VickiWilburn

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  • #84531

    willywinki
    Participant

    Christin
    I'm so sorry to hear your news. I'm 32 and my dad (60) was diagnosed with MM 5 weeks ago too. As a family we're still struggling to come to terms with it, and have good and bad days, but it sounds like you're a very close family and are giving each other lots of support. Dad started CDT and is nearly at the end of his 1st 21 day cycle. He was in immense pain and it's crushing to not be able to take that pain away, but the pain teams are great and they have lots of options available. Luckily dad has had vertatbroplastly on his 2 crushed vertabrae, which has eased some of the pain, although not as much as we had hoped. Has you're dad had a skeletal survey to see if there is any bone damage? Fingers crossed the Velcade starts to have an effect soon.

    Thinking of you all
    Vicki xx

    #84682

    willywinki
    Participant

    Thank you for all your replies and words of encouragement. I told mum and dad that i had been on this site and passed on all your positivity and support. Dad is computer phobic, but my mum has discovered the www over recent years so i expect she'll be on here at some point.

    Jo & Eliz it's great to hear that you're in complete remission, and that you can go through SCT without it being totally horrible, i think it's that part that dad is fearing the most.

    Tom & Dai your outlooks are inspirational, and my positivity is restored and majorly boosted thanks to you're kind words.

    Dad has been home one week today and his strength is slowly getting better. His pain levels have improved and he's not getting the violent muscle spasms in his back as much. Mum has got into the swing of the DVT injections after a couple of wobbles, and they've got a bit of a routine going. He had his 2nd day of chemo yetserday and is feeling crappy today, but last week he was much better by the Friday. It's funny how quickly words like chemotherapy, SCT, cancer become normal and not so scary. We just chat about it like it's an everyday thing now, which show's we're coming to terms with dad's condition. Dad seems pretty chipper considering and i'm so proud of how he is dealing with it.

    I'll be back soon xxxxx

Viewing 2 posts - 16 through 17 (of 17 total)