Hi Megan

Thanks for your message, how is your husband doing now?

The timings you have given make more sense 🙂 Maybe we misunderstood mum?

It's reassuring to hear you say Phil's appetite wasn't hugely affected, dad will normally eat anything, but the CDT really put him off certain things and it changed sometimes daily what he could or…[Read more]

Just a quick update…..hope you dont mind mum 🙂

We went to see the Consulatant yesterday, and he confirmed the myeloma cells are active again, PP count was 18 so it is on the rise.

He was a bit cagey about giving exact results from Bone marrow biopsy, just said that they visually assess it as well as doing actual counts and he said they…[Read more]

Dad is coming home today 🙂 🙂 🙂

His blood levels have come up to hb 10.4 , wc 2.5, pl 24, neuts 1.91.

They wanted to send him home yesterday but it was just dropped on dad and he didn't feel ready for it. He's a bit apprehensive as he's still got sickness and diarhea.On the upside his taste buds are returning a little, so that might help…[Read more]

Day + 12

Just got back from hospital, dad still not getting any better. His bloods are still down, and he's had 2 lots of platelets but they havn't come up yet. He's having blood transfusion for his iron levels. His neutrphils have been at no value for 6 days now…..shouldn't they start to be coming up now????

Can't help but worry that he…[Read more]

Thanks David, i will try that and take him a shake tomorrow afternoon. Dad has no appetite and says what he does tastes wrong.

Popped to see him for an hour today. He'd managed half a cheese sandwich and half a penguin biscuit. He was awake, although v tired, and just laid and listened to me and mum gabbing away….just like being at home LOL…[Read more]

Thanks Mavis, before the Myeloma my dad ate like a horse, so it's awful to see like this.

Well Day + 5 today.
His diarhea has got lot worse, and he has had to start wearing incontinence pants 🙁 He feels so ashamed about it, and embarressed that the nurses have to clean up after him. He still on immodium every 4 hrs, and last night he was…[Read more]

Day 1
Been to see dad this aft. He's managed to have a slice of toast and some rice pudding, but is still feeling really nauseaus and keeps having bouts of gaggin/retching but brings nothing up. Diarrhea has kicked and they gave him some Immodium, so fingers crossed that starts to work. They put him back on a drip, beacause of the diarrhea and…[Read more]

3am and not sleeping, brain will now not turn off! Know i shouldn't dwell on it, but dad has suffered with depression for as long as i can remember. When he was first diagnosed my initial thought was his depression would return, and that scraed me more than the myelom. If this triggered his depression there was a strong possibility he would just…[Read more]

After a bath and tea, my brain has kicked in.

Roughly how will it go day by day? When will dad likely be at his worst and when roughly will he start to feel a bit better (or less s**t!)?

Thanks to for all your replies, i'm a sponge for any bit of insight i can get at the moment, it's the best way i feel i can help apart from just being there for my mum and dad.

I saw dad yesterday just before the chemo was given. He seemed quite up but i could tell he was scared witless 🙁 The isolation room was HUGE, and he looked like a…[Read more]

Hi Only me

My dad went in for his SCT yesterday, and he starts his chemo today, so we are only a little way behind you. I popped on here to have a bit of a cath up on the reality of SCT, as i'd rather expect the wosrt. I think my mum is unprepared for how tough it will be on dad.

I just wanted to say hang in there, and i pray that your mum…[Read more]

The community McMillan nurse had said dad could reduce his diazepam to 1/day from 2/day as his back pain was much better. Dad didn?t like the constant drowsiness from it, and doesn?t like taking pills if [b]HE[/b] doesn?t think he needs them?..(typical man! ? ). It was after this that he struggled to sleep, the consultant told him in no uncertain…[Read more]

Hi Tom

Dad appears to be going the same way with his CDT, he's getting weaker too. He's not been able to work since March, and we're working through trying to get him DLA and something else but can't rememebr what it is now. He struggling to sleep, despite being absolutlely exhasuted….any tips???? Will this be the evil Dex at work??? He got…[Read more]

Thanks Eve

I'm hope that's the case for dad, although he's been feeling poorly with this first cycle, but it's not been nearly as bad as i expected when i thought about him having chemo. He said something similar himself, which is reassuring, cos i think he was very scared about starting the CDT. He's just super tired at the moment, and back to…[Read more]

Time for a quick update…..

Dad is coming to the end of his first 21 day cycle of CDT, and is back at the hopsital on Wednesday for his tests. I'm trying not to think about it, as i don't know what to expect. DOn't want to get hope's up and then see nothing! Do you normally see improvements in levels after 1 cycle???

His pain was managable…[Read more]

Christin
I'm so sorry to hear your news. I'm 32 and my dad (60) was diagnosed with MM 5 weeks ago too. As a family we're still struggling to come to terms with it, and have good and bad days, but it sounds like you're a very close family and are giving each other lots of support. Dad started CDT and is nearly at the end of his 1st 21 day cycle.…[Read more]

Thank you for all your replies and words of encouragement. I told mum and dad that i had been on this site and passed on all your positivity and support. Dad is computer phobic, but my mum has discovered the www over recent years so i expect she'll be on here at some point.

Jo & Eliz it's great to hear that you're in complete remission, and…[Read more]