vicki66 replied to the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS 7 years, 5 months ago
Thanks Rachel. Its so hard to get answers anywhere, I have been going round and round for 3 years. The best advice I can give you is find a good haematologist, the first one I saw was awful. I have lots of symptoms, so if you get any, tell them. I wish they had been quicker to do things but thats the NHS, they just cant do anything faster. I also…[Read more]
vicki66 started the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS 7 years, 5 months ago
I have just had PET/CT scan results and the consultant told me that there was something in my bone marrow and my left ovary and he said he wanted to do a bone biopsy and another scan on my ovary. I know the ovary can be a cyst or other things but can something in my bone marrow be Myeloma or cancer or are there any other things.
I have a IgG of…[Read more]
vicki66 started the topic IgG found in spinal fluid and blood after lumber puncture is this normal? in the forum General 7 years, 7 months ago
I am 50 and female, I was diagnosed with MGUS 18 months ago with IgG of 2g/l Lambda paraprotein present in the mid/slow gamma region, it has gone up now at 5 g/l
I have shooting pains and weakness in my legs (started 2 years ago), a pain like a stitch in my groin that is there all the time and hurts to touch (scan showed nothing), right side and…[Read more]
vicki66 replied to the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
I have sorted it out now 🙂
vicki66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot, they ache about 60% of the day with the odd sharp pain that takes my breath away
I have a condition called cold urticaria that developed last…[Read more]
vicki66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot. (I had some great advise when I first posted on here a while go, but now need some more please)
After finding free light chains in my blood, a…[Read more]
vicki66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
<span style=”color: #000000; font-family: ‘Helvetica Neue’, Arial, Helvetica, sans-serif; font-size: 14px; line-height: normal;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot. (I had some…[Read more]
vicki66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
<span style=”color: #000000; font-family: ‘Helvetica Neue’, Arial, Helvetica, sans-serif; font-size: 14px; line-height: normal;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot. (I had some…[Read more]
vicki66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
<span style=”color: #000000; font-family: ‘Helvetica Neue’, Arial, Helvetica, sans-serif; font-size: 14px; line-height: normal;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot with a dull ache…[Read more]
vicki66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS 9 years ago
<span style=”font-family: Arial, Helvetica; font-size: 12px; line-height: 17px; background-color: #f7f7f7;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on with my blood results. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot, about 60% of…[Read more]
vicki66‘s profile was updated 9 years ago
vicki66 became a registered member 9 years, 1 month ago