Myeloma Forum | Wifeof | Activity https://forum.myeloma.org.uk/members/wifeof/activity/ Activity feed for Wifeof. Mon, 20 Apr 2026 15:54:23 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d507c8355666c87f6a1f51df9b81f2cd Wifeof started the topic Viruses in the forum General https://www.myeloma.org.uk/forums/topic/viruses/ Sun, 12 Nov 2017 10:22:39 +0000 I don’t very often post on this forum but I was wondering if anyone has had the same problem as my husband is currently experiencing. He had his second SCT in June this year and it was more challenging this time round then the first time. He seems to be fighting virus after virus at the moment and the hospital can’t find the cause. He had been…[Read more]

]]> 77d78f4b21ec1de6991d5b71df21337b Wifeof replied to the topic Mucositis after Stem Cell Transplant in the forum Treatment https://www.myeloma.org.uk/forums/topic/mucositis-after-stem-cell-transplant/#post-133466 Sat, 20 May 2017 16:44:42 +0100 Hi,

my husband is due to go in for his second sct in June. I did a lot of reading prior to his first one and I got him to suck ice pops whilst the Melphalan was going in and for a little while afterwards. Thankfully he had no trouble with mouth ulcers so we will be repeating the same process again. Hope this helps and good luck

]]> 9f125593d23d02517f6146bfbde5b546 Wifeof started the topic Long Haul Flights in the forum Treatment https://www.myeloma.org.uk/forums/topic/long-haul-flights/ Sat, 11 Feb 2017 14:15:27 +0000 We have a family holiday booked to go and visit my sister in Hong Kong in April.the flights have been booked since last summer. Unfortunately my husband has now relapsed and has started treatment again his regime is Lenalidomide, cyclophosphamide and Dexamethasone. He would of completed 3 cycles when we are due to fly and it would be his week off…[Read more]

]]> 37d28de137af133d856a1637275948fd Wifeof started the topic 2nd SCT in the forum Treatment https://www.myeloma.org.uk/forums/topic/2nd-sct-3/ Sun, 05 Feb 2017 17:45:49 +0000 We have just been told that my husband has relapsed having had a 28th month drug free remission since his 1st transplant. He is going to do 4 cycles of Lenalidomide, cyclophosphamide and dexamethasone. The plan is to do a 2nd transplant in the summer I was wondering if anyone out there could give us an insight into having a 2nd transplant. He got…[Read more]

]]> d328928d49ee9de2e2b5b8fe5949363b Wifeof started the topic Zolendronic Acid infusions in the forum Treatment https://www.myeloma.org.uk/forums/topic/zolendronic-acid-infusions/ Thu, 02 Jun 2016 07:30:46 +0100 Hi,

My husband was diagnosed in January  2014 and since then he has been having monthly infusions of Zolendronic Acid he’s myeloma is the non secretory type so it’s a bit tricky to track. However, we went for our three monthly routine check up yesterday and because his  kidney function was very slightly out of range and as he’s now been having t…[Read more]

]]> 9bddf1caf016a6de456bca0eb07efecc Wifeof replied to the topic Bike Oxford Charity Ride in the forum General http://www.myeloma.org.uk/forums/topic/bike-oxford-charity-ride/#post-123830 Mon, 31 Aug 2015 17:28:13 +0100 Thanks Gill for your kind donation.

I hope everything goes well for your husband over the next few weeks. One bit of advice Lee would give is to suck on ice whilst the melphlan is going in to help avoid mouth sores.

Good luck and many thanks

Suzi

 

]]> 999537551a8bf4ea604a80adfe343651 Wifeof started the topic Bike Oxford Charity Ride in the forum General http://www.myeloma.org.uk/forums/topic/bike-oxford-charity-ride/ Mon, 31 Aug 2015 13:06:21 +0100 Hi

My husband Lee was diagnosed with Non Secretory myeloma in January 2014 he has responded well to both his initial treatment and then an auto SCT.

A team of close friends and family have entered this cycling event including our 13 year old son and 11 year old daughter. We will be cycling either a 50 or 20 mile route rasing money for Myeloma…[Read more]

]]> e804826f212783f6006ac2f2e89d7fa1 Wifeof replied to the topic Non Secretery Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/non-secretery-myeloma/#post-121678 Thu, 09 Apr 2015 19:24:37 +0100 He was in a pretty bad way when diagnosed with several fractured vertebra therefore his calcium and creatinine levels were through the roof and were putting his kidneys under a bit of pressure so to protect them his myeloma team prescribed the Velcade.

]]> bd849653a5550909d6909854a892eaaa Wifeof replied to the topic Non Secretery Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/non-secretery-myeloma/#post-121667 Wed, 08 Apr 2015 16:48:59 +0100 My husband was diagnosed with non secretory myeloma in Jan 2014 he underwent 6 cycles of cybordex followed by a stem cell transplant in September. The way the way his myeloma is tracked is by bone marrow biopsies and PET scans.  He is in complete remission at the moment. Do you or somebody you know have it as I haven’t come across many  people w…[Read more]

]]> b6899599a0e3b4bc51ed46294fc28807 Wifeof replied to the topic Stem cell transplant booked for Sunday 15 February 2015 in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-booked-for-sunday-15-february-2015/#post-120871 Mon, 16 Feb 2015 15:28:36 +0000 Don’t forget those ice lollies they really did the trick.

Good luck keep us posted as other people say it may not be a walk in the park but it is doable.

Suzi

x

]]> d391687531c3a3bddad371a2f024ede6 Wifeof replied to the topic Stem cell transplant booked for Sunday 15 February 2015 in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-booked-for-sunday-15-february-2015/#post-120827 Sat, 14 Feb 2015 11:01:50 +0000 Hi Andrea, my husband had his SCT last September I got him to suck ice pops when he was having his Melphlan infusion and thankfully he had no throat problems at all.  I asked him if there was one thing he would recommend from his experience and it would be this.

Good luck over the coming weeks

Suzi

]]> 1457d8100fa31b482025b203a66876c3 Wifeof started the topic Non Secretory Myeloma in the forum General http://www.myeloma.org.uk/forums/topic/non-secretory-myeloma/ Thu, 18 Dec 2014 21:32:34 +0000 Is there anyone out there with this type of Myeloma? My husband was diagnosed with this type of Myeloma  in January  2014. He had an ASCT in September and the results from a recent bone marrow biopsy and PET scan are very encouraging.

I was wondering how this type of Myeloma is monitored as it isn’t detectable in blood or urine. We spoke to his c…[Read more]

]]> 1d2e363beefdb749589fb1d61d0fc61c Wifeof replied to the topic Stem cell harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-2/#post-116901 Sat, 19 Jul 2014 15:41:30 +0100 Hi Mike,

That weeks going to be a big week for both of you. Lee has his cyclophosphamide priming that day. If you don’t mind me asking what has caused the loss of appetite? Was it the priming? My husband is 55 do you mind me asking how old you are.

You never know you could of been sat next to each other in the day treatment room or in the…[Read more]

]]> b8cf0d5a5b7a9078cb902b686c776e37 Wifeof replied to the topic Stem cell harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-2/#post-116890 Fri, 18 Jul 2014 20:05:16 +0100 Hi Mikex,

My husband is due to start the Harvesting Process 28th July at the JR in Oxford then like you we are over to the Churchill for SCT early September when are you having yours done?

 

]]> f5560de86fcbe3b3cbcb07280afd25da Wifeof replied to the topic A month after SCT and in complete remission! in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-month-after-sct-and-in-complete-remission/#post-116483 Tue, 08 Jul 2014 21:20:25 +0100 Hi Guys,

I’m so glad for you both. You story has given me hope as my husband is about to start the SCT process here’s hoping for an experience like yours.

Have a great break you deserve it.

x

]]> a8de58f0b5d96dbe430fc222de5c5579 Wifeof replied to the topic SCT 1-yr anniversary in the forum General http://www.myeloma.org.uk/forums/topic/sct-1-yr-anniversary/#post-116330 Mon, 30 Jun 2014 15:11:58 +0100 Congratulations on your anniversary.  My husband is about to start the SCT process and I have to say I’m finding it all a bit frightening.

You said that you returned to work part-time after two months, full time after three do you mind me asking what you do? My husband is self-employed mainly office based and I am worried that he is going to…[Read more]

]]> 21cee143d7eeeccf47a9d71d80c7ffb0 Wifeof replied to the topic Day 12 after SCT and Kevin is discharged! Query Neutrophil recovery in the forum Treatment http://www.myeloma.org.uk/forums/topic/day-12-after-sct-and-kevin-is-discharged-query-neutrophil-recovery/#post-116181 Mon, 23 Jun 2014 17:22:48 +0100 Thanks Carol and Nicki, like you say there’s a lot to take on board. I like to try and find out as much as possible where as my husband likes to deal with things in bit size chunks.

He responded  very well to the initial treatment of cybordex with very few side effects so I’m hoping that he gets through this next stage without too many problems.…[Read more]

]]> 67ded666c69b396542f87b3299f799fb Wifeof replied to the topic Day 12 after SCT and Kevin is discharged! Query Neutrophil recovery in the forum Treatment http://www.myeloma.org.uk/forums/topic/day-12-after-sct-and-kevin-is-discharged-query-neutrophil-recovery/#post-116171 Mon, 23 Jun 2014 12:41:08 +0100 Hi,

I’m new to this forum but I have been following Kevin’s story with great interest. My husband was diagnosed This January with non secretory myeloma and has just completed his initial treatment and we are about to embark on the SCT journey. I was wondering how Kevin was doing now you are home after his discharge after only 12 days we were told…[Read more]

]]> 090f255651aef26b9cc7bd941b7e2ebc Wifeof replied to the topic New to forum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-forum-2/#post-113275 Mon, 24 Feb 2014 18:16:32 +0000 Hi Jane,

I am new to this forum as well as myeloma. My husband was diagnosed a month ago and it was a total shock. Reading your story has given me hope that there is life after his diagnosis.

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