Hi Joe,

I’m pleased you got through your tests okay. Now its just the waiting. I was at work every day so that kept my mind off things most of the time but its hard not to worry. I do know how you’re feeling as this time last year I was having to deal with the same. Now a year later I’m still stable. I have more blood tests tomorrow and back at…[Read more]

Hi Jean,

Many thanks for your advice. It is appreciated. I am due blood tests again next week and see my Haematologist on 13th May for my latest results. It is 1 year since I was first diagnosed with Mgus / borderline Myeloma and I’m in a routine now with what to expect. If the results are stable I’m expecting to probably just see the Myeloma…[Read more]

I know what you mean re looking information up. It can definitely mess with your head and you end up tormenting yourself needlessly. I am making a concerted effort to not keep reading information. There’s not much point. Whatever will be will be – it won’t change anything.

Just got to go with the flow…..

Thanks for your input

Yvonne

Hi Graham,

Many thanks for your advice. I am due more bts in a couple of weeks again and seeing haematologist 13th May. Which blood tests do you normally ask for? I usually have fbc, u&e, calcium and Immunoglobulin. I am having the Serum free light chains as well this time. It has been a difficult couple of months because I have been having bone…[Read more]

Hi Joe,

I know you’ll feel nervous …..everyone I have spoken to does.  Hopefully you won’ t have to wait too long so you can get the tests over with. Take someone with you if it helps. You’re no chicken I’m sure. Let me know how you go on.

Take care

Best wishes

Yvonne

Hi Joseph,

I was diagnosed with Mgus IgA / borderline Myeloma in may 2014. I had been to my gp because I had like growing pains in my legs and tingling in my feet and hands. I had several bts including Immunoglobulin which came back abnormal. My gp rang me and said my tests were indicating I could have Myeloma so he did a 2week referral…[Read more]

Dear Angelina

I just want to know what’s happening with my results …..if things are staying stable or getting worse. I am borderline Myeloma and just so I can deal with this mentally I want to be aware of all the facts not just a select few. I am sure you understand that it can be difficult living on this knife edge all the time. I am still…[Read more]

Hi Tony,

Thanks for replying. I am seeing a Haematologist at Nottingham City Hospital. I am usually in and out of appointment in about 10 minutes with just a quick consultation of what my paraprotein has done . I know that there isn’t a lot to be said when you just have Mgus but I do want to have some form of control if possible even if its only…[Read more]

Hi Carol,

Thank you for your reply. When I go back mid May for my results I will ask. Obviously its easy to read information on the internet but without all the facts and figures I don’t know what is relevant to me specifically. I want to be informed about my situation without being paranoid if you know what I mean.  Its me that is having to…[Read more]

Hi

<span style=”font-size: 13px; line-height: 19px;”>Does your hospital generally give you all your blood results easily or do you have to prise it out of them? I have been diagnosed as Mgus/ borderline Myeloma since last May and all my consultant will ever give me is my Paraprotein which is 11 at the moment. I generally visit hospital every 10…[Read more]

Hi Helen,

Glad you got your results at last !! Its not good you had to wait that long as the mental stress is hell. Its reassuring for you though its still not easy. I had my appt with Haematologist last Weds. My paraprotein had crept up again slightly and because I told her of bone pain in my arms, legs & ribs she sent me to have more xrays…[Read more]

Hi Dave,

Many thanks for your reply. These bone pains are definitely not normal aches and pains. The pain in my femur and arm / shoulder take my breath away at times and have had many sleepless nights with it. I’ve not heard anything yet….but if they say not Myeloma related then I may follow your lead and request another opinion. Just shows…[Read more]

Well I saw my Haematologist yesterday. Paraprotein crept up slightly again. Had to tell her that having bad bone pain mainly in right femur, right humerus and ribs so she immediately sent me to have xrays taken. I really cannot fault the care and attention I have had with the NHS since I was first referred last May. Dr says she will call me when…[Read more]

Hi Helen,

It is really difficult Helen. I have been going to hospital every 10 weeks but you’re right….. we’re living our lives in these blocks of time. Its no joke. It is really hard to be “normal”. We are on this rollercoaster though and we can’t get off it so we’ll just have to hang on in there……

Take care xx

Hi Helen….have just seen your posts re your appointment and blood tests . I really doThe mental and emotional anguish you go through. You cannot just put it to the back of your mind. I have had my latest blood tests done on Monday ready for my appt with the Haematologist next Weds 4th March and I am having a real struggle mentally this time. I…[Read more]

Hi Kath,

I am new to this site and know just how you feel. I was diagnosed with MGUS last May and have had regular blood tests since and been reviewed by Haematologist regularly. My initial IgA level when found last May was 11 which went up to 13 by time I’d had my bone marrow biopsies, etc. It then went down to 12 then 10 but had gone back up to…[Read more]

Hi Chrissie….I think we have all helped each other. To know that others are going through the same thing and having the same fears and feelings takes some of the loneliness away. Its not nice but we are on a bit of a rollercoaster ride with ups and downs. We can be there for each other.

Take care…..love & hugs

Yvonne xx