HI judy,
I also have lambda light-chain myeloma but I am on CDT chemotherapy with a view to stem cell transplant if all goes well. What does your clinic trial CCRD involve?

Hi Jane,
Thank you for sharing your experiences on your posting.That is really encouraging and a boost for all of us.Amazing!
With very best wishes for the future

Wendy

Just to wish you the best for tomorrow.This disease really is sneaky showing up when we least expect it.
I am sure you will have a lot of support from your wife and sons which is very important at this stage.
Keep us posted.

With very best wishes
Wendy

Hi Andy,
Good morning! Thanks for all you information and good advice. I have been drinking my 3 litres a day since before I was diagnosed having read it on one of the websites. Figured it couldn’t do any harm anyway.
I am just starting to feel ‘stunned’ after thalidomide so nothing much will be done today on the intellectual front-so nothing…[Read more]

Hi Nikki,
Hope all goes well for you tomorrow.
I had marrow and bone biopsy a few weeks ago.Plasma cells were 22-25%- not too bad-bones OK on skeletal survey so presume bone biopsy was too(didn’t ask about that).However although consultant said ‘kidneys weren’t too bad’ I was put on CTD and Alpurinol to prevent further damage.
From what I read in…[Read more]

Hi Nikki.
I am also a newcomer to the forum (as of yesterday!) but already have been encouraged with the replies I received.I am 67 yrs old but like yourself considered that I was as fit as I had ever beenI was diagnosed on vague symptoms on of which weight loss but only 5-6 lbs.The query arose in a routine blood test and everything started moving…[Read more]

I am pleased I have started using the forum.It is good to have feedback.Thanks everyone!
I have been diagnosed early -did not have any symptoms to speak of and have felt really well.If not for my astute GP I would still be merrily continuing with life having no idea what was happening until
symptoms appeared at a later stage. As I have only just…[Read more]

Hi David,
Thanks for the welcome. So pleased you are doing well.I feel quite encouraged after reading your experience.
Kind regards’
Wendy