Thankyou for all your replies. Things have deteriorated I’m afraid. After a week in hospital with a chest infection Chris began on Rivlimid followed by 40mg steroid. On this 2 weeks & rushed in with temp of 38.8. But his body has erupted in a massive angry rash… Everywhere! And I mean everywhere. They think it’s reaction to Rivlimid but not…[Read more]

Thanks Avril. Chris had to have the tumour removed as it was pressing on his spinal chord which would have severed it had he not had the op. He had radiotherapy following that & a bone marrow biopsy which showed very low light chains. He has then been tested every 3, then 6 months for MGUS etc & had no sign of Myloma for nearly 4 years, then here…[Read more]