[windylouParticipant]

Well, I had my first appointment with the haematologist on Friday
He insisted that I shouldn’t be worried
But then gave me about 6 pages of blood forms that he promptly stamped with urgent
I also had full body X-rays and urine test
Just have to wait for the results!

I had a bad day yesterday really disorientated spaced out and dizzy all these vague symptoms that I have had for a long time now
Just would like to feel normal again

[windylouParticipant]

Thank you for your reply

Your story seems similar to mine, hypothyroid for about 10 years
I have felt dizzy and out of salt’s for a long time, maybe 4-5 years then this vibration started in my lower legs and feet a year and a half ago which started my neurologist journey, but nothing has been found
This blood test that has found the paraprotein was in December and I am going to my first haematology appointment on Friday
I am expecting it to be MGUS and hoping that they will confirm that the vibration that I experience every day is related to the MGUS, then I will at least have a answer to that
By the sound of it MGUS just lingers there and we just watch and wait and hopefully it doesn’t progress

Thank you again
Take care

[windylouParticipant]

Hi Jane

Thank you so much for replying

I have been hypothyroid for about 10 years and under control and used to knowing if my levels feel a bit off ect

I am reassured that my paraprotein is only 4g/l it was just confusing when the GP casually said referral to Haematology, I have read about (MGUS) and am anticipating that is what’s going on with me 🤞🏻 But like a lot of you on here you can’t help but worry and wonder until you are more informed
For about a year and a half I have been experiencing vibration’s in my lowered legs and numbness pins and needles in my hands, I was referred to a neurologist and have had numerous tests including MRI to rule out MND MS ect the only thing they have come up with is that I have some degenerative disc osteoarthritis and referral for physio
Oh this getting old malarkey not fun

I’ll post again if and when I have my answer

Lou

[Author]

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