Myeloma Forum | VickiWilburn | Activity https://forum.myeloma.org.uk/members/willywinki/activity/ Activity feed for VickiWilburn. Sun, 19 Apr 2026 15:05:58 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 96857d388ee738c114264e4aab400c67 VickiWilburn replied to the topic Bone Marrow Biopsy in the forum General http://www.myeloma.org.uk/forums/topic/bone-marrow-biopsy1361481336#post-94479 Thu, 28 Feb 2013 15:51:15 +0000 Hi Megan

Thanks for your message, how is your husband doing now?

The timings you have given make more sense 🙂 Maybe we misunderstood mum?

It's reassuring to hear you say Phil's appetite wasn't hugely affected, dad will normally eat anything, but the CDT really put him off certain things and it changed sometimes daily what he could or…[Read more]

]]> b4e2c4b71cb83748e0c3254e812838b9 VickiWilburn replied to the topic Bone Marrow Biopsy in the forum General http://www.myeloma.org.uk/forums/topic/bone-marrow-biopsy1361481336#post-94476 Thu, 28 Feb 2013 13:03:00 +0000 Just a quick update…..hope you dont mind mum 🙂

We went to see the Consulatant yesterday, and he confirmed the myeloma cells are active again, PP count was 18 so it is on the rise.

He was a bit cagey about giving exact results from Bone marrow biopsy, just said that they visually assess it as well as doing actual counts and he said they…[Read more]

]]> a4b2f0028275d4da9859513cbc18c702 VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks/page/2/#post-98567 Fri, 16 Dec 2011 09:09:43 +0000 Dad is coming home today 🙂 🙂 🙂

His blood levels have come up to hb 10.4 , wc 2.5, pl 24, neuts 1.91.

They wanted to send him home yesterday but it was just dropped on dad and he didn't feel ready for it. He's a bit apprehensive as he's still got sickness and diarhea.On the upside his taste buds are returning a little, so that might help…[Read more]

]]> cbe44408316558d5379e7a0fa3662906 VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks#post-98549 Mon, 12 Dec 2011 19:41:55 +0000 Day + 12

Just got back from hospital, dad still not getting any better. His bloods are still down, and he's had 2 lots of platelets but they havn't come up yet. He's having blood transfusion for his iron levels. His neutrphils have been at no value for 6 days now…..shouldn't they start to be coming up now????

Can't help but worry that he…[Read more]

]]> b7fbe537b05367ff828ac0422f487a23 VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks/page/2/#post-98565 Tue, 06 Dec 2011 21:38:20 +0000 Thanks David, i will try that and take him a shake tomorrow afternoon. Dad has no appetite and says what he does tastes wrong.

Popped to see him for an hour today. He'd managed half a cheese sandwich and half a penguin biscuit. He was awake, although v tired, and just laid and listened to me and mum gabbing away….just like being at home LOL…[Read more]

]]> 370f88d6917f1c0d6c2173eebcb6056e VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks/page/2/#post-98563 Tue, 06 Dec 2011 12:00:58 +0000 Thanks Mavis, before the Myeloma my dad ate like a horse, so it's awful to see like this.

Well Day + 5 today.
His diarhea has got lot worse, and he has had to start wearing incontinence pants 🙁 He feels so ashamed about it, and embarressed that the nurses have to clean up after him. He still on immodium every 4 hrs, and last night he was…[Read more]

]]> 2e7db5c26a5c3a1009fdd5f03ad766ed VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks#post-98561 Fri, 02 Dec 2011 16:57:49 +0000 Day 1
Been to see dad this aft. He's managed to have a slice of toast and some rice pudding, but is still feeling really nauseaus and keeps having bouts of gaggin/retching but brings nothing up. Diarrhea has kicked and they gave him some Immodium, so fingers crossed that starts to work. They put him back on a drip, beacause of the diarrhea and…[Read more]

]]> ab25bd54c5e4a54ba10212a149f65dad VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks#post-98560 Fri, 02 Dec 2011 03:42:04 +0000 3am and not sleeping, brain will now not turn off! Know i shouldn't dwell on it, but dad has suffered with depression for as long as i can remember. When he was first diagnosed my initial thought was his depression would return, and that scraed me more than the myelom. If this triggered his depression there was a strong possibility he would just…[Read more]

]]> 419602651e60c49517047b0e7912631b VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks#post-98557 Thu, 01 Dec 2011 19:51:34 +0000 After a bath and tea, my brain has kicked in.

Roughly how will it go day by day? When will dad likely be at his worst and when roughly will he start to feel a bit better (or less s**t!)?

]]> b18beaa9cdefa435172f54ef584fab8e VickiWilburn replied to the topic SCT - Tips and tricks! in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks#post-98556 Thu, 01 Dec 2011 18:16:42 +0000 Thanks to for all your replies, i'm a sponge for any bit of insight i can get at the moment, it's the best way i feel i can help apart from just being there for my mum and dad.

I saw dad yesterday just before the chemo was given. He seemed quite up but i could tell he was scared witless 🙁 The isolation room was HUGE, and he looked like a…[Read more]

]]> dc9ca4e0c9859a387d412b7c5c4f0095 VickiWilburn started the topic SCT - Tips and tricks!. in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-tips-and-tricks Wed, 30 Nov 2011 09:33:01 +0000 Hi

My dad went into hospital for his SCT yesterday. Chemo starts today and i'm looking for some help with food etc that helped or you could manage.

I've read a similar thread on here before but can't find it again, so sorry if this is asked a lot.

The only think i can remeber is ice/cube/ice lollies/ice cream for the mouth ulcers….i'm…[Read more]

]]> 5650625e27a362daaba73088977a61be VickiWilburn replied to the topic SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct1322348857#post-98545 Wed, 30 Nov 2011 09:25:18 +0000 Hi Only me

My dad went in for his SCT yesterday, and he starts his chemo today, so we are only a little way behind you. I popped on here to have a bit of a cath up on the reality of SCT, as i'd rather expect the wosrt. I think my mum is unprepared for how tough it will be on dad.

I just wanted to say hang in there, and i pray that your mum…[Read more]

]]> dee8f67c9ce7bfeb0531ae3ea9086c72 VickiWilburn replied to the topic Dad diagnosed with Myeloma last week - Starting chemo this week in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-diagnosed-with-myeloma-last-week-starting-chemo-this-week/page/2/#post-84690 Thu, 04 Aug 2011 11:25:18 +0100 The community McMillan nurse had said dad could reduce his diazepam to 1/day from 2/day as his back pain was much better. Dad didn?t like the constant drowsiness from it, and doesn?t like taking pills if [b]HE[/b] doesn?t think he needs them?..(typical man! ? ). It was after this that he struggled to sleep, the consultant told him in no uncertain…[Read more]

]]> 945da812665e04448a09c72b9870d5c4 VickiWilburn replied to the topic Dad diagnosed with Myeloma last week - Starting chemo this week in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-diagnosed-with-myeloma-last-week-starting-chemo-this-week/page/2/#post-84688 Mon, 04 Jul 2011 14:40:25 +0100 Hi Tom

Dad appears to be going the same way with his CDT, he's getting weaker too. He's not been able to work since March, and we're working through trying to get him DLA and something else but can't rememebr what it is now. He struggling to sleep, despite being absolutlely exhasuted….any tips???? Will this be the evil Dex at work??? He got…[Read more]

]]> 52e87ef556e5d91ead2e54011102ec31 VickiWilburn replied to the topic Dad diagnosed with Myeloma last week - Starting chemo this week in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-diagnosed-with-myeloma-last-week-starting-chemo-this-week/page/2/#post-84686 Tue, 28 Jun 2011 19:51:36 +0100 Thanks Eve

I'm hope that's the case for dad, although he's been feeling poorly with this first cycle, but it's not been nearly as bad as i expected when i thought about him having chemo. He said something similar himself, which is reassuring, cos i think he was very scared about starting the CDT. He's just super tired at the moment, and back to…[Read more]

]]> 294dcb2dccafd47a689d0b6d37d8f566 VickiWilburn replied to the topic Dad diagnosed with Myeloma last week - Starting chemo this week in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-diagnosed-with-myeloma-last-week-starting-chemo-this-week#post-84684 Mon, 27 Jun 2011 16:35:56 +0100 Time for a quick update…..

Dad is coming to the end of his first 21 day cycle of CDT, and is back at the hopsital on Wednesday for his tests. I'm trying not to think about it, as i don't know what to expect. DOn't want to get hope's up and then see nothing! Do you normally see improvements in levels after 1 cycle???

His pain was managable…[Read more]

]]> 6c3f10843f864bc691614b7bfec360ad VickiWilburn replied to the topic dad just diagnosed at 48 in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-just-diagnosed-at-48#post-84531 Mon, 27 Jun 2011 16:29:06 +0100 Christin
I'm so sorry to hear your news. I'm 32 and my dad (60) was diagnosed with MM 5 weeks ago too. As a family we're still struggling to come to terms with it, and have good and bad days, but it sounds like you're a very close family and are giving each other lots of support. Dad started CDT and is nearly at the end of his 1st 21 day cycle.…[Read more]

]]> 93ee5e561b14be9a514690498107f84c VickiWilburn replied to the topic Dad diagnosed with Myeloma last week - Starting chemo this week in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-diagnosed-with-myeloma-last-week-starting-chemo-this-week#post-84682 Wed, 15 Jun 2011 19:04:22 +0100 Thank you for all your replies and words of encouragement. I told mum and dad that i had been on this site and passed on all your positivity and support. Dad is computer phobic, but my mum has discovered the www over recent years so i expect she'll be on here at some point.

Jo & Eliz it's great to hear that you're in complete remission, and…[Read more]

]]> a3c98bb0db5cef6bc5ab95e52d32d0ba VickiWilburn started the topic Dad diagnosed with Myeloma last week - Starting chemo this week. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dad-diagnosed-with-myeloma-last-week-starting-chemo-this-week Wed, 08 Jun 2011 15:22:33 +0100 Hi, I?m Vicki and my dad was diagnosed with Myeloma last Tuesday.

He originally went into hospital 3 weeks ago, for vertebroplasty after 6 months of increasingly severe back pain. They had identified 1 crushed vertebrae, but no mention of anything else. While he was waiting in hospital for his operation, they took blood for tests and as we now…[Read more]

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