[zasrsParticipant]

Hi alister

my husband has had 2 sct transplants at Kings College hospital in london, not to keen on the trasplant unit but much better than the 1st time round in 2002. Ge is/was under Dr Schey and he is also under our local hospital on the south coast which is a god send!!

Godd luck and hope you make the choice to suit yuo all, I would advise you keep off the american web sites, they send me stir crazy!!

sarah xx

[zasrsParticipant]

Hi Min

So sorry to read your last post as the other replies have said it looks like bad times then …better times:-D Gordon went ontp thalidomide in 2002 after his 1st sct.which worked really well no problems no side effects, he then relapsed in 2008 and then went onto other drugs

I heard a slightly differrent version to Joe as to how thalidomide was rediscovered, a doctor working in Jerusalem had a parient who was in a great deal of pain due to leprosy and found an old bottle of thalidomide at the back of the cupboard and in desperation gave some to his patient, it not only conrtolled the pain but halted the leprosydue to the drug stopping ? not sure what but is relevent to MM. Now I have written this down I think I prefere Jo's version!!

Anyway Min hope all goes well with the treatment everyone seems to have so many different symptoms and respond so differently;-)

Best wishes Sarah xx

[zasrsParticipant]

Hi Bridget

So glad you had a lovley visitor, the Macs are wonderful and know so much about everything cancer related, if they dont know they find out. Hope the new regime helps, GPS are completley hopeless on pain relief I know as I used to work with them! Gordon and I go straight to the local hospital now never bother with the GP!! Have no faith in her at all!!

Thinking of you dear Bridget I wish I could help, you all I can do is send you cyber hugs 😀

Sarah xx

[zasrsParticipant]

Hi Min
I am so sorry to read your last post, what a dreadful disease mm is it is like living on a tight rope just waiting for the next nasty! At least Peter is feeling well always a good sign:-D

I have just given Gordon yet another GCSF! He also fells fairly well his blood results say different!

I do hope the next treatment helps Peter keep stong. Cyber hugs

Sarah xx

[zasrsParticipant]

Hi Ruth

I feel you need some proffesional help with your questions, is there a specalist nurse or someone at the hospital who could help. The staff at myeloma uk are also very good at answering questions.

Hope you find some answers!!

best wishes

sarah

[zasrsParticipant]

Hi Min

How true!!! I so agree with all youhave written i only wish i had your way with words. I too have a house of dust and windows that look uncared for but if gordon says shall we do this or that i now never say no, time is so presious. Weeds are flowers in the wrong place and how come your amaryllis is in bloom??? i am still waiting, i so love that lovey blue flower!

keep writing

sarah xx

ps i have never been able to spell:-/

[zasrsParticipant]

Hi Liz

I totally agree with all that has said before, our local hospital is always so godd and helpful.Min mentioned GCSF wich Gordon is still on following his SCT in november, it it still causing bone pain the thigh bones breast bone and ribs seem to be the worst affected, hope this helps.

best wishes sarah xx

[zasrsParticipant]

Hi Gaye

I do hope the drs can sort out your pain soon, every day with pain is a day too many. gordon was told as dai was that his pain was controlable and most of the time it has been. good luck and hopefully you can keep us posted with your progress

With love

sarah xx

[zasrsParticipant]

HI Dia

I agree with eve we need the music, no angels for you yet a while!!

sarahxx

[zasrsParticipant]

thank you dai i so wish i had your way with words must be the celt in you!

best wishes sarah ( very english very stiff upper lip unfourtunly) ( cant spell had to much wine)

xx

[zasrsParticipant]

Hi Ali

welcome, i remember so well the shock of gordons diagnosis 9 years ago, after two sct he is still going strong, well not so strong but here and doing most things he loves to do. i hope guy improves as i am sure he will, look after youself and stay positive.

best wishes

sarah xx

Sct is a stem cell transplant which may well be a treatment choice for Guy.

[zasrsParticipant]

Hi david

So pleased for you and your family, you are about 6 weeks ahead of gordon who is still having epo and gcsf to stimulate the bone marrow. Enjoy!! I agree with Tom where are those bikes with lovey comfy seats!

All the best

sarah

[zasrsParticipant]

Dear tina

I have just come on line and read your very sad news of Patrick, I can only imagine what you and your family are going through.My very best wishes to you at this difficult time.

With love

Sarah

[zasrsParticipant]

Hi Angelina

gordon had 6 cycles of velcaide prior to his 2nd sct and apart from the dreaded dex seemed to sail through the treatment with few side effects, though nutrafils dropped and at times could not have velcaide. I am sorry that john is so poorly,and sorry i cannot help more, at least he is in the best place and being cared for.

best wishes sarah

[zasrsParticipant]

HI Min
I also have just bought adele 21 i just love her voice and songs.

all the best sarah

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