Thankyou so much for your responses, it is great reading such uplifting stories and well done to everyone who is fighting this!!
The consultation went as expected, with a treatment plan starting next week.
I’ve since read some more info, on this great page, re the pain side of things and feel we have a better understanding and whilst the pain is horrible for anyone to experience, we’ve come to realise it is to be expected, so it seems pain management is top of the list, for the foreseeable!
Keep fighting!👊🏼
