Good morning, I hope you don?t mind me responding to this topic, it is a question that is asked very commonly and I hope I can clarify some things.

Unlike some other cancers and diseases, like cystic fibrosis or some forms of breast cancer for instance, myeloma is not caused by a single inherited gene. However, people do inherit certain sets…[Read more]

Dear San

I am sorry that you haven?t had any responses to your question as yet. This is probably because Jaundice is a fairly rare side-effect/complication and the other board users may not have any experience of it.

Jaundice (or yellowing of the skin and whites of the eyes) can happen for a number of reasons. Perhaps the most common cause…[Read more]

Dear Domg6

Please drop me a line to askthenurse@myeloma.org.uk or call the Freephone Myeloma Infoline on 0800 980 3332 and I, or my colleagues, will do our best to answer your questions.

With best wishes

Ellen

Good morning everyone.

I have just spoken to Sue and she has asked me to pass on her and Keith?s appreciation for all your kind wishes at this difficult time.

Ellen

I am sorry that, as yet, you haven?t had any responses to your query. I hope you don?t mind me replying. My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

Nose bleeds can occur for several reasons in the general population. For some people, frequent nose bleeds can occur as a result of low platelet levels.…[Read more]

Dear Kim

I am sorry that, as yet, you have had no responses to your query. I hope you don?t mind me replying. My name is Ellen Watters and I am one of the Myeloma Information Specialists at Myeloma UK.

The issue of MGUS and pregnancy is one that has come up before on the Myeloma Infoline, so I have previously asked a number of…[Read more]

Dear Vanessa,
Thank you for posting on the Discussion Forum, I am sorry that you haven?t had many replies. My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I hope that the following clarifies things for you.
An allogeneic transplant involves the use of stem cells from a donor instead of using the patient?s…[Read more]

Hi Helen

Thanks for your message -John too finds the staff at the Daycare Unit- St.Georges very helpful and friendly – it's our 'free week' this week -but thanks for the offer of meeting up. – hope all goes well for you.

Regards Heather

Hi Mavis

Thanks for your advice re back pain – fingers crossed at the moment John hasn't any back pain-but will certainly bear the Pain Clinic in mind – meeting with consultant went ok – John has started his second cycle of Velcade today –

How are you coping after your hip operations – glad your myeloma treatment been successful- do you…[Read more]

Hi Vicki

Thanks for your advice and encouragement – it nice to know that there are people on this site that are so understanding.

John and I are both nervous as to what the consusltant is going to tell us on Monday.

Although I do not know anything about Colin's problem – it seems that you have both struggled for some time but hopefully…[Read more]

Hi Eve

Thanks for your words of encouragement Eve- don't feel so alone knowing there are other people like John and I –

Will ring Ellen when we have seen the consultant on Monday – have done as you suggested – made a note of the symptoms – also making sure John drinks lots of fluids.- will keep in touch and thsnks again.

Regards Heather

Hi Tom

Thanks for your message and words of encouragement – John is an outpatient and is having his treatment twice a week at St.Georges Hospital,London – The staff there are great –

We are seeing the Consultant Monday – will let you know how things are going.

As mentioned to Ted- I have no idea what kind of Myeloma you have but good…[Read more]

Hi Ted

Thanks so much for your message and support – it really helps knowing there are people here willing to help – sorry but I have no idea what
kind of myleoma you have Ted, but wish you luck –

Regards Heather

I'm not a patient but I speak to many patients and their families every day, either on the Myeloma Infoline or via email.

It must be so hard for you being so far from your son, please don't worry about picking up the phone and calling me or Maggie or emailing us. That is absolutely why we are here.

However, we are off after 3pm today until…[Read more]

I wonder if by ?Blood Reap? you mean stem cell harvest? This is a procedure where a patient?s stem cells are collected prior to a stem cell transplant. A stem cell transplant is standard treatment for myeloma patients who are able to tolerate it and is carried out very routinely in the UK.

To read more about the procedure, including harvest,…[Read more]