Myeloma Forum | Tony Farquharson | Activity https://forum.myeloma.org.uk/members/tonyf/activity/ Activity feed for Tony Farquharson. Wed, 15 Apr 2026 07:25:06 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 93f6b1609abaaefb1dccf89c0b0d6ef0 Tony Farquharson replied to the topic Due to have stem cell transplant Jan 2018 any advice about getting through it in the forum Treatment https://www.myeloma.org.uk/forums/topic/due-to-have-stem-cell-transplant-jan-2018-any-advice-about-getting-through-it/#post-135808 Sun, 05 Nov 2017 20:24:28 +0000 Hi Rebecca, hope I can keep carrying on for a long time to come!

I find some of the posts both on here and on the Facebook Support page very sad. MM should not have entered EmmaJ’s life at 38 years age, thats not right. The same with many others who post on both sites, they are going through some tough old times.

I know its very scary but there…[Read more]

]]> efcfcf48a5581c25b7c0405396309b45 Tony Farquharson replied to the topic Due to have stem cell transplant Jan 2018 any advice about getting through it in the forum Treatment https://www.myeloma.org.uk/forums/topic/due-to-have-stem-cell-transplant-jan-2018-any-advice-about-getting-through-it/#post-135776 Thu, 02 Nov 2017 19:41:07 +0000 Emma, its not fair that someone so young should have to cope with MM. But age is on your side! You’ve read from Rebecca of her experiences.

I am a lot, lot older than you. In fact I had a second SCT at 72! 18 months down the line I am drug and treatment free, we travel, quite a bit, go to concerts, off to see Queen in London in December, and we…[Read more]

]]> ed3f4304f19523e6673ecba6ceb5f912 Tony Farquharson replied to the topic SCT - Relapse - Revlimid/Dex in the forum Treatment https://www.myeloma.org.uk/forums/topic/sct-relapse-revlimiddex/#post-135382 Mon, 09 Oct 2017 18:36:34 +0100 Peter, thats a very good question, where do the pp levels have to reach before treatment is triggered.

I had my second SCT in March 2016, pps were undetectable for ages, no drugs no treatment, currently they are at 2.6, consultant didn’t seem that bothered, she says that readings below 5 are unreliable! Come back in 3 months time, with a 6 week…[Read more]

]]> 18feab12309b7abae2a37477406d7408 Tony Farquharson replied to the topic Treatment consultation for my mum in the forum Newcomers https://www.myeloma.org.uk/forums/topic/treatment-consultation-for-my-mum/#post-134614 Sun, 13 Aug 2017 18:49:31 +0100 Sarah, maybe this will help.

Why not contact the myeloma nurses at Myeloma UK.

They are very knowledgeable and understanding.

Best of luck

Tony F

]]> 3e99da9101834486769c3cd465b329ff Tony Farquharson replied to the topic 18 month diagnosis in the forum Newcomers https://www.myeloma.org.uk/forums/topic/18-month-diagnosis/#post-133955 Thu, 22 Jun 2017 15:29:12 +0100 Hiya Steve, just read your post, you call yourself leicslad, does that mean you live in Leicestershire. I run the Leicestershire & Rutland  Myeloma Support Group, my email address is:

tony.farquharson@btinternet.com

If I can be of help please email me.

Regards

Tony F

]]> 1684e620a96c8ab4785c3e2d56aa1204 Tony Farquharson replied to the topic P P, s v treatment in the forum General https://www.myeloma.org.uk/forums/topic/p-p-s-v-treatment/#post-133508 Tue, 23 May 2017 19:52:58 +0100 Hi Susie, I had 26 months of no treatment, no drugs after my first SCT. My pp’s never really dropped below 2, when I relapsed they climbed very slowly, got to about 8 before treatment was restarted. Pp’s were reduced to around 2 when I had a second SCT.

Hope the above helps.

Tony F

 

]]> affcd69541b4ec55966d9da33e3d50b1 Tony Farquharson replied to the topic New to the Forum in the forum Newcomers https://www.myeloma.org.uk/forums/topic/new-to-the-forum-2/#post-133317 Mon, 08 May 2017 19:43:07 +0100 Evening Teresa, did I understand from your initial post that Daves brother died of myeloma? Interesting, I didnt think that this disease ran in families. Sounds to me that your GP was very alert and you were given an early diagnosis. Daves initial treatment seems to have worked well if you are being prepared for a stem cell harvest. Hope that all…[Read more]

]]> 7778c6a5eb6fa66035cf3f6de534bbcf Tony Farquharson replied to the topic fruit and veg after stem cell transplant in the forum General https://www.myeloma.org.uk/forums/topic/fruit-and-veg-after-stem-cell-transplant/#post-133198 Thu, 27 Apr 2017 19:35:13 +0100 I had 26 months remission from my first SCT so when I relapsed I was offered a second SCT. After treatment with my pp,s down to 2 I had the second SCT. Managed it quite well and returned home after 14 days, took a while to recover but am now a year down the line, my pp,s are undetectable, officially in remission, no drugs, no treatment, no…[Read more]

]]> 2fabfb7f5b39faeda27f5dbf9de4a2b5 Tony Farquharson replied to the topic New to this - Here's my Dad's story so far in the forum Newcomers https://www.myeloma.org.uk/forums/topic/new-to-this-heres-my-dads-story-so-far/#post-132797 Wed, 29 Mar 2017 18:40:23 +0100 Jimbow…….you must be very proud of your dad, he is certainly a fighter and he deserves a long remission.

wish him the best of luck, and please keep us up to date.

regards

Tony F

 

]]> 03448a7adb1dfcde315e1790e4ab9ca8 Tony Farquharson replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/page/2/#post-132683 Fri, 24 Mar 2017 16:10:17 +0000 Hope all three of you handle your next round of drugs and that they remain effective. I don’t often comment these days, there are times when I need to escape from Facebook Support and discussion forums and try to break away from the word myeloma. Easier said than done.

Pre myeloma days we lived in Keswick, wonderful times, wonderful area, my…[Read more]

]]> b66c507c5902b71e28dd6ace3acd01a8 Tony Farquharson replied to the topic Hi I have Multiple Myeloma and am so scared in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-i-have-multiple-myeloma-and-am-so-scared/#post-131842 Fri, 10 Feb 2017 15:45:40 +0000 Hi Simon, thanks for your message, great job you have! If ever you get to Leicester look me up.

After my first stem cell transplant I was at a really low point, the local cancer centre offered individual relaxation classes, the woman also practiced reiki, after those sessions I was so relaxed about things, amazing. We have just returned from…[Read more]

]]> 0dd3f558daa451042bf1d59c1c8e586b Tony Farquharson replied to the topic Hi I have Multiple Myeloma and am so scared in the forum Newcomers https://www.myeloma.org.uk/forums/topic/hi-i-have-multiple-myeloma-and-am-so-scared/#post-131837 Thu, 09 Feb 2017 20:55:57 +0000 Hi Simon, I guess that I am a lot older than you. I was scared s******s when I was told that I had myeloma, I had never heard of it before and immediately went home and googled it, that made it even worse, I thought that I would not last the year. But I did, I had stem cell transplant number 1, had 26 months with no drugs and no treatment except…[Read more]

]]> a0500cf8dcf48a801644774f253253c8 Tony Farquharson replied to the topic 2nd SCT in the forum Treatment https://www.myeloma.org.uk/forums/topic/2nd-sct-3/#post-131779 Sun, 05 Feb 2017 18:21:03 +0000 Evening, I managed 26 months from my first SCT. Like your husband I managed the first quite well, though was in for 21 days. I had the second in March 2016, was in solitary for 14 days then off home. I think I managed the second one better than the first, maybe I was aware of what was happening and able to deal with the treatment better, though it…[Read more]

]]> fe13c05f3318147c6d2f9c6d4275a597 Tony Farquharson replied to the topic Holiday insurance in the forum General https://www.myeloma.org.uk/forums/topic/holiday-insurance-2/#post-131496 Thu, 12 Jan 2017 18:23:01 +0000 Evening, Myeloma UK produce a leaflet listing many insurance companies that offer travel insurance, I guess you can access through this site.

regards Tony F

 

]]> d68591dcccddb1bbddf9119066bf4497 Tony Farquharson replied to the topic IMMUNISATIONS post SCT - necessary? in the forum General https://www.myeloma.org.uk/forums/topic/immunisations-post-sct-necessary/#post-130459 Mon, 14 Nov 2016 21:00:07 +0000 Evening Sonia, no I don’t understand why two consultants should have differing opinions, it does annoy me, particularly when myeloma uk print literature on the subject.

What part of the country do you live in and which hospital does your husband attend? I live in Leicestershire and attend the Leic Royal Infirmary, I find them superb, under…[Read more]

]]> 4e78859787b785c920938130a7ca5550 Tony Farquharson replied to the topic IMMUNISATIONS post SCT - necessary? in the forum General https://www.myeloma.org.uk/forums/topic/immunisations-post-sct-necessary/#post-130453 Mon, 14 Nov 2016 19:47:19 +0000 Hiya Sonia, I had my second SCT in March this year. I am 72 years age. I had my first SCT 4 years ago, having had 6 months of treatment on the myeloma XI trial. After each SCT  my consultant gave me a pre printed form listing all of the inoculations that I was to have. I have just had the second round, that is 8 months next round due at 12…[Read more]

]]> 2a92cd78c569b3f34679647eec2102f5 Tony Farquharson replied to the topic Just Diagnosed in the forum Newcomers https://www.myeloma.org.uk/forums/topic/just-diagnosed-3/#post-129836 Mon, 03 Oct 2016 22:00:56 +0100 Hiya Taff, sorry to have to welcome you to this “happy band” I think that the bone marrow biopsy is the last test needed to confirm yes or no to myeloma. I attend the Leicester Royal Infirmary, when having a biopsy the patient is given gas and air, so you are as high as a kite and not aware of anything going on, you can but ask!

I like your…[Read more]

]]> d20f87906932ed0abe58ec3272f24d59 Tony Farquharson replied to the topic SCT a right choice ??? in the forum Newcomers https://www.myeloma.org.uk/forums/topic/sct-a-right-choice/#post-129561 Fri, 16 Sep 2016 20:57:39 +0100 Hi Ren, I was in isolation for two weeks following the SCT, was released home, felt really weak and wobbly, had to use a stool in the shower and took ages to do anything, putting socks on was difficult, i found the stairs a bit challenging! It took a few weeks before strength improved, I guess the drugs were clearing my system. I had clinic…[Read more]

]]> ee9c529ba33bdf4251982803e60254f2 Tony Farquharson replied to the topic SCT a right choice ??? in the forum Newcomers https://www.myeloma.org.uk/forums/topic/sct-a-right-choice/#post-129558 Fri, 16 Sep 2016 20:03:42 +0100 Evening Ren, I am 72 and had my second stem cell transplant last March. I had 26 months remission after the first transplant, during that time I took no drugs, had no treatment other than zometa infusions every three months, we lived life to the full, travelled a lot and enjoyed life, we fully intend to do the same again. The proceedure is hard…[Read more]

]]> 00d0b9f42cd3e86d78ac63be9dfe7031 Tony Farquharson replied to the topic Cycle 31 but will there be many more? in the forum Treatment https://www.myeloma.org.uk/forums/topic/cycle-31-but-will-there-be-many-more/#post-128066 Tue, 24 May 2016 11:28:04 +0100 Hi Andy, I didn’t know you got vitamin D in beer, perhaps Euro beer is different from bitter!
Enjoy it mate, I’m not envious at all!
regards
Tony F

]]> b38cab38d7954ea456b29524c15bd14f Tony Farquharson replied to the topic Blue Badge in the forum General https://www.myeloma.org.uk/forums/topic/blue-badge-2/#post-127804 Sun, 01 May 2016 12:50:48 +0100 HI, as Jeff says contact Macmillan they will help you to complete the necessary paperwork. In my case Leicester CC received the completed form, phoned me and we did the payments over the phone. Cost was £10 for 3 years
Regards
Tony F

]]> 9cf70cc953c881de8bbe185f072ec658 Tony Farquharson replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/newly-diagnosed-with-mgus/#post-127643 Sat, 16 Apr 2016 19:54:56 +0100 Hi jaylo, I reread your first post and realised you are new to myeloma. Sorry to have to welcome you here, it’s a place that we don’t want to be! You must have noticed that there is a wealth of experience here and everyone is willing to help. You may find that there is also a myeloma support group in your area, worth giving Myeloma UK a call. Hope…[Read more]

]]> d1855240603220d74375e421ba33e3f2 Tony Farquharson replied to the topic Newly diagnosed with MGUS in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/newly-diagnosed-with-mgus/#post-127641 Sat, 16 Apr 2016 13:30:56 +0100 Hi jaylo, I think that if I was in your shoes I would ask your GP to refer you to the haematology department, I would much prefer to be under the care of a consultant than a GP. Nothing against GP’s mine is a treasure but if anything goes wrong you have immediate access to the treatments available, plus, the consultants and the specialist nurses…[Read more]

]]> cbe45d0071a43d52ada973c2e91e863a Tony Farquharson replied to the topic Medical insurance in the forum Off topic https://www.myeloma.org.uk/forums/topic/medical-insurance/#post-127046 Tue, 01 Mar 2016 20:03:33 +0000 Hi cuilmoss, like Annlynn our insurance is via a bank account with the coop, but my guess is that they would not insure you.
Other option would be to check the Myeloma UK info sheet on travel insurance (its on the Myeloma web site) and contact some of the companies listed there. I have heard good reports of a company called nowicantravel.
Best of…[Read more]

]]> b9391d1ea604746ac36b3df10400fa20 Tony Farquharson replied to the topic Blood test in the forum General https://www.myeloma.org.uk/forums/topic/blood-test/#post-127045 Tue, 01 Mar 2016 19:57:02 +0000 Hiya shellbee, I’m no expert on any of the problems that you mentioned, but my diagnosis was determined from a simple blood test that measured the amount of paraprotien in the blood. Why not tell the GP of your worries re myeloma, ask if it is possible that you could have myeloma and ask for one of those blood tests to be done.
Best of luck, would…[Read more]

]]> b14f577ee88bce6b1b2d953376877b3b Tony Farquharson replied to the topic Allow me to introduce myself.. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/allow-me-to-introduce-myself/#post-127044 Tue, 01 Mar 2016 19:46:22 +0000 Hi Lorraine, sorry that you have had to join us. There is a wealth of knowledge on this forum. Im now 71, was diagnosed 4 years ago, was on the Myeloma X1 trial, had a stem cell transplant, was off all drugs for just over 2 years when I relapsed. the first treatment I had was velcade, thalid, and dex. The thalidomide really laid me very low and…[Read more]

]]> 241045ca3ba8eae494a0c2276132763a Tony Farquharson replied to the topic Carfilzomib administration in the forum Treatment https://www.myeloma.org.uk/forums/topic/carfilzomib-administration/#post-125729 Wed, 13 Jan 2016 19:39:19 +0000 Oh yes, I stopped smoking 35 years ago with the aid of hypnosis, I should go for it again.
In the meantime another pre velcade blood test beckons me for tomorrow, ugh!
Tony F

]]> 09f148a33762621bc3b3c8fe56d79556 Tony Farquharson replied to the topic Hello smoulderers in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/hello-smoulderers/#post-125669 Sat, 09 Jan 2016 15:53:44 +0000 Hiya Geebee, welcome to the club that no one truthfully wants to join!
I was just reading through the posts and noticed you had posted.
I am not smouldering but am going through the whole process, on my last round of drug treatment prior to a second stem cell transplant.
As you probably know they are a great bunch on here, also many of the guys…[Read more]

]]> e1bf9e90a37c96de899ed790ac7dfee7 Tony Farquharson replied to the topic Carfilzomib administration in the forum Treatment https://www.myeloma.org.uk/forums/topic/carfilzomib-administration/#post-125668 Sat, 09 Jan 2016 15:46:25 +0000 Hi Sue, that it.
You know if i was in your position I would still go for the myeloma X1 trial regardless of which combination you get.
My pp reading at the start of my myeloma X1 trial was 44 by the end of the trial it was at 7, so that gave the SCT team a real good base at which to start.
If you can grin and bear the needles it will be worth…[Read more]

]]> 43bf7434e4e47322f959b87200a197e7 Tony Farquharson replied to the topic Carfilzomib administration in the forum Treatment https://www.myeloma.org.uk/forums/topic/carfilzomib-administration/#post-125657 Fri, 08 Jan 2016 18:26:24 +0000 Hiya suenev.
I am terrified of needles!!!!!
I was diagnosed 4 years ago with mm, I was randomised and put onto the Myeloma X1 trial. It is an all tablet drug trial, I had a monthly blood test to monitor the pp’s etc. Occasionally when attending clinic an additional blood sample was requested for the trials people to monitor progress. I don’t think…[Read more]

]]> 1bbeddd2905a370afc1c0db537576a5c Tony Farquharson started the topic Thank you.. in the forum Off topic https://www.myeloma.org.uk/forums/topic/thank-you-2/ Thu, 31 Dec 2015 19:47:18 +0000 hello Myeloma ‘buddies’ just in case you don’t read messages on Facebook I thought I would put a comment on here as well…..
I would like to say a very big thank you to all at Myeloma UK for all of the work that they do on our behalf, many, many thanks.
A big thank you to all of our carers, who often are the unsung heroes and heroins who quietly…[Read more]

]]> 33f0be4d13a6aa46afeb8175cfaa797d Tony Farquharson replied to the topic 4th Anniversary - where to next? in the forum General https://www.myeloma.org.uk/forums/topic/4th-anniversary-where-to-next/page/4/#post-125545 Thu, 24 Dec 2015 14:57:46 +0000 Hiya Jan, funny, so many households are similar. We’ve decided that health issues will take priority. At the moment,our number 2 son has recently had a foot operation, so he’s on crutches, his son, age 3 gets every cold imaginable, brother in law has smoldering waldenstroms! daughter is having her first baby early march, but has sticky blood so is…[Read more]

]]> 21806d2a8376ca165f346253ab1200d9 Tony Farquharson replied to the topic After the transplant... in the forum Carers http://www.myeloma.org.uk/forums/topic/after-the-transplant/#post-124615 Thu, 15 Oct 2015 09:35:18 +0100 Jules, you seem to be going through a lot of emotions at the moment, no one in our situation should have to do that!
Why not contact Macmillan, they are very sympathetic and very capable of giving good sound advice, particularly how to access financial support and carer support.In the past we have found them to be very helpful.
Wish you all the…[Read more]

]]> b795b1d5a289cdb19c9c7b259d497286 Tony Farquharson replied to the topic After the transplant... in the forum Carers http://www.myeloma.org.uk/forums/topic/after-the-transplant/#post-124609 Wed, 14 Oct 2015 19:16:52 +0100 Evening Mojo, I was 68 when I had my SCT. I live in Leicestershire and attend the Royal Infirmary. I was in hospital for three weeks during the SCT, Returning home was very strange and unnerving, guess I was institutionalised! My wife is my carer, and although I am very active and do as much as I can for myself I did find that I was reliant upon…[Read more]

]]> a41606d67d525ad8de02290b344ccc5e Tony Farquharson replied to the topic What a fourth myeloma anniversary in the forum General http://www.myeloma.org.uk/forums/topic/what-a-fourth-myeloma-anniversary/#post-124562 Thu, 08 Oct 2015 20:22:00 +0100 Welcome back Andy, you’ve certainly been through the mill, did not realise how seriously ill you really were.
Hope you continue to improve, take it one day at a time, you will get there.
Thinking of you, best of luck.
Tony F

]]> 99a92b312b09d8003fd6fa40f28b3174 Tony Farquharson replied to the topic SCT SIDE EFFECT in the forum Treatment https://www.myeloma.org.uk/forums/topic/sct-side-effect/#post-123698 Thu, 20 Aug 2015 21:19:05 +0100 Hi Simon, yes, I found that I had dry skin on face around ears etc tried all sorts creams, but Boots no7 for men worked really well. A good hand cream for hands and forearms and a good body lotion for elsewhere!
Hope this helps.
Tony F

]]> daf72641b13d266b69991a2594a41035 Tony Farquharson replied to the topic Pessimistic Consultant ? in the forum Treatment https://www.myeloma.org.uk/forums/topic/pessimistic-consultant/#post-123697 Thu, 20 Aug 2015 21:13:31 +0100 Hiya Peter, I tend to agree with Annette, listen to the haematologist. I was diagnosed at 67, had a stem cell transplant at 68. Had 26 months completely free of drugs, travelled to USA, Hawaii, Spain, Greece and over the UK. Lived life as one should! my pp’s were at 9 when I relapsed. My age now 71. I have just started on velcade, dexamethasone…[Read more]

]]> c1645aa8d4c76c3c67140fa8154a723c Tony Farquharson replied to the topic Colin in the forum General https://www.myeloma.org.uk/forums/topic/colin/#post-123586 Sun, 16 Aug 2015 20:33:25 +0100 Vicky, so sorry to hear your sad news, our thoughts are with you and your family at this time.
Tony F

]]> c0433ea1e55ac17b6731eb19621cf3e2 Tony Farquharson replied to the topic Thalidomide side effects - how long do they last? in the forum Side-effects https://www.myeloma.org.uk/forums/topic/thalidomide-side-effects-how-long-do-they-last/#post-123132 Sat, 18 Jul 2015 21:25:16 +0100 Hi lej13, sorry to read that your dad is having problems with his treatment. I am on velcade, dexamethasone and thalidomide, I wonder if the pins and needles could be neuropathy, in which case you do need to talk to the consultant and have the dosage changed or the drugs changed for something which dad finds more acceptable. First thing Monday I…[Read more]

]]> 465974741fe8ea6c024d7fcc07f11bb6 Tony Farquharson replied to the topic Dexamethasone - hoarse voice ? in the forum Side-effects https://www.myeloma.org.uk/forums/topic/dexamethasone-hoarse-voice/#post-123093 Thu, 16 Jul 2015 17:21:21 +0100 Hi, yes seems a permanent problem. Not really a hoarse voice more strained, still odd.
Had an appointment with consultant today, she feels that the voice problem is the Dex! discussed feeling wiped out, not the drugs, seems that I have an infection, so have 5 days of antibiotics.
Regards
Tony F

]]> 13f1248f16ebb0fbdf04a64968913c9e Tony Farquharson replied to the topic Dexamethasone - hoarse voice ? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dexamethasone-hoarse-voice/#post-123088 Wed, 15 Jul 2015 21:53:59 +0100 I’m on velcade, dex and thalidomide, two weeks on, one week off, and I have the same voice probs. This is my week off drugs and I am absolutely wiped out.
Reckon dex has a lot to answer for!
Regards
Tony F

]]> 64b4d7aa0176355c9a5d3628ce84764c Tony Farquharson replied to the topic GP letters in the forum General https://www.myeloma.org.uk/forums/topic/gp-letters/#post-123080 Wed, 15 Jul 2015 12:09:34 +0100 I think that you should be receiving a copy of the consultants letter as a matter of course. Mine normally take about 12/14 days after appointment to arrive, always have done.
Don’t be paranoid, you’ve got enough to worry about!
Hope you can sort it out.
Regards
Tony F

]]> 6e4b06558245b4aa4fef13977541527a Tony Farquharson replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/3/#post-123023 Sat, 11 Jul 2015 21:35:08 +0100 Hey, congratulations you two. What took you so long Colin?
Best of luck.

]]> c533840f02dd2cb462db8c9d82e5ce44 Tony Farquharson replied to the topic London to Brighton cycle ride in the forum Off topic http://www.myeloma.org.uk/forums/topic/london-to-brighton-cycle-ride/#post-122930 Fri, 03 Jul 2015 19:46:45 +0100 Hiya Vinni, looks like you had a great birthday bash, your mates look as though they enjoyed themselves as well. Hope the weekend took your mind off things!
Well done on raising £400 that’s really good, you’ve got some very generous family and mates.
See you soon
Tony F

]]> 4f57b17bfc56f5d1bb0f01dde1027267 Tony Farquharson replied to the topic medication after transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/medication-after-transplant/#post-122826 Sun, 28 Jun 2015 19:33:48 +0100 Hi Brian, following my SCT I was on antibiotics for three months. Then I was stopped. I opted not to go on maintenance drugs and was completely free of drugs for about 26/27 months.
just to cheer you up a bit has your consultant told you that after SCT you will have to have your baby injections again! I never thought about that but the chemo prior…[Read more]

]]> 5cfd7e56840de0dface41644281804cd Tony Farquharson replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/#post-122811 Sat, 27 Jun 2015 12:47:29 +0100 Vicki, I am so so sorry to read your post, as Helen said I think that we all dread hearing what you have both been told. I truly hope that you can get Colin home to familiar surroundings. My thoughts and prayers to you both.
Regards
Tony F

]]> f86f25b03da5fcaf45333dd7c284a2aa Tony Farquharson replied to the topic London to Brighton cycle ride in the forum Off topic http://www.myeloma.org.uk/forums/topic/london-to-brighton-cycle-ride/#post-122752 Wed, 24 Jun 2015 21:08:32 +0100 Hiya Maureen, I was really pleased for Lawrie, he really wanted to do something for Myeloma, he did well.
How are you guys doing? I don’t get onto the forum too much seem to be very busy, we restarted a support group in Leicester at the beginning of the year, it seems to be taking up lots of our time.
As for me, I had my SCT just under 30 months…[Read more]

]]> 8e149c5a914e4c4b3bac67f81069a257 Tony Farquharson started the topic London to Brighton cycle ride in the forum Off topic http://www.myeloma.org.uk/forums/topic/london-to-brighton-cycle-ride/ Mon, 22 Jun 2015 19:04:37 +0100 Yesterday my son in law completed the London to Brighton cycle ride, in doing so he raised £2500 for Myeloma UK.
Well done Lawrie and many thanks for all the effort and training.

]]> 825a9f4d103d0c7cff2980198d071076 Tony Farquharson replied to the topic SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-4/#post-122112 Mon, 11 May 2015 19:16:19 +0100 Ian, I hope that all goes well with your SCT. You ve certainly had a long wait for this moment, let’s hope that it gives you a long remission.
I guess over the years you have read all about SCT, it isn’t a cake walk but you are a tough guy, going through all you have been through over the past few years.
I wish you all the very best.
Regards
Tony F

]]> d66fff48da7e433b94f6507cb54b59aa Tony Farquharson replied to the topic Bone marrow biopsy in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/bone-marrow-biopsy-3/#post-122053 Mon, 04 May 2015 21:27:35 +0100 Joe, pleased that you got through your tests okay.
To everyone, I can’t believe the differences in the way that hospitals approach a bone marrow biopsy. I attend the Leicester Royal Infirmary, in doing a BMB it is standard practice to give a local anaesthetic and to give gas and air. It really does help, it seems that I have particularly hard…[Read more]

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