Good luck with the SCT, had mine at the beginning of February, was in hospital for about 3weeks. Had a rough time for a week, but after that wanted to get out of isolation.Very strange getting home, my wife made sure that all surfaces were cleaned, separate towels, separate bedroom etc very little contact with people for a few weeks. Appetite was…[Read more]

Hi Jackie. Thanks for your reply. Yes I am attending the Leicester Royal Infirmary, currently under the Bone Marrow Unit but expect to be referred back to the haematology unit very soon. The group meets at Helen Webb House. Have you been there, they offer al sorts of services for both the patient and the carer. And yes one of the nurses is Jenny…[Read more]

Hello Jackie, so sorry to read about your mum. I was diagnosed about a year ago with myeloma, I went through a drugs trial and over the past month have just completed a stem cell transplant. It will be about 3 months before we know if the stem cell transplant has been successful or not, so fingers crossed. I can only tell you of my experience,…[Read more]

hello carol, thanks for the welcome, is that a glass of white? if it is, cheers! I guess I've got a way to go, cant explain how I feel at the moment. Never had any serious illness so it takes a bit of getting used to. Takes a bit to get used to the kindness shown by all of those I come into contact with, there are some really dedicated people…[Read more]

Hi, thanks for the welcome, feeling very positive, guess I've got a long way to go yet, stay in touch Tony

Glad you are returning to fitness, long may it continue for you, thanks for the welcome Tony

thanks for the welcome Debs, sounds like you are responding well.

hi outdoors Paul, take it that you enjoy the great outdoors, do you still get out or are you a bit restricted? We used to live in Keswick, what a wonderful place for enjoying the countryside! Hope your treatment shapes up satisfactorily. thanks for the welcome, stay in touch.

oh dear!!!! I had one of those the other night, ended up watching Mad Max 2 on ITV2, dont recommend it, however the tea tasted pretty good! thanks for the welcome

hello Tina, Yes I started the myeloma X1 trial last monday, had a bowl of porridge, then took the tablets with water, included a soluable aspirin and the anti sickness tablets, then took the dog out across the countryside for an hour and half, fell asleep in the afternoon, did the same again today, tuesday. So far no disasterous side effects.…[Read more]

Hello Badger, thanks for the welcome, cant say that I am pleased to be here, but bowled over by the support. started the myelomw X1 trials on monday morning, so far no disasterous side effects, long may it continue.
thanks again for the welcome, tony

Hello Dia, thanks for the welcome, no doubt we will swop stories over the coming months, good luck and thanks, Tony

Jean, thanks for the reply, nice to have support from folk who are going through the same difficulties. wish you the best of luck for Thursday, be positive,Tony

hi Ted, first day with the tablets, I think it was 34 early this morning and one this evening. Less tomorrow. Touch wood , no side effects, I took my dog for a 1 1/2 hour walk in the country this morning, admit to falling asleep in the chair during the 10 oclock news, but thats nothing new. thanks for explaining smoldering myeloma, I hope you just…[Read more]

Thanks for the reply and the welcome to the group, thought I was alone out there for a while, so appreciate the contact

Thanks for the welcome and the reply, I have found the whole site interesting, no doubt will be using it a lot in the future

Thank you, I intend to keep strong, guess there will be days when I am down
appreciate any advice.

Thank you for the advice, it sounds sensible and positive.

Thanks for the welcome, why is there no treatment for smoldering myeloma, and whats different? I am still getting to grips with this. thanks again.