Kazzam2 started the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 3 months ago
Hi all,
just been for my bloods prior to my 3 month check and Zometta on Thursday, just to share the feeling of dread and what if’s. Yesterday was 19th months since SCT, I am well (apart from ongoing back pain, and a sore on back that won’t heal), but knowing how quickly thisawful thing can change can get one down sometimes!
So now I have said my…[Read more]
Kazzam2 replied to the topic Baby Injections. in the forum Off topic 10 years, 4 months ago
Hi again Tony, I am on the trial too, and go up to the Hope clinic, I agree it is much better, and seem to get seen to much quicker! One day we may bump into each other again. I know what you mean about getting tired. Keep well.
Karen x
Kazzam2 replied to the topic Baby Injections. in the forum Off topic 10 years, 4 months ago
ps, sorry I typed in the tag box, hope I have no mucked up your thread! K x
Kazzam2 replied to the topic Baby Injections. in the forum Off topic 10 years, 4 months ago
Hi Tony, I am 19 months post SCT, I had my last baby injections at begining of July, and I am on 3 monthly clinic visits, mine is 14th August. So we are pretty much the same stage. I still have morphine for back, and 6 weekly Zometta. But I drove for the first time since diagnosis the other day! There are more positives than negatives post SCT…[Read more]
Kazzam2 and 
kp are now friends 10 years, 4 months ago
Kazzam2 and 
dickb are now friends 10 years, 4 months ago
Kazzam2 replied to the topic High Myeloma Incidence in the forum Off topic 10 years, 4 months ago
Hi All, not been on for a while and have only just stumbled on this. Very interesting! I live in Oakham, 9 miles (ish) from Melton Mowbray. We live a 2 minute walk from a plastic engineering factory. Twenty years ago I worked for 5 years (North West of England) for Nuclear Electric, catering for workers, labs etc. So I could take my pick from a…[Read more]
davefletcher and Kazzam2 are now friends 10 years, 4 months ago
Hi Karen, thanks for your welcome to the site it really helps reading other stories. Its a bit daunting I am smouldering at the minute I have had steroids for pain in my legs .I had a second bone marrow biopsy and was told that 60% of my marrow was effected anemia levels are down to 11.2 they have told me to expect treatment within the next 6…[Read more]
davefletcher and 
andyg are now friends 10 years, 4 months ago
davefletcher posted an update 10 years, 4 months ago
Hi All
I am new to this forum just trying to get my head around forum and myeloma , Reading all your posts. so much to learn and take in as every case is different.
davefletcher and 
tonyf are now friends 10 years, 4 months ago
davefletcher and kp are now friends 10 years, 4 months ago
davefletcher posted an update 10 years, 4 months ago
hi I have recently being diagnosed with myeloma, I have had steroids for bone pain in my legs and arms, but doctor was not sure if the pain was due to myeloma I get tired a lot more than I used to and have had a couple of chest infections, I had a mri scan on my legs that came back clear, just had a blood test and my anemia was low again. just…[Read more]
Kazzam2 replied to the topic Living with myeloma book: your hints and tips in the forum General 10 years, 7 months ago
Hi Richard, thanks for your reply. Another couple of tips in your reply about attitude and there being no point in feeling guilty. Your are right, but easier said than done sometimes eh?
Also rereading your earlier post, I must also make a point of remaining anonymous.
Regards
Karen
Kazzam2 replied to the topic Living with myeloma book: your hints and tips in the forum General 10 years, 7 months ago
Hi LoisLobann and all. I have not been on for a while so I have only just noticed this. I totally identify with Alpenator’s words about realising this is it, never going to get the old me back. And of feeling guilty, I too feel very very guilty I have inflicted this on my husband, and daughters, they do not deserve it. I am also on a lot of…[Read more]
Kazzam2 posted an update 10 years, 11 months ago
@KarenHemmings Good morning all! 😉 I am finding this new website hard to navigate/get used to 🙁
Kazzam2 and 
Michele are now friends 10 years, 11 months ago
Kazzam2 replied to the topic It's Back in the forum Treatment 10 years, 11 months ago
Hi Tom,
So sorry to hear this, you are always so positive and I am sure your approach to this dreadful MM, will have you back in remission in no time xx 😉
Thinking of you, good luck
Love and best wishes
Karen
xx
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Mavis,Tom and Eve,
Thank you all for lovely welcome. I am still finding my way around, but I kep popping back on, which is a good sign!:-)
The sun is out today, which always make one feel better.
hope all is well will you all today.
Karen xx
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Tony,
Just spotted this!
have to quickly reply and agree the staff are great!:-)
take care
Karen
x
