Sorry david!

I knew that conkers did something!!

Maybe quinine is the answer. Does tonic water have quinine in it? Maybe a few gin and tonic at bedtime may help until a script is available.

Sarah

Hi Min

I think i did read something about conkers in the bed!! Could have dreamt it or read in my witches hand book.>:-)

sarah

Hi Bridget

i do hope that you soon get relief from the rt, there is nothing worse than nasty nagging pain, hope you are taking some good pain killers, boney pain so difficult to treat though.

best wishes sarah

my mother made elderflower champagne once all the bottles blew up one night in the kitchen it was a revolting mess, my mother was teetotal, never did understand what she was up too!!

Bridget please could i ask you to cut the red ribbon on my shed opening? I promise proper champage + Harveys + hopefully fantastic acoustic music, i promise not…[Read more]

I have quite a new garden shed could i have a an acoustic opening as well? Not to good on the home made wine, local harveys beer is excellent! Cucumbers next door in the greenhouse ,could try to ferment them have a feeling they could be pretty awful!! Could make potingine (spelling) lots of potateos in the garden:-D

Sarah

Good Luck Gaye, Phil,Kieth and Min with all the new treatments, Gordon is recovering from his 2nd sct and vows never again, so i am finding it very helpful to read of the trail blazing treatments, though gordon had revlamid which kept the mm dormant for 2 years with no side effects except for the dreaded dex!!

Best wishes

sarah:-D

Hi Jean

Many congratulations, grandchildren are the best tonic in the world, your granddaughter is beautiful.

best wishes

sarah

Dear All

Thank you for the images!!! I have had such a giggle!!! Can't sleep so reading your postings has helped pass the night away!! Too dark to see my will, bet he is lurking under a choclate bush.

Sarah

Hi Bridget

So glad you are starting rx so quickly hope all goes well and you get rid of the pain!

best wishes

Sarah
ps hats still keeping us warm!

Hi Kieth

Good luck with the the pomalidomide, gordon was on a revlamid trail which gave him two good years without mm ( apart from the the b dex). He also had velcaid + dex prior to the last transplant and reponded well though his platlets dropped after each treatment.

Keep us posted and Gaye please let us know how things go it is great…[Read more]

Hi

As has already been posted, sorry you have had to join us but welcome!!!

My husband has mm and has just had a 2nd stem cell transplant in dec, the 1st transplant lasted 6 years of more or less a normal life. I think i often bury my head in the sand as i am sure that really gordon will get better really!! Idiot!
His parents don't really…[Read more]

Hi David

Great news so glad went so well at the hospital, Gordons app. post sct is next week not sure he is doing so well as yourself as he is still on GCSF every 5 days, but as you say onwards and upwards:-D

best wishes

sarah

hi keith

Good luck with the velcaide, gordon had velcaide last april prior to him having a 2nd sct. velcaide work very quickly and he went almost straight into remission, no problems apart from the dex!!!:-/ he also has no probs with kidney function ect.

best wishes sarah

Thank you David!!:-)

What a great song we haven't laughed so much for ages:-D

We all have a great deal to lool forward to:-)

best wishes

sarah

hi gill

good luck with your new addition. there must be something in mm drugs, gordon was very dissapointed that there was not a collie pup in his stocking!! our working collie is showing his age now, until he sees a flock of sheep, then he looks 2 again!

i will buy him (skip) some flexijoint min sounds good.

all the best

sarah

hi min

hope you get accepted fingers crossed. i wrote my resignation in june still on the computer! i relly think i need also to give up so many other things to do plus working plus soupporting plus time off for hospital apps is getting me down, not helpful for my nearest and dearest.

i wonder if i am being selfish to carry on working and…[Read more]

hi shirley

great to hear your great news, amazing what can be done with drugs and willpower! Gordons hair grew back thicker and not so grey still had his bald patch, waiting to what happens this time, still very bald wears his hat all the time.

Were you given the option of a wig? some wigs i saw at kings were lovley grat for keeping the head…[Read more]

hi keith

sorry to hear about round two. gordon is on round two and responding slowly but he is getting there. there seems to new treatments coming on line all time for mm.

good luck

sarah

Thank you for such a lovley poem, ihave put it in my diary to read often.

sarah