Hi alister

my husband has had 2 sct transplants at Kings College hospital in london, not to keen on the trasplant unit but much better than the 1st time round in 2002. Ge is/was under Dr Schey and he is also under our local hospital on the south coast which is a god send!!

Godd luck and hope you make the choice to suit yuo all, I would…[Read more]

Hi Min

So sorry to read your last post as the other replies have said it looks like bad times then …better times:-D Gordon went ontp thalidomide in 2002 after his 1st sct.which worked really well no problems no side effects, he then relapsed in 2008 and then went onto other drugs

I heard a slightly differrent version to Joe as to how…[Read more]

Hi Bridget

So glad you had a lovley visitor, the Macs are wonderful and know so much about everything cancer related, if they dont know they find out. Hope the new regime helps, GPS are completley hopeless on pain relief I know as I used to work with them! Gordon and I go straight to the local hospital now never bother with the GP!! Have no…[Read more]

Hi Min
I am so sorry to read your last post, what a dreadful disease mm is it is like living on a tight rope just waiting for the next nasty! At least Peter is feeling well always a good sign:-D

I have just given Gordon yet another GCSF! He also fells fairly well his blood results say different!

I do hope the next treatment helps Peter…[Read more]

Hi Ruth

I feel you need some proffesional help with your questions, is there a specalist nurse or someone at the hospital who could help. The staff at myeloma uk are also very good at answering questions.

Hope you find some answers!!

best wishes

sarah

Hi Min

How true!!! I so agree with all youhave written i only wish i had your way with words. I too have a house of dust and windows that look uncared for but if gordon says shall we do this or that i now never say no, time is so presious. Weeds are flowers in the wrong place and how come your amaryllis is in bloom??? i am still waiting, i so…[Read more]

Hi Liz

I totally agree with all that has said before, our local hospital is always so godd and helpful.Min mentioned GCSF wich Gordon is still on following his SCT in november, it it still causing bone pain the thigh bones breast bone and ribs seem to be the worst affected, hope this helps.

best wishes sarah xx

Hi Gaye

I do hope the drs can sort out your pain soon, every day with pain is a day too many. gordon was told as dai was that his pain was controlable and most of the time it has been. good luck and hopefully you can keep us posted with your progress

With love

sarah xx

HI Dia

I agree with eve we need the music, no angels for you yet a while!!

sarahxx

thank you dai i so wish i had your way with words must be the celt in you!

best wishes sarah ( very english very stiff upper lip unfourtunly) ( cant spell had to much wine)

xx

Hi Ali

welcome, i remember so well the shock of gordons diagnosis 9 years ago, after two sct he is still going strong, well not so strong but here and doing most things he loves to do. i hope guy improves as i am sure he will, look after youself and stay positive.

best wishes

sarah xx

Sct is a stem cell transplant which may well be a…[Read more]

Hi david

So pleased for you and your family, you are about 6 weeks ahead of gordon who is still having epo and gcsf to stimulate the bone marrow. Enjoy!! I agree with Tom where are those bikes with lovey comfy seats!

All the best

sarah

Dear tina

I have just come on line and read your very sad news of Patrick, I can only imagine what you and your family are going through.My very best wishes to you at this difficult time.

With love

Sarah

Hi Angelina

gordon had 6 cycles of velcaide prior to his 2nd sct and apart from the dreaded dex seemed to sail through the treatment with few side effects, though nutrafils dropped and at times could not have velcaide. I am sorry that john is so poorly,and sorry i cannot help more, at least he is in the best place and being cared for.

best…[Read more]

HI Min
I also have just bought adele 21 i just love her voice and songs.

all the best sarah

Dear Bridget

Have just read your post, b….. housework should be banned, as should dust!
I am so sorry to read about the pain in your back and can only agree with everything the others say. We here in eastbourne have a great nurse specalist who i contact when i feel i need to, i am sure you have one too. Hope all she/he can put your mind at…[Read more]

Dear Eve

Congrats on becoming a wedded/honest lady:-) . So sorry to read of your very difficult time, men who would have them? I try to go with my gut feeling now, I think us 'other halfs' really get to know when something is not right I have ignorged gordon more than once and i am usually right, gordon now trusts me, i hope slim will do the…[Read more]

Hi Gill

thank goodness!! where there is life there is hope, dont let anyone take your hope away!!

have a wonderful easter

sarah xx

Hi Min

Hope your ears are not deafened by the fog horn, move south, the weather is beautiful, at least you will not get sun stroke:-)

thanks for explaining about the heparin, this mm is so different for everyone, will the boffs ever get on top of it!

keep well happy easter to you and family

sarah xx

Hi min

Poor peter having daily heparin is it not possible for him have warfarin instead? maybe due to mm this is not possible.I am enjoying not going to work now have time to have the grandchildren more often! How do you apply to become a carer and have gov.aproval to nag!

Sorrry you cannot see the sun, I do hope it shines for you both over…[Read more]