Hi Min

Everything you wrote is so true, i too loose my temper get frustrated, the worse thing at the moment is gordon will not take his calcium tablet!! hates it when i jabb him take his blood every other day i don,t blame him i would hate it but at least he is slowly responding to hus 2nd sct.

We have been living with this for nearly 9…[Read more]

Hi David

Hope the mouth and lower regions are begining to improve morphine drip will help!! 🙂 Your postings are amazing having the energy and humour is a credit to you, all gordon could do was to be very miserable, as i would be in the same position!:-(

We now have heat gordon no longer has to wear bridget,s lovley hat morning noon and…[Read more]

afternoon david

gordon's neutos .17 were .21 had a blimp which was a bit worring he is desperate to get home now, we as a family need him to stay in london!! Nasty or what! we took the old wood burner out on friday to put a new one in, things never go to plan,and the new one is still not in both sons have to work and i hate heights. we have…[Read more]

Hi Nickie

I think you and i are almost at the same point in time with our ( understanably) grumby men!! sore bums and mouths!!

After gordons 1st transplant he could not tolerate milk except a very little in tea/coffee, from today he is eating rice pudding, breakfast cearals and milk as though he is catching up after the last 8…[Read more]

Hi Judy

Best of luck to you both, gordon had his 1st sct when he was just 50 and it gave him 6 good years of life,dayghter up theaisle the birth of 2 grandkids, after two years of other treatment now in KCH having his 2nd sct.

Such a b*** awful disease.

with love sarah

Hi Roz

I am so sorry to hear about all the terrible time you and michael are having thinking of you both and many cyber hugs to you both.

love sarah

Hi Bridget

Good luck with the surgery,and i hope you manage to get a lovley picture of you spine:-D
love sarah

Hi Min

I do agree but i am afraid like you i never remmber jokes the punch line:-( never!!
i have many friends who phone and offer support but i somehow get a lot of suppourt on this site cause we all know what it is like to live with mm.
I hope all the contributors on the original site make it over, we all need each other!!

best wishes

sarah

Hi Donalb

My friend debbie's hand is on my shoulder!! It is the only photo that i have that looks vagually reasonable hate having my phto taken, it was was at the end of a very long boozy wedding, i was not driving!8-)

Sarah

thanks web team i have managed a photo!! Hope all the other members of the discussion group make it over to the new site!!

sarah

Hi Mari gaye and elizellen

thank you all, and yes gordon is under steven schey great consultant, great suits!

all the best

sarah

hi Bridget

good luck to you maybe by the time you need a 3rd transplant those pesky stem cells maybe gotten from somewhere else(horizon a couple of weeks ago)All the best

sarah

Hi David
thank you for your reply i think all you guys who have mm have guts!

i will keep on the rose

all the best Sarah

Hi David

good luck with sct, my husband goes for his 2nd sct on 7th november at kch good luck to you both!!

Sarah