[zasrsParticipant]

I so rarely sign onto the myeloma site now, but for some reason I felt I had to tonight, I am very sorry to hear that Dai a man I never met, but who gave me such comfort when my husband died, has also lost his battle with myeloma. My thoughts go out to you Dai,s family it sounds as though he has left a lasting legacy which will bring great comfort to you all.

My sincere condolences

Sarah

[zasrsParticipant]

Hi gill
What an adventure ! You gave me such a laugh. I nearly took out several cars in Calais I forgot they drive on the wrong side at some traffic lights.

I thought I was doing great guns when I did a long haul with connecting flight on my own, but that was peanuts compared to your trip!

Well done you, we never what we are capable of till it happens.

Best wishes

Sarah

[zasrsParticipant]

Hi Roz

I don't often come on the site now, but glad I have and pleased that you getting more help, life has not dealt you an easy ride.

Not sure I want Christmas to come would love to hide under the duvet for several days but not an option!

Take care

Sarah

[zasrsParticipant]

Dear Mari

I am very sorry to hear of the passing of Stephen this is such a dreadful disease.at least he is no longer in pain, the thought that Gordon is no longer in pain help so much during those first few difficult weeks.

My thoughts are and best wishes are with you.

Best wishes

Sarah

[zasrsParticipant]

Dear gill

It is over 18 months since Gordon died I still speak to him swear at him it does help. I also had a huge meltdown in the week I find coping with his brothers and mother so very difficult it always upsets me, they seem to assume everything is back to normal, back on the brandy and sleeping pills!

Very early days for you gill look after yourself the one thing I have learnt is that everyone is different there is no right or wrong and anyone who says different has no idea what it is like.

Best wishes. Sarah

[zasrsParticipant]

Hi sue
Have just read your first post I am so sorry that you are and Michael are are in this difficult place as I retired district nurse I urge you to contact them in many ways they are better at pain control than the gp we use to tell the drs what we wanted. Disttrict nurses also work 7 days a week. When Gordon came home for the last time I contacted my pld team not the hospice or the macs they were as I knew they would be brilliant.
My love to you both hold Michael tight.

Sarah

[zasrsParticipant]

Dear gill

I too had counselling 6 months after Gordon died I was quite looking forward to talking to someone to try to understand how I was feeling and maybe give me some coping strategies. How stupid of me! I had 3 phones calls approx 30 mins each with someone who sounded as though they should have still been at school! What a waste of money, it was no help we run a farming business from home there is often family coming in and out all the time how on earth was I supposed to rant and rave as I wanted! The conversation was recorded which makes for a delay in answering which also makes for a stilted response! Very weird. No help at all.
Min, Gill and Roz I hope you get through this Christmas period somehow,II really want to put the duvet over and sleep for 48 hours but the grandchildren won't let me!
Love to all on the myeloma site

Sarah

[zasrsParticipant]

Dear Sue and Michael

What a brutal way to give you both news which we all know will come one day but hope against hope that we never will hear.

I was told to take Gordon home, I thought we would have some time together at home to talk and say things we had not yet said. It was not to be Gordon shut us all out and died within 36 hours of coming home.

If you can talk to each other all the time, hopefully he can stay at home there is hopefully a good district nurse team where you live they are better than anyone else as they work 24/7 other teams seem to work 9-5 monday to Friday.

With beast wishes sarah

[zasrsParticipant]

Dear Gill

I can only agree with Mavis Min and Eve. Friends and in many cases family have no idea what we are going through, I think some of them think 15 months on I should be over it whatever it is. I first met Gordon when I was 16 he died when I was 58 how on earth does anyone think those years can be passed over. Gill the ache does improve but as far as I can tell not a lot else. 2 months ago my daughter sat on my bed at midnight and sobbed and sobbed, I am sure your children are putting on a 'face' for you they too I am sure are missing their father so much. We do talk about Gordon a lot and even my 3 year granddaughter still mentions him usually when we have a full moon as Gordon is there eating cake!

Look after yourself gill do what you want not what other people want, I to have been in touch with the group min mentioned, it is wonderful to be able to talk and hear about other peoples experiences.

I so long for a strong pair of arms round me.

With love sarah

[zasrsParticipant]

Hi Dai

So sorry to read of the horrid time you have been having. Take care of yourself and Janet thinking of you and your family.

Sarah xx

[zasrsParticipant]

Dear Gill

My love to you and your family. I am sure like me and the others who have lost our loved ones you will contribute to the disscussion group.

With love Sarah

[zasrsParticipant]

Dearest Jill

I am so sorry, I was thinking of you both all day today, I cannot pray. Thank goodness he was not in pain at the end. I wish I knew what to say to help you, all I can do is cry for you and your family and his mum, I too had to tell Gordon's 85 and 89 year old parents, it is not right.

My deepest sympathy and love

Sarah

[zasrsParticipant]

Dear Gill
I am so sorry i can add nothing to what the Min and Tina and Dia have posted. I do feel for you Gill, Gordon,s end came so fast we did not begin to sort things out and he went in on himself for the last 24 hours and would not communicate all of you reading this Please talk to each other lots and lots.

My thoughts are with you Gill.

With love

Sarah

[zasrsParticipant]

Dear siobhan
I read on FB your very sad news. I am so relieved that her passing was peaceful and she is now out of pain. Her knitted hats are very special to me.
My thoughts to you and your family.
Sarah

[zasrsParticipant]

Dear Bridget
I have not been on this site for many months, I am so sorry you are having such a dreadful time, I can only repeat what Gillyhas said in her post, I too still have the hats you so kindly knitted for Gotdon. Hang in there.
With love
Sarah xx

[Author]

Posts