Hi all
well I am very pleased to report that according to the radiologist in the multi disciplinary haematology team that reviewed my xrays, apparently there is no difference in the recent xray of my pelvis to the xray taken of my pelvis on diagnosis, the implication being that the recent xray shows old damage, not new damage caused by the return…[Read more]

Hi Blue
welcome to the forum, shame about your relapse. I understand that with the donor transplant if its a reduced intensity one you dont get the same side effects because you are not getting the chemotherapy that causes it. I did a bit of research into it because I was recommended to have one but in the end they couldnt find a fully matched…[Read more]

Great news Michele, good to hear you are doing so well after your transplant, have a great xmas, Im sure you will with that news!

Wendy

Hi Tom

Sorry that you have to start treatment, you will see from all the replies that everyone responds differently to the treatment, has different side effects and the SCT. I had a tough time on treatment which included two cycles of PAD and seemed to be ultra sensitive to everything but I continued to work part time throughout.
My employer…[Read more]

Hi Jo

sorry to hear about your relapse, that must be hard to deal with, but it sounds like your medical team are on it pretty quickly because of the kidney damage. Hope the treatment does the job and take care

Wendy x

Hi Kerry

I cant imagine what Melvin is going through and how distressing and depressing it must be for both of you. I found it difficult enough to deal with the diagnosis of cancer and side effects of the treatment and fortunately did not have any problems with bones caused by myeloma. I really hope that the treatment will continue to reduce…[Read more]

Hi Debbie

sorry to hear about your Dad but you will find a warm welcome here on the forum. Has your Dad actually started CTD yet. I was initially on CTD and was never told to stop driving or report to the DVLA but I found it difficult to drive because I was quite shakey and weak on the treatment and did not want to pass out whilst driving!…[Read more]

Hi Helen

its good to hear your immune system is doing its job in fighting the whooping cough, hope you get over it soon so you can return to enjoying your remission (whoop whoop!!). I am doing fine and touch wood no coughs or colds for a good while now, had a great holiday playing tennis in Corfu a few weeks ago and did the patient experience…[Read more]

Hi Kerry

When I was diagnosed I wasnt told what stage I was ie 1,2 or 3 and didnt know enough about Myeloma at that point to ask. When I found out more about staging I decided I didnt want to know (but worked out I was probably stage 2/stage 3) because it would have only upset me, it makes no difference to the treatment or the outcome as Mavis…[Read more]

Hi Helen

I have only just seen this thread, how terrible to get whooping cough but at least it has been diagnosed now, I am glad you are starting to feel better. Re childhood immunisations I received a letter from my hospital to say I should have them all again after 6 months and I had an autograft. Seems different hospitals have different…[Read more]

Hi Dai
I am sorry to hear about your recent ordeals and I really hope you get to walk your daughter up the aisle this Saturday at her civil partnership ceremony. Knowing how determined you will be to do this, I am sure you will! I dont really know what to say on the technical side of your treatment but Eva has made some useful comments but I…[Read more]

Dear Rachael, I am so sorry to hear of Paul's death, he was such a regular and positive contributor, this is sad news indeed. Thank you for letting us know
Wendy

So sorry to hear the sad news Gill. Im glad that you were able to share one or two moments with him before he slipped away, you were both very brave and now you can start the grieving process. Thank you for your kind words to us, we are all at different stages of our journies.

Wendy

Hi Peter
Good to hear you are doing ok on the CTD. I will be at the Manchester Myeloma Info day and am giving a patient experience talk. Look forward to meeting you.
Wendy

Hi Helen, I certainly did celebrate over the weekend, I made cocktails and cooked dinner for some friends who had supported me through the process and I had afternoon tea and champagne on Sunday!! Still recovering, no balloons though.

thanks all of your for your well wishes and replies. I did hesitate about putting on a good news post because so many of you are going through such difficult times it feels insensitive but I am glad I did because of the positive responses. I think Eve suggested we may have something like they do on myeloma beacom, the US forum, a section for…[Read more]

thanks all and Helen, a belated anniversary/birthday wishes to your new immune system. Mine is on 1st September!

Did you celebrate?

Now onto holiday planning which I have been doing more of since I found out the good news. I cant seem to find anywhere I want to go to that doesnt have risks from maleria, dengue fever,japanese encephalitis in…[Read more]