hi bridget

so pleased your ankels have decided to return to you have alovley drug free holiday
with love sarah

thank you all my cyber friends. gordon home tomorrow no more treatment his kidneys are failing as is his liver, my living room has a bed for him i am in total shock. we are in the middle of an amazing harvest with gordon not helping. life is too unfair.

my good wishes to all of you i cannot sat keep taking the pills they dont f……………..…[Read more]

Hi All

Gordon now vwry sick the myeloma has decided to attack his liver, he has yellow whites instesd of white, i thought i had lost him yesterday so much pain a chest infection his protin levele have come down to 96 from 102 some improvment.

How many tears can one person cry.

sarah

Hi Dai

I am gobsmacked by your treatment!! we all pay for treatment through our taxes the medics are all paid by us the arrogance of some medics drive me mad. We had one in king,s he thought nothing of letting a door smack into me he was far to much up his bottom to see a lowley terrified wife whose husband was having a bone marrow…[Read more]

Hi eve

I love Joe,s sword of damacles! Think i will take that with me when i go to the hospital today!!
I am always pesamistic it makes the weenist scrap of good news mega fantastic. Gordons hb went from 7 to 7.5 and his neut from .5 to .7 after blood platlets gcsf etc i was thrilled, the results are trully pathetic after all that…[Read more]

Hi Dai

Poor you i agree with eve and min i wam a ex district nurse and the d dimmer test takes a few mins it is not conclusive and if poss you will a scan to confirm all very easy to have Can you phone you gp surgery today they should be able to do a d dimmer. It really is scarry reading other posts at the total incompidence of some, not all,…[Read more]

Hi Joe

we went on the train up snowden a couple of years ago, it is very steep and very beatiful!! did you have a drink at the top? we could not see a thing when we got there so much mist. glad you had a good time in wales such lovley sceanary. hope all the new kitchens are great, such an upheaval when they are being fitted, but worth it :-D…[Read more]

Hi all you lovley cyber friends

Gordon hopefully home tomorrow, i think it is his call i can give his meds etc as well as the hospital, then 2-3 x weekly blood tests + blood and platlets as and when + revlamid and the rest!! I hope the treatment works, you have all been there and beyond. Have used the blue badge to deliver him to hospital and…[Read more]

Hi Eve

Thank for your posting how do i sleep? seeing the mac nurse tomorrow maybe she has a magic wand!x

hope all is okay slim

sarah x

Hi Gill

fingers and toes crossed 🙂

best wishes sarah

Hi all
gordon has now a blue badge, our macmillan nurse got one for us it arrived within 24 hours! used it for the 1st time today, to take gordon to hospital for emergency admission, not too sure if he will get to ever use it again.

best wishes sarah

Hi David

so pleasedyou had a great time on the rivers i have always fancied doing that. have a lovley time in st ives:-D

sarah

Hi Sue
thought of you as well in whitby, wondering if you were both having such a great time as us!!! i hope not !!

not sure how about citalopram eve is the person to ask, i am still on wine/rum/ gin whatever is to hand!:-D

gordon now home to have revlamid plus drugs that go with it + gcsf + dxt for his hip. happy days:-(

sarah xx

Hi Eve and bridget
thanks for your posts i may well try citalopram! i am waiting to hear from the hospital as hope fully gordon can come home for a long weekend. i contacted the blue badge lady at the council, she advised me to ask our mac nurse to phone her and we could get one within 24 hours! Mac nurse is not around until tomorrow, so will let…[Read more]

Hi Eve

What pills are on? Sometimes feel i should be on pills rather than alchol, always feal so dreadful in the morning!!

Gordon had his last dose of dex on the morning we drove to yorkshire, i shut my eyes or read the paper, so i could not see the speedo!! He came down with a bang that night ! I have posted about yorkshire but it has…[Read more]

Hi All

what a beautiful place the yorshiren dales are lovley weather , pity gordon saw the inside of Airdale Hospital for three days, we were supposed to be away for only 4!! In hindsite we should not have gone away, he says he will never leave sussex again:- Airdale hosp was very good, there was a very big comfy sofa in the day room with a…[Read more]

Hi Dai

I cannot imagine what it is like to have your daughter and grandchildren so far away mine two little ones are always here!! I have to go away to not see them almost every day!!! I am so lucky.

Chin up Dai you have a very talented and by the sound of your posts loving family.

sarah xx

Hi All & Sue Min Bridget Dia Eve Joe Mavis Gill and Min

thank you so much for all your posts. to try to answer some of your questions, i dont really know which mm gordon has, but he was dignosed over 9 years ago and after his 1st sct had 6 very good almost pain free years. he does not appear to have any kidney or bone damage and no tumours…[Read more]

hi dai

what a lovley voice your daughter has you must be so proud of her,as joe says majorca is not far away. what a lovley talent to share with amy.

sarah xx