Thanks Rachel. Its so hard to get answers anywhere, I have been going round and round for 3 years. The best advice I can give you is find a good haematologist, the first one I saw was awful. I have lots of symptoms, so if you get any, tell them. I wish they had been quicker to do things but thats the NHS, they just cant do anything faster. I also wish I had life insurance and medical insurance, it would have helped a lot (get in there before you are diagnosed with anything). Hindsight is a great thing. Good luck with everything, love Vicki xx
