[vchellsParticipant]

Thankyou for all your replies. Things have deteriorated I’m afraid. After a week in hospital with a chest infection Chris began on Rivlimid followed by 40mg steroid. On this 2 weeks & rushed in with temp of 38.8. But his body has erupted in a massive angry rash… Everywhere! And I mean everywhere. They think it’s reaction to Rivlimid but not positive as yet. Also shadow on lung which we are hoping is only (!) the infection. Very scary & he’s very ill. However consultant talking about next steps when he’s out! At last count his light chain assay had jumped from 400 to 1800 in about 3 weeks!

[vchellsParticipant]

Thanks Avril. Chris had to have the tumour removed as it was pressing on his spinal chord which would have severed it had he not had the op. He had radiotherapy following that & a bone marrow biopsy which showed very low light chains. He has then been tested every 3, then 6 months for MGUS etc & had no sign of Myloma for nearly 4 years, then here it is! Thanks for the reassurance that thalidomide is probably the cause…. I’ll post an update on Friday following his next visit to the Haematologist

[Author]

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