Myeloma Forum | vix66 | Activity https://forum.myeloma.org.uk/members/vicki66/activity/ Activity feed for vix66. Tue, 21 Apr 2026 07:33:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 390146e4f45bd960bc0067617af35460 vix66 replied to the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/petct-scan-shows-hot-spots-on-bone-marrow-and-igg-levels-rising/#post-133748 Fri, 09 Jun 2017 19:10:14 +0100 Thanks Rachel. Its so hard to get answers anywhere, I have been going round and round for 3 years. The best advice I can give you is find a good haematologist, the first one I saw was awful. I have lots of symptoms, so if you get any, tell them. I wish they had been quicker to do things but thats the NHS, they just cant do anything faster. I also…[Read more]

]]> f575d496d8389533c0a80bac5ecd1cba vix66 started the topic Pet/ct scan shows hot spots on bone marrow and IgG levels rising in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/petct-scan-shows-hot-spots-on-bone-marrow-and-igg-levels-rising/ Mon, 05 Jun 2017 22:33:59 +0100 I have just had PET/CT scan results and the consultant told me that there was something in my bone marrow and my left ovary and he said he wanted to do a bone biopsy and another scan on my ovary. I know the ovary can be a cyst or other things but can something in my bone marrow be Myeloma or cancer or are there any other things.

I have a IgG of…[Read more]

]]> 855ae320f8350587ed867d217b476d5a vix66 started the topic IgG found in spinal fluid and blood after lumber puncture is this normal? in the forum General https://www.myeloma.org.uk/forums/topic/igg-found-in-spinal-fluid-and-blood-after-lumber-puncture-is-this-normal/ Sun, 02 Apr 2017 16:49:58 +0100 I am 50 and female, I was diagnosed with MGUS 18 months ago with IgG of 2g/l Lambda paraprotein present in the mid/slow gamma region, it has gone up now at 5 g/l

I have shooting pains and weakness in my legs (started 2 years ago), a pain like a stitch in my groin that is there all the time and hurts to touch (scan showed nothing), right side and…[Read more]

]]> 04b5295b9b01b0247ee44d08d9dac7f1 vix66 replied to the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/#post-124997 Fri, 13 Nov 2015 20:28:33 +0000 I have sorted it out now 🙂

]]> 01ac7f3f189528831a72a7e38e780386 vix66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/ Fri, 13 Nov 2015 19:17:53 +0000 I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot, they ache about 60% of the day with the odd sharp pain that takes my breath away

I have a condition called cold urticaria that developed last…[Read more]

]]> 8c6278355257add03990cf6d4c2ac012 vix66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/ Fri, 13 Nov 2015 19:17:53 +0000 I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot. (I had some great advise when I first posted on here a while go, but now need some more please)

After finding free light chains in my blood, a…[Read more]

]]> a3d9341033f7203832547f4e71df62ed vix66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/ Fri, 13 Nov 2015 19:17:53 +0000 <span style=”color: #000000; font-family: ‘Helvetica Neue’, Arial, Helvetica, sans-serif; font-size: 14px; line-height: normal;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot. (I had some…[Read more]

]]> a3d9341033f7203832547f4e71df62ed vix66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/ Fri, 13 Nov 2015 19:17:53 +0000 <span style=”color: #000000; font-family: ‘Helvetica Neue’, Arial, Helvetica, sans-serif; font-size: 14px; line-height: normal;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot. (I had some…[Read more]

]]> 42ba90207e5a00c239c7fe37cf6df815 vix66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/ Fri, 13 Nov 2015 19:17:53 +0000 <span style=”color: #000000; font-family: ‘Helvetica Neue’, Arial, Helvetica, sans-serif; font-size: 14px; line-height: normal;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot with a dull ache…[Read more]

]]> cb3deb9cfd6ab7133cc359f74972ebfa vix66 started the topic MGUS & auto immune just diagnosed, what next? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/mgus-auto-immune-just-diagnosed-what-next/ Fri, 13 Nov 2015 19:17:53 +0000 <span style=”font-family: Arial, Helvetica; font-size: 12px; line-height: 17px; background-color: #f7f7f7;”>I have not had the greatest experience with doctors lately, in fact ever actually, and I am not sure what is going on with my blood results. I feel pretty ok at the moment but that’s not always the case. My kidneys hurt a lot, about 60% of…[Read more]

]]> 4cc998c35e980878fbec61de82d03305 vicki66's profile was updated https://forum.myeloma.org.uk/activity/p/41890/ Fri, 13 Nov 2015 18:48:16 +0000 0 6265d0adf8cbd3d80338fc888e5f7ac1 vicki66 became a registered member https://forum.myeloma.org.uk/activity/p/41452/ Mon, 19 Oct 2015 20:09:03 +0100 0