[wendyannParticipant]

HI judy,
I also have lambda light-chain myeloma but I am on CDT chemotherapy with a view to stem cell transplant if all goes well. What does your clinic trial CCRD involve?

[wendyannParticipant]

Hi Jane,
Thank you for sharing your experiences on your posting.That is really encouraging and a boost for all of us.Amazing!
With very best wishes for the future

Wendy

[wendyannParticipant]

Just to wish you the best for tomorrow.This disease really is sneaky showing up when we least expect it.
I am sure you will have a lot of support from your wife and sons which is very important at this stage.
Keep us posted.

With very best wishes
Wendy

[wendyannParticipant]

Hi Andy,
Good morning! Thanks for all you information and good advice. I have been drinking my 3 litres a day since before I was diagnosed having read it on one of the websites. Figured it couldn’t do any harm anyway.
I am just starting to feel ‘stunned’ after thalidomide so nothing much will be done today on the intellectual front-so nothing changing there!
Pleased you mentioned the sweats with steroid- I did wonder what was happening there.
Keep advising us.
Thanks again. Wendy

[wendyannParticipant]

Hi Nikki,
Hope all goes well for you tomorrow.
I had marrow and bone biopsy a few weeks ago.Plasma cells were 22-25%- not too bad-bones OK on skeletal survey so presume bone biopsy was too(didn’t ask about that).However although consultant said ‘kidneys weren’t too bad’ I was put on CTD and Alpurinol to prevent further damage.
From what I read in the forums it seems that the Myeloma specialists have things well in hand,with lots of alternatives to use when the need arises. I think the main thing is to try not to get too depressed about the diagnosis-and hope to carry on a fairly normal life throughout the initial treatment.(Not easy I know-but gets easier after a time)
Anyway, just to say good luck really—–
Kind regards.
Wendy

[wendyannParticipant]

Hi Nikki.
I am also a newcomer to the forum (as of yesterday!) but already have been encouraged with the replies I received.I am 67 yrs old but like yourself considered that I was as fit as I had ever beenI was diagnosed on vague symptoms on of which weight loss but only 5-6 lbs.The query arose in a routine blood test and everything started moving then (back in Feb/March)
I started my first cycle of DTC chemotherapy only yesterday so I am waiting for any side -effects to appear!This should hopefully lead to stem cell transplant at Queen Eliabeth Birmingham when the time is right.
I certainly agree that one should choose any websites to read wisely.There are some which make one’s hair stand on end!
As the others have said keep positive-it’s the only way to go.
With very best wishes.
Wendy

[wendyannParticipant]

I am pleased I have started using the forum.It is good to have feedback.Thanks everyone!
I have been diagnosed early -did not have any symptoms to speak of and have felt really well.If not for my astute GP I would still be merrily continuing with life having no idea what was happening until
symptoms appeared at a later stage. As I have only just begun CTD I expect to feel rough in parts-up to 6 cycles and see what happens then’
I am being treated at the Royal Shrewsbury Hospital O’Connor Haematology unit- approx. 22 miles from here with SCT’s carried out at the Queen Elizabeth,Birmimgham. As far as I can tell from research we seem to be on the right track at the moment-early days yet! I am willing to be part of drug trials and will mention this again when I see my Consultant in a couple of weeks.
Hope to get new readings then-though I expect them to be up rather than down until treatment has some effect.
Thanks again every one-appreciate it!
Wendy

[wendyannParticipant]

Hi David,
Thanks for the welcome. So pleased you are doing well.I feel quite encouraged after reading your experience.
Kind regards’
Wendy

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