[yorkieParticipant]

Hi Georgie

 

How do you grate turmeric – I have only seen it in powder form. Never thought to just put it on the top of food. My brother is 66 so only just started enjoying retirement.He was diagnosed last October.

Drinking a lot is important anyway, especially for men as their waterworks are more complex.

Did you know they are giving people (over 70 I think) an injection against shingles. If you have had chicken pox it can lie dormant and come out later as shingles. I really think our bodies should be designed better!

Like you I am sure there will be a cure soon.

Will keep in touch

Wendy

[yorkieParticipant]

Thank you so much for responding.

What is CTD? There will be a cure I am sure and I have told my brother to keep strong until then. We do not have cancers in our family (usually heart problems and then caused by illnesses in childhood) so this is all strange to us. Why on earth did my brother go from being extremely healthy (He had just retired and looked so well and tanned) to getting myeloma. There is a reason for its starting and I can’t wait to find out what that is. He did not work in the petrochemical industry so that hasn’t caused it.

Thank you so much for the turmeric heads up – have heard it is good against alzheimers onset. It looks as though we need something to target and kill the MM cells as I have learned the body does not recognise these as ‘bad’ and therefore does nothing about them. A bit on TV last night about Virology where they are changing the herpes virus to recognise and attack cancer cells but they only mentioned re a man who had a cancerous lump in his neck (which completely disappeared after treatment) and they are now moving onto skin cancers melanomas. Shame the next one wasn’t myeloma!

 

My brother nibbled at ginger biscuits which kept his nausea at bay in the early stages. Again I mentioned ginger biscuits to him and he dismissed this idea so I told my brother to buy him some and take them into hospital. He then discovered that they worked but no doubt will not

remember that his older sister advised him to take them – brothers!!!!

Hope your father’s treatment sends him into remission.

 

All the best

Wendy

 

P.S. Yes please keep in touch

 

How does your father eat the turmeric – I can only think of it in curries!

 

My brother’s paraproteins levels were 60 at his worst with his kidneys failing (mind you he had stopped drinking – I had told him in the past that he didn’t drink enough but would he listen to his sister – no!) but he has now taken this on board and by my making him drink continuously in hospital- always refreshing his water and handing it to him and giving him grapes etc (which is what the nurses should be doing) his kidneys, against all docs expectations, have recovered. His PP levels after having Velkade dropped to 7.5 – docs

stopped Velkade as levels weren’t going down any more and I think they want them to be at 1 or 2. He is to see the specialist next Friday.

[yorkieParticipant]

Hi Annlynn

Thank you for your reply. I understand what you are getting at but there will be a cure – there is a cure for everything, it is just a matter of time. Many cures are found in plants. The millions of deaths from TB were stopped when it was discovered that antibiotics could cure. Also I had a friend with a stomach ulcer for years until again antibiotics cured that.

As the elder sister I feel I have to do everything for my brother.

Thanks once again and let’s hope for a cure soon.

 

Wendy

[yorkieParticipant]

Thank you so much, Ellen for noticing I had not had a reply and dealing with that.

I have been told that hyperparathyroidism is common though frequently undiagnosed. I am going with my gut feeling here (rarely lets me down) but also if my brother has this condition it is treatable whereas myeloma is not and it may be wishful thinking on my part. My brother had an op on his neck about four years ago (pharyngeal pocket) and I am wondering if the parathyroid was ‘damaged’  during this very invasive op.

I have written this week to the hyperparathyroidism specialist at Spire to see if he can help me as I am not sure what the difference is – does it show in a blood sample and if so what do they look for in hyperparathyroidism.

My brother was on Velkade and at first it worked well (60 paraprotein level to 7.5) but doc not happy with a level of 7.5 and is now talking stem cell treatment. My sister and I are wondering about a second opinion but not sure how to go about this.

I may have to come back to you – what an excellent site yours is!

Thank you

[Author]

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