woods for a couple of hours every day. Bits of gardening and DIY. As John and Rebbecca have said each individual is different but the SCT is…[Read more]

Sarah, so sorry to hear your story, I feel sad for your loss and pray that you will remain strong and live with happy memories.

Eve, my prayers are for you and Slim, stay strong.

My love and thoughts are with you all.

Tony F

HMJ, deepest sympathies to you and to your family for the loss of your beloved dad. From your post it sounds as though he was a true fighter. To survive for 19 years should I hope give encouragement to other readers on this site.
How wonderful for you to express your feelings about your dad.
Wishing you the best.
Regards
Tony F

Hi all, thought I would add my tale, like Jill, I visit my GP surgery 2 weeks before my clinic appointment, the hospital have already supplied me with the envelopes, nurse takes the blood, so 2 weeks later at the hospital appointment the detail is there ready for discussion. My GP receives a letter showing the current results and I recieve a copy…[Read more]

Hi cancer kid, otherwise known as Don. What a wonderful outlook on life and death. I hope that you are considered an inspiration at the hospital, if I had to be parked up next to anyone in hospital I would choose you, a laugh a minute, bet you keep them on their toes.
Good luck.
Tony F

Hi Chrissie, funny how you get conflicting advice from all sorts of areas, I was told definitely not to drink green tea! So who is right? Wish I knew.
Still life goes on!
Regards
Tony F

Nothing more to say Don, I wish you all the best for the future.
Regards
Tony F

Evening Wendy, I was 67 when I was diagnosed with light chain myeloma, returned from a holiday in the Far East with a chest infection which my doc diagnosed as pneumonia. That was cleared and had several more infections, loads blood tests and three months later was diagnosed with myeloma. No bone pain, kidney function ok. Was/ am on the myeloma XI…[Read more]

All the best with your MRI scans, I fell asleep while I was having mine! Haha
Regards
Tony F

Good evening, so sorry that you have to be part of this group.
You have every right to be concerned, this disease is a bugger and effects us all differently. I hope that the following will give you and your dad some encouragement,I am 70 in August, was diagnosed with myeloma in early 2012. Was put onto the myeloma XI drugs trial, that lasted for…[Read more]

Hi Karen, sorry for interrupting your conversations. Almost from the start of my treatment, 2 plus years ago, I have been having my bloods taken by the nurse at my doctors surgery, about 2 weeks before my clinic appointment.
As I am on the myeloma XI trial I have bloods taken at the clinic before seeing the consultant.
Don’t you just love feeling…[Read more]

Sorry that you have to be welcomed to this site. I was / am on the myeloma XI trials. I was diagnosed in 2012. Had 5 months of drugs, had a couple of infections with hospital stays. Had the stem cell transplant in early February 2013. Opted for no maintenance drugs, remain on the trial and have a check up every three months. Para protein are at…[Read more]

Hi, in answer to your query ref SCT? My pp level prior to SCT was 44, after SCT it was at 1.9. Stayed that way and has slowly gone up to 2.9. I am not on any medication, and have had one bout of infection since SCT. I am 70 in August, had SCT 18 months ago, feel and look good. Went to USA and Hawaii recently, had several UK holidays! get a bit…[Read more]

Hi Susie, I can see why you are concerned. I am no expert but I would have thought that a pp level of 36 would trigger some form of treatment. I was diagnosed with myeloma with a pp reading of 44, my chemo treatment started, followed by a stem cell transplant. My last pp reading 15 months after stem cell transplant was 2.2 having risen from 1.9.…[Read more]